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Thread started 04/06/11 1:28pm

CarrieMpls

Ex-Moderator

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for those following my continued saga…

My bf had his appointment with his neurologist yesterday. It’s official - he has MS.

He’s taking it really well and I’m really thankful for that. It’s scary, of course, but it’s nice to finally have a diagnosis and a course of action.

The next step is to start treatment - he’ll be giving himself daily injections, probably for the rest of his life. The drug is said to slow the progression of the disease by 70%, which is huge. He’s also considering seeing a new doctor – I’ve been pushing him to see the doctor of my family friend who has MS. The doctor specializes in MS (it’s his whole practice) and is rated very highly.

His cousin (and bff) already signed him up to attend a happy hour for people in their 20’s and 30’s who are newly diagnosed with MS, so we’re all going to that in a few weeks. I’ve been doing lots of research as well.

Anyway - it takes a few weeks to get everything set up so in the meantime we’re off to the Florida Keys tomorrow to soak up some sunshine and celebrate having been together for a whole year (this Sunday is the anniversary of the day we met touched ). And hopefully forget about medical issues for a while.

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Reply #1 posted 04/06/11 1:39pm

RenHoek

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It's folks like you that are what I LOVE about the org... hug

A working class Hero is something to be ~ Lennon
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Reply #2 posted 04/06/11 1:47pm

Ace

You're aces (no pun intended), Carrie. Here's hoping his prognosis is the best.

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Reply #3 posted 04/06/11 1:50pm

Genesia

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Carrie, I'm glad you have an answer - even if it's a difficult one.

Have the best time in Florida - you deserve it! hug

We don’t mourn artists because we knew them. We mourn them because they helped us know ourselves.
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Reply #4 posted 04/06/11 1:52pm

Graycap23

Wishing u both the best.

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Reply #5 posted 04/06/11 2:18pm

Mach

rose hug

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Reply #6 posted 04/06/11 2:20pm

JerseyKRS

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I'm so happy you have each other. mushy

I'm glad you have a definitive answer and are on a road to healthy care. hug



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Reply #7 posted 04/06/11 2:32pm

Hershe

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Best wishes & well wishes. :hug:

Safe journey. rose
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Reply #8 posted 04/06/11 2:37pm

CarrieLee

You'll get through this Carrie. He is a very lucky man to have you in his life. I wish the best for both of you. Have a great time in the Keys...jealous!!!

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Reply #9 posted 04/06/11 2:37pm

CallMeCarrie

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Carrie, I just wanted to send you and your boyfriend my best wishes

and support.

You are amazing for handling a scary situation by

getting out there to find support and advice for your bf!

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Reply #10 posted 04/06/11 2:48pm

Efan

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Sorry to hear that, but glad you guys have an answer and a good plan for dealing with it. Best of luck with all of it, and have a wonderful time in Florida!

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Reply #11 posted 04/06/11 3:01pm

BlackAdder7

good luck, Carriee. make sure to dorp Johnart's name often whilst in the keys.

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Reply #12 posted 04/06/11 3:25pm

CarrieMpls

Ex-Moderator

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You guys are awesome. smile I appreciate the well wishes, I really do.

Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased.

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Reply #13 posted 04/06/11 3:36pm

Serious

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All the best to you and your bf hug rose. He is very lucky indeed to have you at his side.

With a very special thank you to Tina: Is hammer already absolute, how much some people verändern...ICH hope is never so I will be! And if, then I hope that I would then have wen in my environment who joins me in the A....
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Reply #14 posted 04/06/11 3:53pm

kewlschool

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Thanks for the update and best wishes for the rest of your journey together.

99.9% of everything I say is strictly for my own entertainment
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Reply #15 posted 04/06/11 3:54pm

CarrieLee

CarrieMpls said:

You guys are awesome. smile I appreciate the well wishes, I really do.

Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased.

"Love and Other Drugs"

The beginning is pretty much soft porn, but the ending is very touching.

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Reply #16 posted 04/06/11 3:59pm

johnart

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Have a well-deserved wonderful time on your vacation. hug's to u and ur dude.

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Reply #17 posted 04/06/11 4:08pm

AndGodCreatedM
e

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hug rose

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Reply #18 posted 04/06/11 4:19pm

veronikka

hug

have a wonderful time on your vacation! biggrin

Rhythm floods my heart♥The melody it feeds my soul
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Reply #19 posted 04/06/11 4:30pm

Nothinbutjoy

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JerseyKRS said:

I'm so happy you have each other. mushy

I'm glad you have a definitive answer and are on a road to healthy care. hug

My sentiments exactly!

All my positive energy to the two of you! Enjoy the sunshine and each other!

hug

I'm firmly planted in denial
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Reply #20 posted 04/06/11 4:36pm

XxAxX

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rose enjoy your vacation and relax. the diagnosis could be worse but your SO has you to look after him. he's quite lucky.

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Reply #21 posted 04/06/11 4:42pm

PurpleJedi

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hug

Praying for strength to the two of you.

pray

By St. Boogar and all the saints at the backside door of Purgatory!
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Reply #22 posted 04/06/11 6:42pm

Michelesky

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It sounds like you are both keeping a positive attitude which is good biggrin Enjoy your vacation and enjoy each other.

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Reply #23 posted 04/07/11 12:13am

RenHoek

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CarrieMpls said:

You guys are awesome. smile I appreciate the well wishes, I really do.

Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased.

Hey, if he wants to leave he better do it now cuz later you'll just run a broomstick through the spokes of his wheelchair...

too soon?

sorry!

razz

A working class Hero is something to be ~ Lennon
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Reply #24 posted 04/07/11 12:19am

728huey

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I'm sorry about your man's prognosis, sad sad broken but at least now that the diagnosis has been made, both of you can get on with treatment and hopefully lead a happy life together. hug kisses comfort I'll pray for the best for both of you. pray

typing

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Reply #25 posted 04/07/11 12:42am

ZombieKitten

You opening post sounds so positive! clapping it's a testament to the kind of person you are hug

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Reply #26 posted 04/07/11 1:46am

Lammastide

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CarrieMpls said:

You guys are awesome. smile I appreciate the well wishes, I really do.

Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased.

I hope you don't mind the levity, but that sentence made me laugh a bit. smile

From all I can gather, Carrie, you're a class act, and the BF is blessed to have you. Thankfully, there are all sorts of new approaches and supports for you both to render this latest curveball as manageable as can be. Take care of each other. I'm wishing you two the best.

Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ
πρὸς ὀλίγον ἐστὶ τὸ ζῆν
τὸ τέλος ὁ χρόνος ἀπαιτεῖ.”
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Reply #27 posted 04/07/11 1:53am

JuliePurplehea
d

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hug

Shake it til ya make it dancing jig
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Reply #28 posted 04/07/11 2:06am

CarrieMpls

Ex-Moderator

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RenHoek said:

CarrieMpls said:

You guys are awesome. smile I appreciate the well wishes, I really do.

Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased.

Hey, if he wants to leave he better do it now cuz later you'll just run a broomstick through the spokes of his wheelchair...

too soon?

sorry!

razz

Not too soon. lol We have been laughing all the way. It's the best way to deal with it all.

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Reply #29 posted 04/07/11 2:09am

Vendetta1

hug

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