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| Ex-Moderator |
for those following my continued saga… My bf had his appointment with his neurologist yesterday. It’s official - he has MS.
He’s taking it really well and I’m really thankful for that. It’s scary, of course, but it’s nice to finally have a diagnosis and a course of action.
The next step is to start treatment - he’ll be giving himself daily injections, probably for the rest of his life. The drug is said to slow the progression of the disease by 70%, which is huge. He’s also considering seeing a new doctor – I’ve been pushing him to see the doctor of my family friend who has MS. The doctor specializes in MS (it’s his whole practice) and is rated very highly.
His cousin (and bff) already signed him up to attend a happy hour for people in their 20’s and 30’s who are newly diagnosed with MS, so we’re all going to that in a few weeks. I’ve been doing lots of research as well.
Anyway - it takes a few weeks to get everything set up so in the meantime we’re off to the Florida Keys tomorrow to soak up some sunshine and celebrate having been together for a whole year (this Sunday is the anniversary of the day we met |
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It's folks like you that are what I LOVE about the org...
A working class Hero is something to be ~ Lennon |
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You're aces (no pun intended), Carrie. Here's hoping his prognosis is the best. | |
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Carrie, I'm glad you have an answer - even if it's a difficult one.
Have the best time in Florida - you deserve it! We don’t mourn artists because we knew them. We mourn them because they helped us know ourselves. | |
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Wishing u both the best.
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I'm so happy you have each other.
I'm glad you have a definitive answer and are on a road to healthy care. | |
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Best wishes & well wishes. :hug: Safe journey. ![]() | |
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You'll get through this Carrie. He is a very lucky man to have you in his life. I wish the best for both of you. Have a great time in the Keys...jealous!!! | |
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Carrie, I just wanted to send you and your boyfriend my best wishes and support.
You are amazing for handling a scary situation by getting out there to find support and advice for your bf! | |
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Sorry to hear that, but glad you guys have an answer and a good plan for dealing with it. Best of luck with all of it, and have a wonderful time in Florida! | |
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good luck, Carriee. make sure to dorp Johnart's name often whilst in the keys. | |
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| Ex-Moderator |
You guys are awesome.
Yeah, I'm glad we have each other too. He worries about it a bit (that it could become too difficult for me) but I keep assuring him I won't leave him just cause he's diseased. |
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With a very special thank you to Tina: Is hammer already absolute, how much some people verändern...ICH hope is never so I will be! And if, then I hope that I would then have wen in my environment who joins me in the A.... | |
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Thanks for the update and best wishes for the rest of your journey together.
99.9% of everything I say is strictly for my own entertainment | |
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"Love and Other Drugs"
The beginning is pretty much soft porn, but the ending is very touching. | |
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Have a well-deserved wonderful time on your vacation. | |
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have a wonderful time on your vacation! Rhythm floods my heart♥The melody it feeds my soul | |
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My sentiments exactly!
All my positive energy to the two of you! Enjoy the sunshine and each other!
I'm firmly planted in denial | |
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Praying for strength to the two of you.
By St. Boogar and all the saints at the backside door of Purgatory! | |
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It sounds like you are both keeping a positive attitude which is good | |
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Hey, if he wants to leave he better do it now cuz later you'll just run a broomstick through the spokes of his wheelchair...
too soon? sorry!
A working class Hero is something to be ~ Lennon |
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I'm sorry about your man's prognosis,
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You opening post sounds so positive! | |
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I hope you don't mind the levity, but that sentence made me laugh a bit.
From all I can gather, Carrie, you're a class act, and the BF is blessed to have you. Thankfully, there are all sorts of new approaches and supports for you both to render this latest curveball as manageable as can be. Take care of each other. I'm wishing you two the best. Ὅσον ζῇς φαίνου
μηδὲν ὅλως σὺ λυποῦ πρὸς ὀλίγον ἐστὶ τὸ ζῆν τὸ τέλος ὁ χρόνος ἀπαιτεῖ.” | |
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Shake it til ya make it | |
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| Ex-Moderator |
Not too soon. |
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