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Thread started 06/20/11 4:48pm

JerseyKRS

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PunkMistress could use some help, and you could use some sweets!

PunkMistress is asking for help from our group of online friends and family. For those that do not know, Erin has a rare genetic disorder named Ehlers Danlos Syndrome.

Ehlers Danlos Syndrome is a connective tissue disorder. In short, her body does not produce collagen effectively. This in turn creates a number of health problems, the most prominent one being chronic fatigue and pain. There is no cure.

As the effects of her disorder increase, we have struggled to accept the fact that she needs some mobility assistance. Moving around is a tremendous drain on her already limited energy and mobility and frequently the only reason she can not continue to perform normal everyday tasks like shopping, working and cooking. A manual wheelchair requires to much exertion on her arms and cardiovascular system to be an option.

She has set up a donation page to assist us in raising the funds needed to purchase a power wheelchair. We are a family of 6 and we all know how willing health insurance is to provide actual help to those in need. Purchasing this will provide her with the mobility she needs to continue being the funny, strong and positive wife, mother, sister, daughter, friend, etc. she is to everyone in her life. No amount is too little.

She's even promised to send baked treats to those that donate $25 or more!

Do something good and it will come back to you in the future! smile

Erin Needs a New Ride!!!

[Edited 6/21/11 18:18pm]

[Edited 6/25/11 10:38am]

[Edited 6/25/11 10:39am]



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Reply #1 posted 06/20/11 4:53pm

Lammastide

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hmmm No Paypal, eh?

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #2 posted 06/20/11 5:04pm

Fauxie

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Lammastide said:

hmmm No Paypal, eh?

Same here, I was hoping it offered Paypal. I'm skint in my UK bank account right now. lol I'll just have to wait to get some funds in there. I love me some Erin mushy

MY COUSIN WORKS IN A PHARMACY AND SHE SAID THEY ENEMA'D PRANCE INTO OBLIVION WITH FENTONILS!!
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Reply #3 posted 06/20/11 5:14pm

JerseyKRS

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for those that want to use paypal, my personal paypal id is jerseykrs@gmail.com.

If it is easier for you to give that way, go ahead and send it to that address. What I will do after that is use my Paypal account's debit card to make the donation to the page in your name. I'll sign it as you and even post a little message if you include it.

Thank you again to all of our friends. hug



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Reply #4 posted 06/20/11 5:30pm

Lammastide

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Sticky! woot!

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #5 posted 06/20/11 5:51pm

JerseyKRS

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Thank you Fauxie and Lammastide!!!!



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Reply #6 posted 06/20/11 6:17pm

Fauxie

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You're both welcome. I only wish we could help more. Maybe later on. smile We've just had some calamitous misfortunes lately all at the same time so we're poor as hell. lol

This is cool. Hopefully it'll be up to over $1000 soon. woot!

MY COUSIN WORKS IN A PHARMACY AND SHE SAID THEY ENEMA'D PRANCE INTO OBLIVION WITH FENTONILS!!
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Reply #7 posted 06/20/11 6:22pm

Lammastide

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You guys are welcome, Jersey.

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #8 posted 06/20/11 7:22pm

Machaela

Lammastide said:

Sticky! woot!

Exactly !

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Reply #9 posted 06/20/11 7:27pm

luv4u

Moderator

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moderator

Temp sticky
canada

Ohh purple joy oh purple bliss oh purple rapture!
REAL MUSIC by REAL MUSICIANS - Prince
"I kind of wish there was a reason for Prince to make the site crash more" ~~ Ben
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Reply #10 posted 06/20/11 10:59pm

veronikka

Hopefully I can help out with a little something later on in the week hug

Rhythm floods my heart♥The melody it feeds my soul
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Reply #11 posted 06/21/11 1:08am

Shanti0608

Done. Check your facebook inbox, I left you both a message.

No need to send baked goods. Imma get that shit in person!

biggrin

Love you guys!

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Reply #12 posted 06/21/11 2:26am

Serious

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hug Wishing you guys all the best, you are a true inspiration rose. Money is really tight right now, I just had to pay 750 UDS to get my heating system repaired otherwise the government would have not allowed me to use it anymore sigh. And had to lend my boyfriend money to pay for the lawyer we had in the custody case for his children and we had to stop it just now because we cannot afford to pay for it to go further even though that could mean he might not see his children now for a long. And I hope I can fly to see my bf again in the fall, I did not see him since December. But I will calculate what I can do maybe a little later. And I still hope somebody who will very likely read or hear about this will pay me back money he owes me that I would really need, although that probably won't happen cry.

[Edited 6/21/11 2:44am]

With a very special thank you to Tina: Is hammer already absolute, how much some people verändern...ICH hope is never so I will be! And if, then I hope that I would then have wen in my environment who joins me in the A....
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Reply #13 posted 06/21/11 3:42am

JerseyKRS

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thank you so much for your kind words everyone. We understand how money is tight with everyone, hell...that's why we're doing this! Please share the link with your friends, honestly every single dollar helps.


Everyone's generosity has brought us to nearly half our goal in one day. touched



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Reply #14 posted 06/21/11 5:41am

PurpleJedi

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hug

I shared it on my FB page.

You def can count on me for support...after the 1st of the month. (That f*cking mortage payment!)

peace!

By St. Boogar and all the saints at the backside door of Purgatory!
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Reply #15 posted 06/21/11 6:22am

Shorty

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done! wish I could donate more. smile

"not a fan" falloff yeah...ok
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Reply #16 posted 06/21/11 6:38am

Deadflow3r

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luv4u said:

Temp sticky

Hoperfully this thread can stay up until the first Friday of July or longer. I do not get my check until the 3rd of the month and I know that the last week of the month is difficult for people.

I hope people understand that for the price of a decent coffee drink, multiplied by by a few hundred orgers, PunkMistress' life will be rolling in the right direction.

Thanks Jerseykrs for being brave enough to ask for help, that, sometimes, is the hardest part:-?

There came a time when the risk of remaining tight in the bud was more painful than the risk it took to blossom. Anais Nin.
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Reply #17 posted 06/21/11 7:01am

JerseyKRS

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Deadflow3r said:

luv4u said:

Temp sticky

Hoperfully this thread can stay up until the first Friday of July or longer. I do not get my check until the 3rd of the month and I know that the last week of the month is difficult for people.

I hope people understand that for the price of a decent coffee drink, multiplied by by a few hundred orgers, PunkMistress' life will be rolling in the right direction.

Thanks Jerseykrs for being brave enough to ask for help, that, sometimes, is the hardest part:-?

touched thank you sweetie.

She didn't want to post it here, because she knows how hard this forum can be on people at times and most everyone is on facebook now. But, this is our old high school kind of, so how could I not?

In fact, to thank everyone that donates and shares the link, we're going to put everyone's names on the wheelchair itself, to always remind us of our friends, to always give, and to allow us to tell the story when people ask "what are all those names on your wheelchair?!?"



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Reply #18 posted 06/21/11 7:13am

Shorty

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JerseyKRS said:

Deadflow3r said:

Hoperfully this thread can stay up until the first Friday of July or longer. I do not get my check until the 3rd of the month and I know that the last week of the month is difficult for people.

I hope people understand that for the price of a decent coffee drink, multiplied by by a few hundred orgers, PunkMistress' life will be rolling in the right direction.

Thanks Jerseykrs for being brave enough to ask for help, that, sometimes, is the hardest part:-?

touched thank you sweetie.

She didn't want to post it here, because she knows how hard this forum can be on people at times and most everyone is on facebook now. But, this is our old high school kind of, so how could I not?

In fact, to thank everyone that donates and shares the link, we're going to put everyone's names on the wheelchair itself, to always remind us of our friends, to always give, and to allow us to tell the story when people ask "what are all those names on your wheelchair?!?"

all the purple people in purple glitter pen! falloff

"not a fan" falloff yeah...ok
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Reply #19 posted 06/21/11 7:55am

BklynBabe

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I used to give dollars to crack hoes and homeless alcoholics. Of course I will help, in fact I just set up direct deposit with my job so now I know I am getting paid!! I'm sure by July you will have it. You are good folk with good karma!! nod

And I have posted on my FB and will be badgering my friends!!!

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Reply #20 posted 06/21/11 9:24am

veronikka

so good to see you're almost at your goal! excited

Rhythm floods my heart♥The melody it feeds my soul
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Reply #21 posted 06/21/11 10:34am

Shyra

I'm in for you, Chris & Erin. You two are an inspiration and help me believe there are still happy marriages. I'm a little short right now, but if you can wait until July 1, I'll have at least $25 or more for you. Mods, keep the sticky up until the first at least!

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Reply #22 posted 06/21/11 12:03pm

JerseyKRS

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we are both astounded and humbled by the response we have received from everyone, including friends and family of friends who are strangers to us.

bow

We have exceeded our original goal of $1700. woot!

Erin has bumped the goal up to $2000 to allow us to buy a newer chair (we are buying used as new ones run into the tens of thousands of dollars, wtf) and pay for the fitting of it and the fee for the website. We truly never thought we would get this much help and originally just wanted to ask for the bare minimum to purchase the cheapest chair that includes the options she needs.

I never knew people could be so giving. touched

there is no way for us to ever say THANK YOU enough for what you have done. But I will try.

thank you.



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Reply #23 posted 06/21/11 1:06pm

Cerebus

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Its those bikini pictures you posted. Just think how much you would have received if you'd posted those "other" pics.

lol I kid, of course. Sorry to hear the condition is worsening, really chuffed to read that people were so willing to help you out so quickly.

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Reply #24 posted 06/21/11 1:10pm

johnart

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I've set up a Give Back shop and am adding items to hopefully help raise some dollas.

http://gascot.blogspot.co...-back.html

http://www.etsy.com/shop/...id=7570205

all proceeds from anything purchased from the shop I will donate to your goal.

[Edited 6/21/11 13:11pm]

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Reply #25 posted 06/21/11 1:17pm

Shawnt27

The org can be wonderful sometimes touched

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Reply #26 posted 06/21/11 1:41pm

Lammastide

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JerseyKRS said:

we are both astounded and humbled by the response we have received from everyone, including friends and family of friends who are strangers to us.

bow

We have exceeded our original goal of $1700. woot!

Erin has bumped the goal up to $2000 to allow us to buy a newer chair (we are buying used as new ones run into the tens of thousands of dollars, wtf) and pay for the fitting of it and the fee for the website. We truly never thought we would get this much help and originally just wanted to ask for the bare minimum to purchase the cheapest chair that includes the options she needs.

I never knew people could be so giving. touched

there is no way for us to ever say THANK YOU enough for what you have done. But I will try.

thank you.

Sweet! Get the PORSCHE!! nod

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #27 posted 06/21/11 2:40pm

kimrachell

dancing jig dancing jig rose
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Reply #28 posted 06/21/11 3:02pm

tinaz

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It says the page doesnt exist? sad

~~~~~ Oh that voice...incredible....there should be a musical instrument called George Michael... ~~~~~
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Reply #29 posted 06/21/11 3:13pm

JerseyKRS

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tinaz said:

It says the page doesnt exist? sad

Erin is fixing it now. smile



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