independent and unofficial
Prince fan community
Welcome! Sign up or enter username and password to remember me
Forum jump
Forums > General Discussion > An update on PunkMistress for those that aren't on FB
« Previous topic  Next topic »
Page 1 of 6 123456>
  New topic   Printable     (Log in to 'subscribe' to this topic)
Author

Tweet     Share

Message
Thread started 09/15/10 2:20pm

JerseyKRS

avatar

An update on PunkMistress for those that aren't on FB

Hi everyone,

I wanted to take some time to thank all of you for your continued concern and wishes for our family. As most of you know, Erin unexpectedly became unhealthy in the beginning of the year. Her main symptoms are chest tightness, labored inhaling and exhaling, exhaustion, burning leg muscles and involuntary muscle spasms when she is at rest/sleeping. In April, after going to the ER for extreme chest and throat tightness, she had to kick and scream before the hospital would admit her. They did admit her and didn't do much of anything for a week other than charge us a lot of money for the stay. She was told to follow up outpatient with a respiratory specialist, which she did. She was diagnosed with asthma after a simple PFT (pulmonary function test) and put on a bunch of expensive prescription medicines....inhaled steroids, nasal sprays, allergy pills...etc. These did little to curb the symptoms, in fact, they began to get progressively worse and far more frequent. Everyday tasks like blow drying her hair and chopping vegetables would exhaust her to the point where she would not be able to do more than lay still to try and regain her energy and breath. Her body, only when laying at rest and asleep, started to spasm involuntarily and randomly. During extensive and severe times of the tightness and breathlessness, her thigh and hamstring muscles would feel like they are burning.

At a 6 week follow up appointment with the pulmonologist that diagnosed her with asthma, she explained to him that there was no improvement and that things had gotten significantly worse. During this appointment, the doctor did not even look at her, only at his chart to which everything looked good to him. We were told to continue on the meds and that it was probably just stress. :-/

Needless to say, the following months were filled with hundreds of "episodes" of these very specific symptoms. The meds did not help. Episodes of severe symptoms would last minutes, hours, days and weeks with no rhyme nor reason to when, how severe or how long they would be. Erin would sleep to escape the pain of being awake. (Sorry for the emo description y'all). The stress and frustration was very high on both her and me. I could not see how she could go from a healthy 30 year old woman to not being able to walk the dog so fast and how all these supposed maintenance medications did nothing to alleviate her symptoms.

Well, fast forward to this past Sunday. During a particularly long and intense episode (it began on September 3rd), unable to curb the symptoms, we decided to go back to the hospital. We went to the ER at Tampa General Hospital with the mindset that the resources there would be a better place. Hoping to find people that cared enough to listen to us and cared enough to look at Erin and agree that she was NOT WELL.

The doctors became very concerned, admitted her and immediately agreed that something was up, and that it probably was not asthma. The head pulmonologist at the hospital, who also works with the University of South Florida, is ruling out asthma. Things like the absence of any kind of wheeze, her high pulse/ox and the fact that none of the maintenance meds worked were strong indicators for him. Tests to this point were a chest x-ray, a chest CT scan, and EKG, and echo-cardiogram, a swallowing test and a test to see how much oxygen she maintained under light exertion. All were positive. A more investigative PFT was done and it has been determined that asthma is not the problem. Something I've been exclaiming for months.

Right now, we are about to involve a neurologist and see if perhaps that is where we need to look. An MRI of Erin's brain was performed today, and after some LONG waiting hours the results showed no type of atrophy or anything of note, in other words, positive. The pulmonologist has said on many occasions that she does not have asthma, yet he is still ordering and performing tests to help eliminate any doubt. They'll be sticking a camera down her throat today or tomorrow to look at her vocal chords, trachea, bronchi and bronchial tissue. The neurologist will be seeing her either today or tomorrow. That's about where we stand.

We are very happy and thankful that the doctors and medical personnel are listening to us and not just shoving us aside, claiming there is nothing wrong just because everything looks fine to them on their charts and tests. We seem to have found people that can see she is not well and are dedicated to finding out why and if/how to treat it. I'm not quite sure why that compassion has been so hard to find in this endless maze of physicians and money and missed work and stress and frustration and....you get the picture.

Thank you all again, for your kind words, caring and support. As you know, Erin left her family and friends from a lifetime in Cambridge, MA to move to Florida and be with me. Her support group is small here. Hearing from everyone wishing her well, making her laugh, and offering whatever they can has been a huge positive throughout this entire ordeal. Please continue. smile

Go Yankees.

[Edited 9/15/10 14:25pm]



  - E-mail - orgNote - Report post to moderator
Reply #1 posted 09/15/10 2:23pm

JustErin

avatar

Good luck, Erin. I hope for the very best! I'll be thinking of you guys.

  - E-mail - orgNote - Report post to moderator
Reply #2 posted 09/15/10 2:24pm

BlackAdder7

All the best wished to your Krs, and PM.

could it be an allergy to Latin Artists????

  - E-mail - orgNote - Report post to moderator
Reply #3 posted 09/15/10 2:27pm

Lisa10

Hope all the quesions get answered soon. Will be thinking of you - keep us updated!

Here's some tits.

[img:$uid]http://i596.photobucket.com/albums/tt42/florescent_bucket/fake-Boobs_682_820696a.jpg[/img:$uid]

  - E-mail - orgNote - Report post to moderator
Reply #4 posted 09/15/10 2:32pm

Efan

avatar

She's so awesome. I'm thinking about you guys and sending my best...hope you have good, positive solutions to everything ailing her very, very soon. Good luck!

  - E-mail - orgNote - Report post to moderator
Reply #5 posted 09/15/10 2:39pm

Shawnt27

Doctors can be absolutely clueless at times. I am glad you guys are moving closer to finding the cause of all of these problems.

Inspired by the JerseyKRS clan, Tiki will be coming out of retirement to run some touchdowns and bang some more chicks. Pictures will be orgnoted.

  - E-mail - orgNote - Report post to moderator
Reply #6 posted 09/15/10 2:45pm

FauxReal

Hope things come out as good as possible and they find answers for the two of you.

  - E-mail - orgNote - Report post to moderator
Reply #7 posted 09/15/10 2:50pm

orger

avatar

JerseyKRS said:

is that a pipe?

she looks like a hot,

straight edge,

pissed off,

sherlock holmes

How is it you feel?
  - E-mail - orgNote - Report post to moderator
Reply #8 posted 09/15/10 2:50pm

sextonseven

avatar

Not on FB, that's me!

I knew she was having problems, but I had no idea it had gotten so much worse. At least doctors are paying attention now. I wish you two the best of luck. cookie

  - E-mail - orgNote - Report post to moderator
Reply #9 posted 09/15/10 2:58pm

shootindabreez
e

I'd hit it... wink

I wish her well and you peace of mind my friends... hug

Oh and as long as Lisa sent y'all some tits....you BOTH should be feeling better... wink

  - E-mail - orgNote - Report post to moderator
Reply #10 posted 09/15/10 2:59pm

johnart

avatar

JerseyKRS said:

a swallowing test

[Edited 9/15/10 14:25pm]

giggle

I'm sorry I'll just brick my own damn self blackeye

  - E-mail - orgNote - Report post to moderator
Reply #11 posted 09/15/10 3:02pm

Lammastide

avatar

Damn, I wish I looked that good ill! confused

Anyway you both are in my thoughts and prayers. pray Be well.

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
  - E-mail - orgNote - Report post to moderator
Reply #12 posted 09/15/10 3:02pm

Vendetta1

hug

  - E-mail - orgNote - Report post to moderator
Reply #13 posted 09/15/10 3:04pm

2freaky4church
1

avatar

Does she smoke? Ganja I know she smokes.

All you others say Hell Yea!! woot!
  - E-mail - orgNote - Report post to moderator
Reply #14 posted 09/15/10 3:12pm

luv4u

Moderator

avatar

moderator

Stickyfied

pray rose hug

canada

Ohh purple joy oh purple bliss oh purple rapture!
REAL MUSIC by REAL MUSICIANS - Prince
"I kind of wish there was a reason for Prince to make the site crash more" ~~ Ben
  - E-mail - orgNote - Report post to moderator
Reply #15 posted 09/15/10 3:16pm

PunkMistress

avatar

2freaky4church1 said:

Does she smoke? Ganja I know she smokes.

I don't smoke anything. smile

It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #16 posted 09/15/10 3:16pm

johnart

avatar

First a swallowing test and now she's sticky. My head's gonna explode.

  - E-mail - orgNote - Report post to moderator
Reply #17 posted 09/15/10 3:31pm

BklynBabe

avatar

where's the thread where we were kicking around possible diagnoses? hmmm

  - E-mail - orgNote - Report post to moderator
Reply #18 posted 09/15/10 3:31pm

PunkMistress

avatar

lol

PLEASE keep the fuckery coming.

It's so boring in here.

It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #19 posted 09/15/10 3:32pm

BklynBabe

avatar

johnart + swallowing test = total fuckery!! falloff

  - E-mail - orgNote - Report post to moderator
Reply #20 posted 09/15/10 3:34pm

PunkMistress

avatar

Lammastide said:

Damn, I wish I looked that good ill! confused

Anyway you both are in my thoughts and prayers. pray Be well.

giggle

That pic was a night we went out to a concert and I needed a breathing treatment as usual. I'm not that done-up here in the hospital!

It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #21 posted 09/15/10 3:36pm

PunkMistress

avatar

You didn't have to stickyfy me. redface

It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #22 posted 09/15/10 3:40pm

sextonseven

avatar

PunkMistress said:

You didn't have to stickyfy me. redface

That is sooo going to be someone's new sig.

  - E-mail - orgNote - Report post to moderator
Reply #23 posted 09/15/10 3:42pm

BklynBabe

avatar

this site is always good for a laugh!

http://www.toptitties.com/

wink

  - E-mail - orgNote - Report post to moderator
Reply #24 posted 09/15/10 4:12pm

evenstar3

avatar

It's AWESOME you guys finally found people to listen! Keep fighting :hug:

Oh, and when I'm outta work later I'll post some cleavage shots for the two of you. Boobs have magic healing powers nod
  - E-mail - orgNote - Report post to moderator
Reply #25 posted 09/15/10 4:26pm

MoniGram

avatar

I had no idea this was going on since I do not have either of you on FB. So I am very sorry for my late post.

I will say I am very upset that this happened to her. But quite happy that you finally found people that didn't have their heads up their asses and were willing to finally listen to her and her symptoms.

My thoughts are with you, Erin and your kids! I truly hope they figure out exactly what is going on so all of you can move on with your life and enjoy that awesome family of yours.

hug

Proud Memaw to Seyhan Olivia Christine ,Zoey Cirilo Jaylee & Ellie Abigail Lillian mushy
  - E-mail - orgNote - Report post to moderator
Reply #26 posted 09/15/10 4:26pm

MoniGram

avatar

BklynBabe said:

this site is always good for a laugh!

http://www.toptitties.com/

wink

Now that's an interesting site...and I will be honest I think I will enjoy it. giggle

Proud Memaw to Seyhan Olivia Christine ,Zoey Cirilo Jaylee & Ellie Abigail Lillian mushy
  - E-mail - orgNote - Report post to moderator
Reply #27 posted 09/15/10 4:28pm

Ace

This woman is far too fucking hot to be sick.

Love you guys. hug

  - E-mail - orgNote - Report post to moderator
Reply #28 posted 09/15/10 4:30pm

Ace

Lisa10 said:

Hope all the quesions get answered soon. Will be thinking of you - keep us updated!

Here's some tits.

[img:$uid]http://i596.photobucket.com/albums/tt42/florescent_bucket/fake-Boobs_682_820696a.jpg[/img:$uid]

falloff

  - E-mail - orgNote - Report post to moderator
Reply #29 posted 09/15/10 4:33pm

Shawnt27

[img:$uid]http://i18.tinypic.com/4zivj28.gif[/img:$uid]

[img:$uid]http://26.media.tumblr.com/tumblr_l7d3itZYwm1qaw85go1_250.gif[/img:$uid]

  - E-mail - orgNote - Report post to moderator
Page 1 of 6 123456>
  New topic   Printable     (Log in to 'subscribe' to this topic)
« Previous topic  Next topic »
Forums > General Discussion > An update on PunkMistress for those that aren't on FB