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Reply #30 posted 06/21/11 3:17pm

JerseyKRS

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just so everyone can see what we're after, here it is:

HOT WHEELS

It's a $33,000 chair brand new, eek

If we don't get to the $3000 (which we are not asking for), it says make an offer. We plan on showing the seller our page and how everyone helped us and maybe they'll be so kind to let it go for what we can offer.



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Reply #31 posted 06/21/11 3:19pm

JerseyKRS

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tinaz said:

It says the page doesnt exist? sad

well now. It seems they've been getting multiple complaints that the page is fraudulent, so they took it down.


Way to go prince.org anonymous douchebag. You know who you are, whoever you are. finger



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Reply #32 posted 06/21/11 3:33pm

JerseyKRS

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So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave



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Reply #33 posted 06/21/11 3:39pm

Militant

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moderator

JerseyKRS said:

So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave

Whoa... someone from here did that? Y'all two got some haters on here like THAT? Damn.

Fuck you, anonymous hater person. That shit is cold.

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Reply #34 posted 06/21/11 3:43pm

veronikka

Can't believe someone on here did this to you guys cry

Rhythm floods my heart♥The melody it feeds my soul
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Reply #35 posted 06/21/11 3:49pm

kimrachell

mad
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Reply #36 posted 06/21/11 3:52pm

PunkMistress

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johnart said:

I've set up a Give Back shop and am adding items to hopefully help raise some dollas.

http://gascot.blogspot.co...-back.html

http://www.etsy.com/shop/...id=7570205

all proceeds from anything purchased from the shop I will donate to your goal.

[Edited 6/21/11 13:11pm]

eek

cry

Thank you so much.

It's what you make it.
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Reply #37 posted 06/21/11 3:55pm

PurpleJedi

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Militant said:

JerseyKRS said:

So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave

Whoa... someone from here did that? Y'all two got some haters on here like THAT? Damn.

Fuck you, anonymous hater person. That shit is cold.

disbelief

I'm speechless.

They've been nothing BUT honest as to why they need this. It sickens me to think of such cowardice and malice.

By St. Boogar and all the saints at the backside door of Purgatory!
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Reply #38 posted 06/21/11 3:55pm

PunkMistress

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I am so unspeakably humbled and grateful for the amazing support that has rolled in. People have been giving beyond our wildest dreams - many of them friends from this website, and even strangers who read my story on Org-friends' FB pages.

I'm not certain who flagged my fundraiser and claimed it was a "fraud," and not positive it was someone from here. We have reason to believe it was, but what I want to stress most of all is the extreme generosity, support and huge tidal wave of love that I have experienced from prince.org friends and family.

grouphug

Even before I ever considered raising a penny, before I ever thought I'd be in a wheelchair at all, the prince.org community has supported me in ways I could never repay.

I am so, so thankful.

rose

This minor issue will be cleared up soon and the page will be back up tomorrow. I love you guys!

It's what you make it.
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Reply #39 posted 06/21/11 4:02pm

INSATIABLE

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I have access to an incredible array of surgeon-grade scalpels. biggrin

bored2

Oh shit, my hat done fell off
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Reply #40 posted 06/21/11 4:02pm

PunkMistress

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drool

It's what you make it.
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Reply #41 posted 06/21/11 4:15pm

Lammastide

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confuse

So... with the page down, did you guys lose the donations and have to begin again?

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #42 posted 06/21/11 4:33pm

bboy87

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PunkMistress said:

I am so unspeakably humbled and grateful for the amazing support that has rolled in. People have been giving beyond our wildest dreams - many of them friends from this website, and even strangers who read my story on Org-friends' FB pages.

I'm not certain who flagged my fundraiser and claimed it was a "fraud," and not positive it was someone from here. We have reason to believe it was, but what I want to stress most of all is the extreme generosity, support and huge tidal wave of love that I have experienced from prince.org friends and family.

grouphug

Even before I ever considered raising a penny, before I ever thought I'd be in a wheelchair at all, the prince.org community has supported me in ways I could never repay.

I am so, so thankful.

rose

This minor issue will be cleared up soon and the page will be back up tomorrow. I love you guys!

An orger?

Hmmm, I was thinking the same thing.... mad

"We may deify or demonize them but not ignore them. And we call them genius, because they are the people who change the world."
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Reply #43 posted 06/21/11 4:45pm

Vendetta1

JerseyKRS said:

So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave

What a serious asshole move. Dumb shit like this is why I don't/can't post personal stuff here anymore.

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Reply #44 posted 06/21/11 4:51pm

JerseyKRS

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Lammastide said:

confuse

So... with the page down, did you guys lose the donations and have to begin again?

no, it is temporarily suspended until our physician confirms, over the phone, to the website that it is not fraudelent.

Let me be clear, we don't know who it was or from where. What we DO KNOW is that two separate calls were actually placed to GiveForward.com to inform them that Erin DiViccaro's request for money for a wheelchair due to her illness was FRAUDELENT. So, because they need to verify this, it is suspended until they do. I had to scan and send medical records to them, also.

rolleyes

here is the email I just fired off.

If the guily party would like a copy of the PDF also, let me know and I'll be sure to send it to you along with a photo of our asses so you can kiss it. wave

Dear Ethan,

Thank you so much for being helpful with us. I apologize if I or my wife were gruff as it was not intended to be taken out on you or the wonderful website and service you provide. Before I continue further, let me state clearly that this is not fraudulent and my wife’s disease is real. 100% of the funds provided by OUR FAMILY AND FRIENDS ONLY (as they are the only people we have asked to donate) will be used to purchase a used power wheelchair. Proof of that can be provided after we make our purchase, which will be very soon after the funds are released to us.

Per our conversation, I am attaching a PDF with these following pages:

1 – This is the original diagnosis from XXXXXXX, MD at Harvard Vanguard Medical Associates in Boston, MA. It is dated September 29th, 1998. Because Ehlers Danlos Syndrome (EDS) is caused by a genetic mutation in certain enzymes and fibrous proteins in the body, the only way to be given a true diagnosis is by performing collagen typing and gene mutation testing through DNA sequencing. This is why the genetics department handles it. As you can see, she was diagnosed with EDS Type III. This is a hereditary disease for which there is NO CURE.

2 – Progress notes from our Primary Care Physician (PCP), XXXXXX, MD at Oak View Family Care in Trinity, FL. Dr. XXXX is our family physician. Dr. XXXX is familiar with Erin’s disease and treating it as much as our PCP needs to. Erin also has a pain management doctor she sees less frequently, but is just as important. Occupational and physical therapy are recommended, but too expensive for us to see on a regular basis.

3 – An excerpt from the National Center of Biotechnology Information’s page for Ehlers-Danlos Syndrome, Hypermobility Type. In the summary, under management, you can clearly see a recommendation for wheelchair assistance. This is just one of many recommendations we can provide to substantiate Erin’s need for this. A quick google search of “Ehlers Danlos Syndrome wheelchair” can provide even more proof if you wish to see for yourself.

In summary, these scans should provide you with:

1 – proof that Erin DiViccaro has Ehlers-Danlos Syndrome Type III Hypermobility

2 – proof that XXXXX, MD acknowledges and agrees with this diagnosis

3 – proof that this condition warrants the need for wheelchair assistance

Should you need anything else, please let us know. We would like to move past this quickly and get back to celebrating the generosity and compassion of our personal group of family and friends, all of which are very sad to hear what is presently going on because of some misguided and misinformed individuals that have never taken the time to ask us about their doubts.

Thank you again, Ethan.

Sincerely,

Christopher and Erin DiViccaro



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Reply #45 posted 06/21/11 4:59pm

INSATIABLE

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thumbs up! Nice. Anything we can do to help, please don't hesitate.

And as for the two sad sacks who caused this unnecessary garbage, are you happy? Go shove it up your ass.

Jana

Oh shit, my hat done fell off
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Reply #46 posted 06/21/11 5:02pm

Vendetta1

Worse comes to worse, we can see the funds to you guys directly. So, whoever this asshole or assholes are, they have not stopped a damn thing. The fundraiser was going to be up another month anyhow.

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Reply #47 posted 06/21/11 5:04pm

JerseyKRS

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Vendetta1 said:

Worse comes to worse, we can see the funds to you guys directly. So, whoever this asshole or assholes are, they have not stopped a damn thing. The fundraiser was going to be up another month anyhow.

Erin was very worried about this herself. I don't see how they can pull it, especially after we provide them with what they ask for to validate it.

If they do for some reason, everyone's donations will be credited back to you and I guess we'll use the paypal way.

Still, though. rolleyes disbelief rolleyes



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Reply #48 posted 06/21/11 5:57pm

Cerebus

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Not that I feel like I need to defend myself (because I don't, and anybody here who knows me even a little bit knows that shit ain't my style), but since I'm the one that made the bikini picture comment I feel like I need to make it as clear as possible that I had nothing to do with that complaint.

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

So, as usual, the org quickly reminds me of everything I hate about human beings.

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Reply #49 posted 06/21/11 6:16pm

JerseyKRS

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Cerebus said:

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

lol, this is 100% true nod thumbs up!

I knew that bikini picture was going to be trouble. rolleyes



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Reply #50 posted 06/21/11 6:21pm

PunkMistress

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Cerebus said:

Not that I feel like I need to defend myself (because I don't, and anybody here who knows me even a little bit knows that shit ain't my style), but since I'm the one that made the bikini picture comment I feel like I need to make it as clear as possible that I had nothing to do with that complaint.

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

So, as usual, the org quickly reminds me of everything I hate about human beings.

falloff

You have no idea.

So many of our conversations take place with Chris sitting on the edge of the tub while I take the gravity off my joints and lungs, he has started calling me Abe from Hellboy.

It's what you make it.
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Reply #51 posted 06/21/11 6:52pm

jone70

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JerseyKRS said:

Cerebus said:

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

lol, this is 100% true nod thumbs up!

I knew that bikini picture was going to be trouble. rolleyes

Too bad whomever didn't also notice that you posted a photo of her in a wheelchair prior to that. neutral I hope you can get everything straightened out.

The check. The string he dropped. The Mona Lisa. The musical notes taken out of a hat. The glass. The toy shotgun painting. The things he found. Therefore, everything seen–every object, that is, plus the process of looking at it–is a Duchamp.
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Reply #52 posted 06/21/11 7:13pm

Efan

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Oh, man. Whoever did that should be ashamed. Absolutely ashamed.

Hope everything's worked out soon!

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Reply #53 posted 06/21/11 7:46pm

johnart

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JerseyKRS said:

So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave

I'm not usually a violent person but it takes a SPECIAL kind of shit-stained unhappy asswipe to do this...breathin'...breathin...lawd

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Reply #54 posted 06/21/11 7:50pm

Cerebus

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johnart said:

JerseyKRS said:

So, you've taken the time to call the website and complain that you've seen pictures of Erin swimming and walking and that makes you a physician I guess, right?

Typical coward move, too. Don't talk to us directly, act a fool instead.

finger

Well, unfortunately for you, my wife's medical records will trump your judgement on her disability.

Have a worse life, asshole! wave

I'm not usually a violent person but it takes a SPECIAL kind of shit-stained unhappy asswipe to do this...breathin'...breathin...lawd

I threatened violence... but then I thought better of it and deleted that part of my comment. lol

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Reply #55 posted 06/21/11 7:52pm

johnart

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Cerebus said:

johnart said:

I'm not usually a violent person but it takes a SPECIAL kind of shit-stained unhappy asswipe to do this...breathin'...breathin...lawd

I threatened violence... but then I thought better of it and deleted that part of my comment. lol

No, fuck this coward. I will take them even if they're big enough to kick my ass. lol

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Reply #56 posted 06/21/11 7:53pm

Cerebus

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PunkMistress said:

Cerebus said:

Not that I feel like I need to defend myself (because I don't, and anybody here who knows me even a little bit knows that shit ain't my style), but since I'm the one that made the bikini picture comment I feel like I need to make it as clear as possible that I had nothing to do with that complaint.

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

So, as usual, the org quickly reminds me of everything I hate about human beings.

falloff

You have no idea.

So many of our conversations take place with Chris sitting on the edge of the tub while I take the gravity off my joints and lungs, he has started calling me Abe from Hellboy.

JerseyKRS said:

Cerebus said:

Honestly, I figured it would probably feel better for her to be in the water where there wouldn't be as much Earthly stress making it more difficult for her to get around.

lol, this is 100% true nod thumbs up!

I knew that bikini picture was going to be trouble. rolleyes

LMAO that you edited it into the beginning of this thread. lol

Awesome! Love Hellboy, Abe, Mignola AND baths! (or women in them, anyway) highfive

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Reply #57 posted 06/21/11 7:54pm

Cerebus

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johnart said:

Cerebus said:

I threatened violence... but then I thought better of it and deleted that part of my comment. lol

No, fuck this coward. I will take them even if they're big enough to kick my ass. lol

Well, ya see, I figured it was more than likely a woman on a heavy dose of haterade, so I felt bad threatening to punch them squarely in the face. lol (Cerebus is SO against man on woman violence. Definitely not his thing.)

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Reply #58 posted 06/21/11 7:56pm

johnart

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Cerebus said:

johnart said:

No, fuck this coward. I will take them even if they're big enough to kick my ass. lol

Well, ya see, I figured it was more than likely a woman on a heavy dose of haterade, so I felt bad threatening to punch them squarely in the face. lol (Cerebus is SO against man on woman violence. Definitely not his thing.)

I would not strike a woman. Even if she deserves more than anything in the world a swift kick in the taco.

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Reply #59 posted 06/21/11 7:58pm

Cerebus

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johnart said:

Cerebus said:

Well, ya see, I figured it was more than likely a woman on a heavy dose of haterade, so I felt bad threatening to punch them squarely in the face. lol (Cerebus is SO against man on woman violence. Definitely not his thing.)

I would not strike a woman. Even if she deserves more than anything in the world a swift kick in the taco.

I knew that. nod Doesn't mean this nonsense isn't deserving of several ninja taco kicks.

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