he was a good guy

I thought about him this week.

Remembered him and thought about how sad it was that he died so young.


I miss him.

Making this a sticky.

Yes, I remember. Was absolutely shocking and sad. I've got tears in my eyes now.

Never forgotten - Always Missed RIP.

Thread on his passing http://prince.org/msg/100/386760

Wow already a year, time flies

RIP

R.I.P.

Seemed like yesterday I just read about him being dead. Don't even seem like it's been a year. Sad. One of the great orgers.

Very pleasant dude. May he rest in peace.

I always think of him when I see this pic of Jimi.

Cloudbuster said:

I always think of him when I see this pic of Jimi.

So true...

Hopefully he's found the heavenly blues bar where Jimi plays 3 sets every Sunday afternoon...

Wow I remember his avatar, so sad. RIP your words will live on at the org.

Rest In Peace

B1tchierThanEver said:

i had no idea! somebody orgnote me... what happened?!

Done.

Wow, sad to log on and see this rip

Cloudbuster said:

I always think of him when I see this pic of Jimi.

yeah, me too

I year already?? wow

RIP

I'm sorry for the loss. I read the other thread about Dewrede passed, pulmonary embolism. I lost my mother to that when she was 29 and my great-grandmother was 25 and giving birth to my mom when she died from a pulmonary embolism. I was 17 when I was diagnosed with deep vein thrombosis, in the hospital for 22 days (ICU twice), discharged home, back in the hospital 2 weeks later with pulmonary embolisms. The thing is, when you are young (and yes, 37 is young) they often misdiagnose pulmonary embolisms. Prior to my first hospitalization with DVTS, I went to the ER, coughing up blood, each breath felt like a knife being pierced through my side. I couldn't take a deep breath without excruciating pain. They sent me home with a diagnosis of pluerisy. A week later, I was admitted with the DVTs, and a little over a month later, I was admitted with pulmonary embolisms, the same exact symptoms I had when they diagnosed me with pleurisy. Education in this matter is vital, for doctors especially, because they do not know to look for pulmonary embolisms in younger people. It is considered an "older person's disorder". At 37, they may not have been looking for a PE.

I would suggest that if you are interested in donating to reasearch in DVTS and PEs. Dr. Stephen Moll at UNC Chapel Hill is researching clotting disorders and is very passionate about this subject. I've met him several times and he has some of my blood for research purposes. I've tested negative for every known clotting disorder. We just know it's hereditary, but not what causes it.

One of his patient's started a patient advocacy group. More people die from pulmonary embolisms than die from breast cancer and AIDs combined each year. Cancer research and AIDS research has gotten much more publicity and resources because they had advocacy groups, they had people talking about them, but there wasn't an advocacy group and no one was talking about blood clots, and so funding for research for blood clots was very limited (even though it killed more people than breast cancer and AIDS combined.) This advocacy group is bringing about more education which is resulting in more funding opportunities for research.

The thing with blood clots is that the treatment is usually no better than the condition itself. Warfarin/coumadin (anti-coagulants of this nature) are very unstable. EVERYTHING interacts with the medication and can impact how effective it works. Sharp cheddar cheeses, leafy, green vegetables, green / herbal teas, cranberries, and the list goes all, all contain vitamin K, which is a natural blood thinkener. So it decreases the effects of coumadin. Except cranberries actually interrupt the way coumadin is broken down in the system. I will be on coumadin/warfarin the rest of my life. As I age, I am at an ever increasing risk of a fatal bleed from the medicine that I have to take, to keep me from developing a life threatening blood clot. If a large clot breaks off and goes to my lungs or heart, I have 10 minutes and there is nothing no one can do. If my INR goes as high as it did in 2009 (11.9 - normal, for someone not on anticoagulants, is 1.0, most people for heart conditions and such, it's 2.0 to 3.0. They keep my INR at 3.0 to 3.5 (because I've developed clots at the 2.0 to 2.5 range, and that is considered exceptionally thin. The 11.9 I had, a single bruise from bumping into a coffee table, could have caused me to bleed out before help could arrive.)

If you truly want to remember Dewrede (and others like him) donate to National Blood Clot Alliance: Stop the Clot: http://www.stoptheclot.org/ I have no idea why I'm still alive 30 years after developing my first DVT and PE. I should have died many times, came close many times. Each 10 minutes I am given, is a blessing.

Rest in peace dewrede, and know there are people out there advocating for research and cures for what took your life at such a young age. And we won't rest until we find a cure. The thing is, 20% of those with a clotting disorder do not know what clotting disorder they have, because it hasn't been discovered yet. I'm one of the 20% that doesn't know what causes her clots. And a cure can't be found, until they can find why.

If you are in the following areas, here are some upcoming events for Stop The Clots: Upcoming Events - ..........................................28Sep: Arming Yourself in the Fight Against Thrombosis: Ask the Experts, The Fairmont Copley Plaza Hotel, 138 St. James Avenue, Boston, MA 02116.....................................................................28 Sep: Thrombosis Summit 2013. The Fairmont Copley Plaza Hotel, 138 St. James Avenue, Boston, MA 02116.............................................................................................28 Sep: Team Emma at the Color Run 5k, Raleigh, NC.........................................................................19 Oct: Stop The Clot Forum Boston O'Keeffe Auditorium Massachusetts ...General Hospital 55 Fruit Street Boston, MA 021140 ---- 7:30 AM

A year since he passed???? no way

I still cannot believe it. The Org was indeed his "home". He was a good friend to many, the kindest man you would ever want to meet. I love him and miss him everyday. Ik hou van jou mijn liefje...voor altijd.

[Edited 9/16/13 17:44pm]

prittypriss said:

I'm sorry for the loss. I read the other thread about Dewrede passed, pulmonary embolism. I lost my mother to that when she was 29 and my great-grandmother was 25 and giving birth to my mom when she died from a pulmonary embolism. I was 17 when I was diagnosed with deep vein thrombosis, in the hospital for 22 days (ICU twice), discharged home, back in the hospital 2 weeks later with pulmonary embolisms. The thing is, when you are young (and yes, 37 is young) they often misdiagnose pulmonary embolisms. Prior to my first hospitalization with DVTS, I went to the ER, coughing up blood, each breath felt like a knife being pierced through my side. I couldn't take a deep breath without excruciating pain. They sent me home with a diagnosis of pluerisy. A week later, I was admitted with the DVTs, and a little over a month later, I was admitted with pulmonary embolisms, the same exact symptoms I had when they diagnosed me with pleurisy. Education in this matter is vital, for doctors especially, because they do not know to look for pulmonary embolisms in younger people. It is considered an "older person's disorder". At 37, they may not have been looking for a PE.

I would suggest that if you are interested in donating to reasearch in DVTS and PEs. Dr. Stephen Moll at UNC Chapel Hill is researching clotting disorders and is very passionate about this subject. I've met him several times and he has some of my blood for research purposes. I've tested negative for every known clotting disorder. We just know it's hereditary, but not what causes it.

One of his patient's started a patient advocacy group. More people die from pulmonary embolisms than die from breast cancer and AIDs combined each year. Cancer research and AIDS research has gotten much more publicity and resources because they had advocacy groups, they had people talking about them, but there wasn't an advocacy group and no one was talking about blood clots, and so funding for research for blood clots was very limited (even though it killed more people than breast cancer and AIDS combined.) This advocacy group is bringing about more education which is resulting in more funding opportunities for research.

The thing with blood clots is that the treatment is usually no better than the condition itself. Warfarin/coumadin (anti-coagulants of this nature) are very unstable. EVERYTHING interacts with the medication and can impact how effective it works. Sharp cheddar cheeses, leafy, green vegetables, green / herbal teas, cranberries, and the list goes all, all contain vitamin K, which is a natural blood thinkener. So it decreases the effects of coumadin. Except cranberries actually interrupt the way coumadin is broken down in the system. I will be on coumadin/warfarin the rest of my life. As I age, I am at an ever increasing risk of a fatal bleed from the medicine that I have to take, to keep me from developing a life threatening blood clot. If a large clot breaks off and goes to my lungs or heart, I have 10 minutes and there is nothing no one can do. If my INR goes as high as it did in 2009 (11.9 - normal, for someone not on anticoagulants, is 1.0, most people for heart conditions and such, it's 2.0 to 3.0. They keep my INR at 3.0 to 3.5 (because I've developed clots at the 2.0 to 2.5 range, and that is considered exceptionally thin. The 11.9 I had, a single bruise from bumping into a coffee table, could have caused me to bleed out before help could arrive.)

If you truly want to remember Dewrede (and others like him) donate to National Blood Clot Alliance: Stop the Clot: http://www.stoptheclot.org/ I have no idea why I'm still alive 30 years after developing my first DVT and PE. I should have died many times, came close many times. Each 10 minutes I am given, is a blessing.

Rest in peace dewrede, and know there are people out there advocating for research and cures for what took your life at such a young age. And we won't rest until we find a cure. The thing is, 20% of those with a clotting disorder do not know what clotting disorder they have, because it hasn't been discovered yet. I'm one of the 20% that doesn't know what causes her clots. And a cure can't be found, until they can find why.

scary!!!!!!

Beautiful1nTexas said:

I still cannot believe it. The Org was indeed his "home". He was a good friend to many, the kindest man you would ever want to meet. I love him and miss him everyday. Ik hou van jou mijn liefje...voor altijd.

I hope with each day you find a little more peace

Beautiful1nTexas said:

I still cannot believe it. The Org was indeed his "home". He was a good friend to many, the kindest man you would ever want to meet. I love him and miss him everyday. Ik hou van jou mijn liefje...voor altijd.

[Edited 9/16/13 17:44pm]