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Reply #90 posted 06/23/11 2:19pm

JerseyKRS

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sorry.

[Edited 6/23/11 14:20pm]



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Reply #91 posted 06/23/11 2:38pm

slimhustle

I would be honored to join in on this.

I'm also going to double my intended donation. Just to spite the anonymous reporting move.

biggrin

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Reply #92 posted 06/23/11 2:39pm

INSATIABLE

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JerseyKRS said:

sorry.

[Edited 6/23/11 14:20pm]

ooh. I bet this was good, too.

Oh shit, my hat done fell off
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Reply #93 posted 06/23/11 3:08pm

Cerebus

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INSATIABLE said:

JerseyKRS said:

sorry.

[Edited 6/23/11 14:20pm]

ooh. I bet this was good, too.

lol Makes me wonder.

Good news about the page going back up, though. highfive

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Reply #94 posted 06/23/11 3:43pm

MoniGram

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I am happy to see the page is going back up. woot!

Proud Memaw to Seyhan Olivia Christine ,Zoey Cirilo Jaylee & Ellie Abigail Lillian mushy
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Reply #95 posted 06/23/11 4:52pm

PunkMistress

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I've been using a (borrowed) wheelchair for a year now. The snorkeling picture wouldn't have been possible without Christopher pushing me everywhere. He has a bad back. He also can't come to work with me to push me around. This is part of why I need a motorized chair.

It's what you make it.
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Reply #96 posted 06/23/11 11:43pm

blueblossom

hello you wonderful people.... I must admit when I was reading through the posts I thought what a marvellous bunch of people here in the org and so supportive.

To the douchebag who said it was fraud - I hope your conscience is giving you hell and now you know what a fekking moron you really are!

Erin and Chris I will donate in two weeks time - love you both - hugs and kisses from across the pond xxx

"I may not agree with what you say but I'll fight for your right to say it"
Be proud of who you are not what they want you to be...
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Reply #97 posted 06/24/11 12:43pm

Adisa

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Erin hug

Org family grouphug

I'm sick and tired of the Prince fans being sick and tired of the Prince fans that are sick and tired!
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Reply #98 posted 06/24/11 5:55pm

ZombieKitten

Once you get your refunds from GF, pay it into jerseys paypal instead motherfuckers!!! biggrin
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Reply #99 posted 06/24/11 6:17pm

formallypickle
s

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what is your address? i rather send through mail if that's ok

i wish i was a rich whore like kim kardashian i would send the whole chair in the mail lol

but that person was wrong to report you without getting the facts

if they felt like it was a faud they should came to you upfront and just asked for solid proof

[Edited 6/24/11 18:29pm]

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Reply #100 posted 06/25/11 12:40am

MoonSongs

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I would like to send through paypal if possible. Is that still the place ~ jerseykrs@gmail.com?

Music is the language of the spirit. It opens the secret of life bringing peace, abolishing strife. --Kahlil Gibran
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Reply #101 posted 06/25/11 8:08am

JerseyKRS

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thank you so much to everyone that still wants to help. This page will either be back up on Monday or we will use the paypal page instead.

If you could just hold on a few more days, we'll have it sorted out.

Special shout out to the idiot(s) that introduced the chaos, you didn't accomplish anything. Erin will still get her chair, whether you think she needs it or not. nana

for those that would rather not give GiveForward 7% of their donation, my paypal address is my handle.

BTW, just so I do this by the book....100% of ALL money donated will be used to purchase my wife a power wheelchair. Whether funded by the website or by direct contributions to our paypal account, ALL the funds will be used for that and proof will be provided once that is done. We'll also be sending out baked treats after July 31st for those that want them (shit, I'll eat them if you don't!!!) and you will be forever recognized as a doner on the chair itself!

woot!

Not including the ugly coward(s), everyone here deserves an "Excellent Human Being" award.



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Reply #102 posted 06/25/11 8:17am

blueblossom

JerseyKRS said:

thank you so much to everyone that still wants to help. This page will either be back up on Monday or we will use the paypal page instead.

If you could just hold on a few more days, we'll have it sorted out.

Special shout out to the idiot(s) that introduced the chaos, you didn't accomplish anything. Erin will still get her chair, whether you think she needs it or not. nana

for those that would rather not give GiveForward 7% of their donation, my paypal address is my handle.

BTW, just so I do this by the book....100% of ALL money donated will be used to purchase my wife a power wheelchair. Whether funded by the website or by direct contributions to our paypal account, ALL the funds will be used for that and proof will be provided once that is done. We'll also be sending out baked treats after July 31st for those that want them (shit, I'll eat them if you don't!!!) and you will be forever recognized as a doner on the chair itself!

woot!

Not including the ugly coward(s), everyone here deserves an "Excellent Human Being" award.

"Excellent Human Being" I want this on my wall in a frame!! lol

"I may not agree with what you say but I'll fight for your right to say it"
Be proud of who you are not what they want you to be...
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Reply #103 posted 06/25/11 8:36am

PunkMistress

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JerseyKRS said:

thank you so much to everyone that still wants to help. This page will either be back up on Monday or we will use the paypal page instead.

If you could just hold on a few more days, we'll have it sorted out.

Special shout out to the idiot(s) that introduced the chaos, you didn't accomplish anything. Erin will still get her chair, whether you think she needs it or not. nana

for those that would rather not give GiveForward 7% of their donation, my paypal address is my handle.

BTW, just so I do this by the book....100% of ALL money donated will be used to purchase my wife a power wheelchair. Whether funded by the website or by direct contributions to our paypal account, ALL the funds will be used for that and proof will be provided once that is done. We'll also be sending out baked treats after July 31st for those that want them (shit, I'll eat them if you don't!!!) and you will be forever recognized as a doner on the chair itself!

woot!

Not including the ugly coward(s), everyone here deserves an "Excellent Human Being" award.

yeahthat

It's what you make it.
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Reply #104 posted 06/25/11 9:52am

Shanti0608

Or everyone can use this:

http://www.bennettsgb.com/

[Edited 6/25/11 9:52am]

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Reply #105 posted 06/25/11 10:14am

PunkMistress

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Shanti0608 said:

Or everyone can use this:

http://www.bennettsgb.com/

[Edited 6/25/11 9:52am]

hug

The Bennetts already had a permanent place in the DiVic Hall of Awesomeness, but this qualifies you for a whole room!

I'll have Jersey edit the link in the OP.

It's what you make it.
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Reply #106 posted 06/25/11 10:18am

Shanti0608

PunkMistress said:

Shanti0608 said:

Or everyone can use this:

http://www.bennettsgb.com/

[Edited 6/25/11 9:52am]

hug

The Bennetts already had a permanent place in the DiVic Hall of Awesomeness, but this qualifies you for a whole room!

I'll have Jersey edit the link in the OP.

It was all Rhonda and Phil. Love to you guys. rose

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Reply #107 posted 06/25/11 10:33am

ufoclub

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Is it going back up?

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Reply #108 posted 06/25/11 10:35am

PunkMistress

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It's been moved over to

http://www.bennettsgb.com/

It's what you make it.
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Reply #109 posted 06/25/11 10:39am

ufoclub

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PunkMistress said:

It's been moved over to

http://www.bennettsgb.com/

What happened with the validation and the site owners? What happened to the donations made on the other site?

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Reply #110 posted 06/25/11 11:05am

PunkMistress

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The site owners continued to behave strangely. Nothing seemed to be enough to convince them that I was not posting a fraudulent cause, even after receiving my medical records, info on EDS from the National Institutes of Health, and TWO of my doctors offices tried to contact them! Some friends have speculated that since my fundraiser met its goal in less than two days, GF wanted to keep that money in some sort of interest-bearing account for longer, hence the poorly-explained delays.

Because of the way they have handled this, we have asked GiveForward to refund every penny to every donor, and I have sent a message to every donor through GiveForward letting them know that their money will be refunded, with a link to the new page if they choose to still donate after their refund from GF.

Once people's donations are refunded from GiveForward, if they would still like to help us buy a power wheelchair, they can go to http://www.bennettsgb.com/ and that donation goes directly to us. No 7% cut going to GiveForward or anyone else.

I thank everyone for their generosity, patience, love and support.

grouphug

It's what you make it.
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Reply #111 posted 06/25/11 12:17pm

veronikka

Glad you found another way to get your donations hug

Rhythm floods my heart♥The melody it feeds my soul
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Reply #112 posted 06/25/11 12:57pm

formallypickle
s

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just donated hope you can get a chair with a built in dvd player lol

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Reply #113 posted 06/25/11 1:51pm

PunkMistress

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Serious said:

hug Wishing you guys all the best, you are a true inspiration rose. Money is really tight right now, I just had to pay 750 UDS to get my heating system repaired otherwise the government would have not allowed me to use it anymore sigh. And had to lend my boyfriend money to pay for the lawyer we had in the custody case for his children and we had to stop it just now because we cannot afford to pay for it to go further even though that could mean he might not see his children now for a long. And I hope I can fly to see my bf again in the fall, I did not see him since December. But I will calculate what I can do maybe a little later. And I still hope somebody who will very likely read or hear about this will pay me back money he owes me that I would really need, although that probably won't happen cry.

[Edited 6/21/11 2:44am]

I hope the bastard who owes you money gets visited by three ghosts who will scare his ass into paying you back!!!

demon demon demon

It's what you make it.
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Reply #114 posted 06/25/11 2:16pm

PunkMistress

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Lammastide said:

confuse

So... with the page down, did you guys lose the donations and have to begin again?

We have now "lost" all of the donations that were given through GiveForward. Over $2,000 that was raised in less than two days.

I have asked for refunds to be processed no later than Monday morning. If after being put through this people still wish to donate (and many already have) I am doubly inspired and thankful.

We have already raised over $400 in donations to our Paypal, directly and through the www.bennettsgb.com site! mushy

This power chair is going to mean so much - it will literally change my life. As I get through my days with more independence, comfort, energy and productivity, I will never forget that it's happening through the love and selflessness of lots of everyday people.

It's what you make it.
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Reply #115 posted 06/25/11 4:00pm

thebumpsquad

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Excuse my stupidity, but is it now the bennetts address thing donations go to? Or the Paypal address?

I don't know you, but I've been a follower of you and JerseyKRS's posts since I saw those Soprano-style family photos at the beach a few years back. love

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Reply #116 posted 06/25/11 4:10pm

kimrachell

PunkMistress said:

Serious said:

hug Wishing you guys all the best, you are a true inspiration rose. Money is really tight right now, I just had to pay 750 UDS to get my heating system repaired otherwise the government would have not allowed me to use it anymore sigh. And had to lend my boyfriend money to pay for the lawyer we had in the custody case for his children and we had to stop it just now because we cannot afford to pay for it to go further even though that could mean he might not see his children now for a long. And I hope I can fly to see my bf again in the fall, I did not see him since December. But I will calculate what I can do maybe a little later. And I still hope somebody who will very likely read or hear about this will pay me back money he owes me that I would really need, although that probably won't happen cry.

[Edited 6/21/11 2:44am]

I hope the bastard who owes you money gets visited by three ghosts who will scare his ass into paying you back!!!

demon demon demon

me too! hug serious is a really sweet person and deserves to be treated well. i'm glad to be able to call her my friend.rose

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Reply #117 posted 06/25/11 4:45pm

PEJ

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I love you guys. Hit me up on facebook and please let me know how I can donate. I was just poppin by the org to see if I had a birthday thread lol and saw this sticky

To Sir, with Love
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Reply #118 posted 06/25/11 5:26pm

CHIC0

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prayhearthug

heart
LOVE
♪♫♪♫

♣¤═══¤۩۞۩ஜ۩ஜ۩۞۩¤═══¤♣
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Reply #119 posted 06/25/11 6:30pm

PunkMistress

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Here is the update I posted on FB.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Ethan from GiveForward has promised to close the fundraiser and refund all donations on Monday. If GiveForward.com does not refund your donation by the end of Monday, June 27, PLEASE let me know.

Here is the sequence of events, since it's all gotten very confusing. Answers to your questions should be here, but as always post any questions in the comments and I'll reply.

On Monday, June 20, I opened a fundraising page with GiveForward.com. The purpose was to raise small donations toward purchasing me a power wheelchair so that I can continue to work despite the progression of my Ehlers Danlos Syndrome. The response was more than I ever could have imagined. Donations poured in by the hour, from friends old and new, from family near and far. By the following afternoon, we had exceeded our original goal of $1,700 for a used power wheelchair and raised over $2,000. It was one of the most incredibly humbling experiences of my life.

On Tuesday, June 21, my fundraiser was disabled and the webpage was removed for flags claiming my fundraiser is fraudulent and that I don't have a disability. These claims were clearly false and Ethan from GiveForward stated multiple times that he believed me but that they needed to "follow protocol" and "protect the donors." These two phrases were repeated dozens of times during my many phone conversations with him as I tried to get the fundraiser back up asap.

On Tuesday night we faxed medical records from the geneticist who diagnosed me with EDS in Boston in 1998, medical records from my primary care physician stating my diagnosis and discussing the medications I take for chronic pain and referrals to rheumatologists, and information on EDS from the National Institutes of Health, *including their recommendation for wheelchairs among other assistive therapies.*

This wasn't sufficient. The page stayed down.

At least a dozen donors emailed Ethan telling him that they know me personally and know my story is true, and THAT'S WHY THEY DONATED. They didn't need protecting, in other words. But every time I asked Ethan what the problem was, he kept saying he had to "protect the donors."

Donors' assurances weren't sufficient. He wanted to speak directly with my primary care doctor. I signed medical release forms and set up a time for him to speak with the doctor.

On Wednesday and Thursday Ethan played phone tag with my primary care doctor's office. During this time my fundraising page was still unavailable because of a false fraud claim against me, but donors' accounts were debited for the money. The donors they were protecting. Whose money they have no problem keeping in the meantime.

On Friday, I learned that my primary care doctor's nurse had called GiveForward but that nobody was available to take the call. I signed release forms for GiveForward to speak with my pain specialist's office instead, hoping they could get SOMEONE on the phone and end this craziness. The Physician's Assistant from my pain specialist's office spoke to Erica from GiveForward on Friday afternoon. Ethan said in his last email on Friday that the information from the PA "wasn't sufficient" and insisted on speaking directly with my primary care doctor.

He had plenty of evidence of my EDS including copies of my private medical records. He is frustratingly vague when I ask exactly what information he is looking for. He NEVER gave us a clear description of what information would be "sufficient." I can only surmise that it had something to do with my fundraiser meeting its goal so quickly. It was originally slated to end on July 31st. Could it be that GiveForward is stalling because they expected to keep that $2,000 in escrow for another month?

On Friday evening I told Ethan that it was becoming clear to me that there was nothing I could do to satisfy their curiosity, that their behavior went beyond "following protocol" as they kept saying, and that I didn't want him or his company receiving 7% of the generosity of my friends. He promised to close the fundraiser and refund all donations on Monday, June 27.

My friends Phil Bennett and Rhonda Rounds have offered to host the fundraiser on a private webpage, with the Donate button being directly linked to Chris's Paypal account. The funds are immediately accessible to us, and every single penny will be used toward a power wheelchair for me. The url is www.bennettsgb.com.

It's what you make it.
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