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my moms friggin diabetes Ok. My ma has diabetes. Has a testing kit, insulin, insulin pens, pill medication as well...the whole deal. Yet she insists on being a uncooperative patient. She also has pancreatic issues. Had an infected sac removed from her pancreas and her stomach had attached itself to her pancreas via scar tissue...I believe. The sac and detaching the pancreas were done in same surgery. The scar from this surgery is not healing correctly. It needs to be packed so it can heal from inside out...blah blah blah. I suspect this is due to her diabetes. Despite all of this...and weakness...vision issues...neuropathy...sleepless nights(after sugar loading of course) she refususe to take care of her self. She still drinks Delaware punch regularly, along with coke and orange soda and oranclge juice and chocolate milk. Refuses to eat regularly, as in she'll fast for days, aside from cheetoes, cookies, chocolate covered pretzels. The only regular food she'll occasionally agree to eat is pasta or pancakes(w/ syrup of course). She does EVERY bad thing a diabetic can do save main-line injecting maple syrup. How can I help her? Or should I even try? I'm inclined to just wash my hands of it and leave her to do as she wishes. ANY info or suggestions given are falling on deaf ears or ignored and the ignorance is feigned when her decisions or actions are questioned. She begs and whines for help...but only help with what she wants...open her soda...make her pancakes...cook the pasta. I dont know what to do. I'm of the opinion to stop helping her cuz enabling is not helping. But anything healthy I try to do fr her like proper food, low in refined sugars/carbs is rejected. How does one help uncooperative diabetes patients like this? Or do I just leave her to her devices? | |
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As a Type II diabetic myself, I can sure sympathize with you. | |
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I'm sure she is overwhelmed to some degree. She has had ample time to adjust however...at least 4-5 years. For a period she had largely eliminated surgery drinks and was doing crystal light knockoffs. But after a year or so, said fuck it and went back on the corn syrup train. And getting her to drink water is like th the 5 y/o and yuck medicine story. She gets kidney stones on the regs and is constantly dehydrated. She just WONT DRINK WATER and wines and moans and throws fits when u try to make her. Sometimes the only 'water' she gets in a given month is the saline they'll giver her in the E.R. I get her a glass of 'high-quality H²0' and it will sit untouched next to her collection of empty sunkist orange soda bottles. I can no longer imagine how many times I've told her frosted flaked are loadedwith sugar...but i knkw every time i tell her she actls like its news and that no ones ever told her...as if it even takes someone to tell u to know frosted flakes r loaded with sugar.
Idont think shes on a death mission...i think shes just that stubborn. She is VERY tired of being a 'diseased' person. She delt with crohns 's disease for 25+ years before the diabetes thing started. I constantly get the vibe from her that she 'pretentds' nothing is wrong with her and does the things she exactly shouldn't do to reinforce her 'fantasy' despite the real world ramifications she is simultaneously enduring. If she continues this route, she'll be dead or gravely Ill in under years. I'm not even going to discuss exercise. She barely gets out of thebed even tho she is capable of walking. I feel the notion that she thinks shell wake up one day feeling supurb and able to walk a mile....but untill then shes staying in bed...not realizeing that will never happen and that she has work herself up to that. Ive explained that to her to a point of blue faced nausea. She's ridden her self to bed with not much reason to be in bed 23.5 hours a day. [Edited 1/14/14 14:58pm] [Edited 1/14/14 15:00pm] | |
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wow! hmm...
a few years ago i had to totally change my diet -- was falling apart, headed toward diabetic and arthritic, and the diet stuff really works -- now i'm stronger than ever. I have yet to try an all raw diet, yet the presonal account i read in this book, Fresh: The Ultimate Live-Food Cookbook by Sergei Boutenko and Valya Boutenkowas really moving of how a whole family evaporated all their illnesses by totally changing their diet. Would reading something like that chapter our loud to her help? your library may have it, or i would gladly mail you a copy if you think it would help. i would guess theres probably hundreds of similar stories posted online.
as far as healthy sugars, fruits and dates are the only ones i touch these days. i used to be less appreciative of dates, so maybe they're an acquired taste after becoming a health freak, but have discovered a universe of date varieties that are way better than any memory of any candy, and they can be blended into a syrup or paste to use in any recipe in place of sugar. seriously dayri dates taste like caramels, and there are others that taste like marshmallows, little debbie cinnamon rolls, etc. let me know if i should send samples!
if you are into making desserts, might your library have some awesome raw or vegan dessert books to experiment with and make for her?
some things i really like to make, but probably sound gross to everyone else, including my former self, are carob pudding made with avocados and dates -- but seriously it tastes better than any chocolate pudding i've ever bought; also green smoothies -- 3 cups greens (start with lettuce, spinach, ease into kale, chard) and 1 or 2 pieces of fruit (or more at first) and liquefy with water in a blender. Seriously, it just tastes like fruit, and its a very gentle detox that one can just have there to sip on whenever a sugar craving rears its head. and its a fun way of eating water. The beauty detox foods by kimberly snyder was helpful with explaining this. i've heard wheatgrass is amazing and easy to grow yourself, but have yet to try it.
personally my first break with sugar was my exposure to macrobiotics. eating beans and rice and vegetables, which all have a neutral energy, almost every day really helped balance and eliminate my desire for sweets, which have a very yin energy.
flowing through the veins of the tree of life...purplemaplesyrup | |
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BobGeorge909 said: I'm sure she is overwhelmed to some degree. She has had ample time to adjust however...at least 4-5 years. For a period she had largely eliminated surgery drinks and was doing crystal light knockoffs. But after a year or so, said fuck it and went back on the corn syrup train. And getting her to drink water is like th the 5 y/o and yuck medicine story. She gets kidney stones on the regs and is constantly dehydrated. She just WONT DRINK WATER and wines and moans and throws fits when u try to make her. Sometimes the only 'water' she gets in a given month is the saline they'll giver her in the E.R. I get her a glass of 'high-quality H²0' and it will sit untouched next to her collection of empty sunkist orange soda bottles. I can no longer imagine how many times I've told her frosted flaked are loadedwith sugar...but i knkw every time i tell her she actls like its news and that no ones ever told her...as if it even takes someone to tell u to know frosted flakes r loaded with sugar. for you and your mom. :hug:Idont think shes on a death mission...i think shes just that stubborn. She is VERY tired of being a 'diseased' person. She delt with crohns 's disease for 25+ years before the diabetes thing started. I constantly get the vibe from her that she 'pretentds' nothing is wrong with her and does the things she exactly shouldn't do to reinforce her 'fantasy' despite the real world ramifications she is simultaneously enduring. If she continues this route, she'll be dead or gravely Ill in under years. I'm not even going to discuss exercise. She barely gets out of thebed even tho she is capable of walking. I feel the notion that she thinks shell wake up one day feeling supurb and able to walk a mile....but untill then shes staying in bed...not realizeing that will never happen and that she has work herself up to that. Ive explained that to her to a point of blue faced nausea. She's ridden her self to bed with not much reason to be in bed 23.5 hours a day. [Edited 1/14/14 14:58pm] [Edited 1/14/14 15:00pm] I agree with pretty much everything Rodeo said. | |
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Positive thoughts and prayers are with you and your mother. I can't say for certain what your mother may be thinking but as far as her eating schedule and how she might be feeling both mentally and emotionally, Rodeo pretty much hit the nail on the head.
My dad's behavior was kind of like how you describe your mother's. He would eat all kinds of bad food, smoke, drink alcohol excessively (no no for diabetics), and what not. I tried to get him to change his patterns but he never really did. He died at age 55. In part due to diabetes.
I said that to say this...
One last thing. Most hospitals, some church groups and the YWCA, have programs and support groups that help people with diabetes. Something like that would probably be good for your mother. Support from people with the same condition can make a big difference in a persons life.
You and your mother take care.
[Edited 1/16/14 16:17pm] Rest in Peace Bettie Boo. See u soon. | |
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just want to wish you and your mom success dealing with this | |
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Ex-Moderator | Sounds like she's seriously depressed and in some major denial. I'm really sorry. That's tough to deal with. |
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Everyone had some great advice and/or wise words.
I appreciate them all and also appreciate that my role in this is acknowledged. I've kinda been down that road, the well persons role/perspective. I have crohns disease as well and as an adult I had to look at and explore how my being ill affected my dad, who is a relatively healthy person. Its kinda like the alanon thing. Mostly I'd like to thank y'all for some other perspectives you've prompted me to take. In situations like this its easy to get stuck with a 15° view when there's another 345° to taheba gander through. The replies have helped me start that...muchas gracias. And I'll try to keep my anger in check. The prednisone k take makes that difficult...but certainly do-able. I'll also utilize a couple "gooooos-fraba's™" :bighugeuncomfortablylonggrouphugwhereatleastonepersonsheadisinadvertantlyjammedinanarmpit: [Edited 1/15/14 10:59am] | |
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my only other idea was to design some kind of fun plan for her to try out and develop new habits for an agreed amount of time, after which she can decide if she feels the same and wants to continue her ollder habits. in most of what i've read, 3 is the magic number of weeks of practice for a new habit to take root and for new neurons to mature. some kind of fun, positive kickstart to engage her imagination for at least 21 days, maybe something you can participate in with her in solidarity. i can relate, my mom rarely listens to anything i tell her about. i Believe your Mom will heal soon! flowing through the veins of the tree of life...purplemaplesyrup | |
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it sounds like she is very depressed maybe? i'm praying for her and you. be kind, be a friend, not a bully. | |
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I wish YOU the best, as for your mom you cannot make her do or behave in her best interest, you just cannot do it -- let that go-- as hard as that is to do. People self destruct for many reasons and you can try to be the voice of reason but most time it doesn't work, there are so many factors that go into it.
I have a first cousin who has diabetes and has lost three of his toes on his left foot and his whole right foot was amputated because of his disregard to his diet. No one could make him see the dietary light NO ONE he simply gave up on himself and he is only 34 years old!
Don't beat yourself up do what you can, don't do what you cannot do, and forgive yourself for all the rest.
Bless you and your family | |
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Hi bobgeorge, I think this is 3rd time I'm mentioning this on the org, but I highly recommend the book "Difficult Conversations" by Douglas Stone, Bruce Patton and Sheila Heen, of the Harvard Negotiation Project. I had the good fortune to attend one of the Project's panel discussions with Fisher and Ury, and it is life changing. I think I mentioned it on a thread titled "dealing with not seeing your kid" and an imago thread about ethnic conflict in Asia. What I said there before was that Difficult cOnversations is like a manual, and very practical oriented (it's about getting results, from the same think tank as the book "Getting to Yes," written by lawyers and businessmen). It is not like the "self help" books that may have the same or similar title. I can't stand those self help books, they re annoying. If you invest a few weeks to really read and digest, and maybe practice, the techniques and exercises in the book, I think you can improve the situation with your mom. The book is not long, and the techniques are not hard - they are just counterintuitive. They are the opposite of what most people usually say and do, which makes relations between people bad/worse. So you have to be mindful of the advice, and careful to NOT speak and behave as you typically do but instead do as they outline in the book. If you don't have any time for the book, or doubt what I say, go straight to page 137-146 "do you have purposes that make sense?" and see if that doesn't help you already. There's also a sample conversation "before" and "after" scenario of a kid taking to diabetic mom about taking care of herself - exactly your problem! It's on page 164. The "Before" dialogue is the typical way we talk to our mom. The "after" dialogue shows how to talk when you shift your purpose to listening and understanding. Believe me, I have tried these techniques, even followed a script almost word for word, and the other person responded exactly like in the script! It works just like the book said it would! Yes, the book does talk about "forgiving yourself" and "your identity" and about emotions, but again, it's not like those annoying psychoanalyzing self-help books; it's put in the context of achieving RESULTS in your interactions with people. Wish you the best! | |
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I've tried suggesting, coaxing, bribing, and many other manipulations. I've tried blunt honesty... That's the best to draw u some tears out.
I've tried forcing her. She makes a good Ghandi and will outlast your starving her out. Today at the hospital, Doc told her to sit in a chair when she eats and not lay in bed to help with her nausea. Pretty simple basic stuff. Also she was in a surprisingly good mood until the doc showed up. Suddenly the owies, whimpers, and moans came out and a frown wiggled itself o to her face. Doc says this and that and leaves. Then she starts crying...literally crying...tears AND phelem....the whole deal. Dinner arrives...chicken breast, some bland looking Spanish rice and mixed veggie medly. Doesn't touch it AT ALL. Proceeds to tell us she can't eat it until the nurse feeds it to her chz that's what the doctor ordered. I wondered then if she was in the same room I was in when the doctor talked to us. But then, get this, she pushes the whole dinner tray aside and grabs the leftover angel food cake while she's laying in bed. I say she should eat some of the regular food before she eats dessert.... U know...like u do a five y/o...'cept I spoke like I was speaking to an adult. She ignores me and proceeds to grab a utensil when pops says she should sit up and eat like the doctor said. Rolls her eyes and he repeats himself louder and she moves like 3 inches. He has to advise her to make it so the bed isn't flat and she caves and adjusts the bed some...not appropriately... but hey', its progress. Insists again after I suggest the regular food and she reguses because the nurse isn't here to feed it to her. Mind you...this is a woman FULLY capable of manipulating a fork and knife...and yes even a spoon. She is entirely capable of feeding herself. She pulled this 'feeding' shit out of the THINNEST of air. This is ALSO a woman who got called on some of her illogically deceptive and childishly evasive responses to a line of questioning by this doctor who didn't give an order to be fed, but to sit up straight, preferrably in a chair when she ate. This is the kind of bullshit I gotta deal with. A woman who fights EVRY STEP YOU TAKE to help her. U think this woman is gonna eat dishes I prepare and save for her if it isn't what she wants? Then she cries that no ...wait..literally cries that no one helps her when you stop doing things that aren't good for her...which are....grabbing her a coca cola...or....ummmm...making her a stack of pancakes to drip syrup on. A woman who's doc just told her that her kidneys and lost function for a period due to refusing water but accepting coke. A woman who was just told that her surgery incision/now wound isn't healing cuz of her lack of nutrition...is ignoring nutrition and reclining in bed eating angel food cake. She would laugh at healthy dishes prepared and saved for her...then cry about being sick and not getting better. She very depressed but expressing her depression atypically. She usually more classicsly depressed. I can't help her anymore but I also can't listen to all her crying, whining and sniveling aymore. I need to increase and better control my boundaries with her. Not shut her out...but my interactions with her will be minimized. Not punitively...but so as not to enable her death-wish-ish behavior. [Edited 1/21/14 15:54pm] | |
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::makes note of the book:: thanks! flowing through the veins of the tree of life...purplemaplesyrup | |
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I wanna thank everyone for their input again. I also want to acknowledge that I've party used this as an avenue to rant in and that I've ranted A LOT. While rants and getting stuff off your chest helps...it probably doesn't help as much as heeding some of this advice to a greater degree...which I am trying. | |
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~~~~~ Oh that voice...incredible....there should be a musical instrument called George Michael... ~~~~~ | |
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Shyra said:
She does. She always eats in bed. Doc was telling her it was because of that and it'll cut back on the nausea as well, if not eliminate it. She plays the sympathy card WAAAAY too often. Lol...she tried to morph the nurses suggestion of a meal replacing smoothie into a strawberry shake from MacDonald's. We have obscene amounts of expired six PACs of Boost that she won't drink cuz it taste nadyy. I try to tell he it ain't for the taste...its cuz u won't eat....it all goes in one ear and out the other. She only does what she wants and then complains about the outcome. If she could only meet her docs HALF way...she would be so much healthier. She wants a pill to cure everything and won't put in any work. She wants to be babied...and homie don't play that. | |
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