independent and unofficial
Prince fan community
Welcome! Sign up or enter username and password to remember me
Forum jump
Forums > General Discussion > Kind of a personal question, but...
« Previous topic  Next topic »
Reply   New topic   Printable     (Log in to 'subscribe' to this topic)
Author

Tweet     Share

Message
Thread started 08/15/24 2:00pm

TrivialPursuit

avatar

Kind of a personal question, but...

... anyone here ever dealt with having cancer?

If you have a problem with me, text me. If you don't have my number, you don't know me well enough to have a problem with me.
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #1 posted 08/15/24 3:24pm

PennyPurple

avatar

I have close family members who have had it.

I work for a group of surgeons that do a lot of cancer cases.

PM me if you need info or just someone to talk to

 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #2 posted 08/27/24 12:06am

vipiha

A design of unique ideas. You can start with the plan now slope 3 online.

 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #3 posted 09/05/24 10:23pm

S2DG

avatar

vipiha said:

A design of unique ideas. You can start with the plan now slope 3 online.


These bots really suck, especially on this damn topic. grenade

To answer your question Triv, I was with my mom while she went through cancer and treatments until it took her life.

It fucked me up and I don't think I'm strong enough to go through what she did - radiation, chemo.

Hope you're alright pray


 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #4 posted 09/06/24 2:56pm

TrivialPursuit

avatar

The truth: I've been diagnosed with Hodgkins Lymphoma stage 4. Stage 4 for HL is different than a blood cancer like lung, liver, eat. Hodgkins is very receptive to treatment. The Oncologist said we're going into this with a curative goal. She's going to "push [me] to [my] limit." I suppose it's a plus versus having non-Hodgkins.

Part of this has manifested as an open abscess on my neck and a hole under my ear. The abscess has been there since the first of June. It won't heal. They drain all the time, so I have to stay bandaged.

On the right side of my neck and face, my lymph nodes are engorged. Feels like I have tumors in there, but it's the nodes. Once I finally got a biopsy, that's when we finally had an answer. This was in early August, two months after the abscess opened.

I've been in the hospital before that biopsy, because my white blood cells were around 20,000 (which is maxed out). We had originally thought it was all an infection, but that biopsy finally gave us an answer.

This past Tuesday, I had a port implanted in my chest for chemotherapy. My chemo starts on Sept 12. I'll have 6 rounds of it, every 15 days. Then I'll have another PET scan, which will show the progress and we'll decide from there what to do. A PET scan is a more detailed CT scan, of sorts.

I never go anywhere, and my energy is zapped right now. It's too much to try and bandage up the sores and go out anywhere, and I can be completely devoid of stamina or energy in an hour or two.

I'm a veteran, so thank God the VA has covered all expenses. I've not paid for a thing thus far. The VA here in my town is just awesome. The doctors are very interactive, engaging, caring, and kind. The nursing staff are just awesome. I know we hear horror stories about VA hospitals, but this one is super nice.

I'm nervous and anxious about chemo. I really just wanna get it going. The nurse said after the first chemo treatment, I should see a big reduction in the swelling and engorged nature of the right side of my face. The abscess should heal, from the bottom (inside) up.

I cry a lot, just to get out the anxiety or sadness I feel. I'm not a doom and gloom sorta guy, so I'm optimistic. I'm pretty sure I'll get past it - I just wanna get the ball rolling more. But I'm less than a week away from chemo, so I'm just trying to be patient.

[Edited 9/6/24 15:46pm]

If you have a problem with me, text me. If you don't have my number, you don't know me well enough to have a problem with me.
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #5 posted 09/06/24 4:12pm

purplethunder3
121

avatar

Best wishes on your treatment and a full recovery. My sister had to go through cancer treatment last year. This year she traveled to Chicago to celebrate life with myself, my son, and his wife. I hope the same for you and your's.

"Music gives a soul to the universe, wings to the mind, flight to the imagination and life to everything." --Plato

https://youtu.be/CVwv9LZMah0
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #6 posted 09/06/24 4:31pm

XxAxX

avatar

TrivialPursuit said:

... anyone here ever dealt with having cancer?

hug my father passed from cancer. wishing you well in your journey

 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #7 posted 09/06/24 7:50pm

PennyPurple

avatar

Stay Strong! You Got This!

Purple Awareness Ribbon - Pancreatic Cancer - Lupus - Embroidered Iron On  Patch

 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #8 posted 09/06/24 8:10pm

TrivialPursuit

avatar

I kinda love that the Hodgkins Lymphoma ribbon is purple.


And ain't it the shit that I get my port implanted and start chemo - wait for it - during Hodgkins Lymphoma Awareness Month! lol


If you have a problem with me, text me. If you don't have my number, you don't know me well enough to have a problem with me.
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #9 posted 09/08/24 5:06am

FrankieCoco1

Keep trying to live your life and take enjoyment out of little things. It’s inevitable there’s going to pain in body and mind but be proud of what you’ve done, what you’re doing and what’s to come. All the best with things and ‘may you live to see the dawn’. 💜
There may or may not be something coming!
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #10 posted 09/08/24 12:23pm

TrivialPursuit

avatar

FrankieCoco1 said:

Keep trying to live your life and take enjoyment out of little things. It’s inevitable there’s going to pain in body and mind but be proud of what you’ve done, what you’re doing and what’s to come. All the best with things and ‘may you live to see the dawn’. 💜


💜 💜

If you have a problem with me, text me. If you don't have my number, you don't know me well enough to have a problem with me.
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply #11 posted 09/12/24 5:06pm

TrivialPursuit

avatar

Well, my first chemo appointment was today.

It was a 100% positive experience. I learned about the medications, what they do, where the nausea actually comes from, what to expect, and that I have 5 new (partly short term) medications to juggle.

I also realized that a "round" or "cycle" is actually TWO chemo treatments. So I have six cycles, which will be 12 chemo treatments, twice what I thought. But even that was a positive note to me. I'll be in chemo thru March 2025 probably.

I've been telling people, "Today I'm full of medication and education."

If you have a problem with me, text me. If you don't have my number, you don't know me well enough to have a problem with me.
 Reply w/quote - E-mail - orgNote - Report post to moderator
Reply   New topic   Printable     (Log in to 'subscribe' to this topic)
« Previous topic  Next topic »
Forums > General Discussion > Kind of a personal question, but...