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Cystic Fibrosis awareness Friday is "65 roses" day here in Australia.
"65 roses" is said to be an attempt by a little boy to say Cystic Fibrosis, the condition that his sister suffered from http://www.65rosesday.org...-roses.htm Cystic Fibrosis (also known as CF) is a common hereditary disease which affects the entire body, causing progressive disability and often early death. The name cystic fibrosis refers to the characteristic scarring (fibrosis) and cyst formation within the pancreas, first recognized in the 1930s. Difficulty breathing is the most serious symptom and results from frequent lung infections that are treated, though not cured, by antibiotics and other medications. A multitude of other symptoms, including sinus infections, poor growth, diarrhea, and infertility result from the effects of CF on other parts of the body http://en.wikipedia.org/w...c_fibrosis some of the things suffers have to go thru are regular physio to help shift mucus, frequent hospital visits for "tune ups" as well as taking enzymes with every meal to help with food digestion. CF is an awful disease. My husband lost a nephew at the age of 3 to this horrible disease, and has another nephew with CF as well. (he is 18) my sisters step son also has CF (19) and a girl i went to school with lost her sister in he early 20's If you can, please donate on friday to help find a cure for this cruel disease. seems that i was busy doing something close to nothing, but different than the day before | |
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ZombieKitten said: now i just have to find someone that isnt woolies allied to buy my 65 roses day merchaindise. i know BIg W does, but i will only go there as a last resort seems that i was busy doing something close to nothing, but different than the day before | |
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prb said: ZombieKitten said: now i just have to find someone that isnt woolies allied to buy my 65 roses day merchaindise. i know BIg W does, but i will only go there as a last resort not woollies | |
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ZombieKitten said: prb said: now i just have to find someone that isnt woolies allied to buy my 65 roses day merchaindise. i know BIg W does, but i will only go there as a last resort not woollies my sister just posted that there is a fundraiser on the 17th... SATC2 private screening...drinks and nibblies...proceeds going to CF now, i just have to watch the first one seems that i was busy doing something close to nothing, but different than the day before | |
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prb said: ZombieKitten said: not woollies my sister just posted that there is a fundraiser on the 17th... SATC2 private screening...drinks and nibblies...proceeds going to CF now, i just have to watch the first one what?!?! at WOOLLIES?!?! at my local one, they made me do that self-serve check-out thingie today | |
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ZombieKitten said: prb said: my sister just posted that there is a fundraiser on the 17th... SATC2 private screening...drinks and nibblies...proceeds going to CF now, i just have to watch the first one what?!?! at WOOLLIES?!?! at my local one, they made me do that self-serve check-out thingie today no, the cinemas bugger woollies id rather starve and go nekkid than shop with them seems that i was busy doing something close to nothing, but different than the day before | |
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oooooh, when you talk in those fancy acronyms, you lose me | |
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ZombieKitten said: oooooh, when you talk in those fancy acronyms, you lose me
twice in one night seems that i was busy doing something close to nothing, but different than the day before | |
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prb said: ZombieKitten said: oooooh, when you talk in those fancy acronyms, you lose me
twice in one night you can thank Bounty Rum for that | |
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ZombieKitten said: prb said: twice in one night you can thank Bounty Rum for that seems that i was busy doing something close to nothing, but different than the day before | |
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seems that i was busy doing something close to nothing, but different than the day before | |
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Vendetta1 said: Hi Ivy for all those who have lost someone to CF and to all those who are still waging a daily battle with this disease Alan Mark Colin unashamed post seems that i was busy doing something close to nothing, but different than the day before | |
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prb said: Vendetta1 said: Hi Ivy for all those who have lost someone to CF and to all those who are still waging a daily battle with this disease Alan Mark Colin unashamed post I do not know anyone who has CF, but I was struck by a story I read on CNN a few months ago about Eva Markvoort, whose life was the subject of a documentary. She passed away recently at 26 years old. Seeing her in the months up to the time, still smiling and laughing with her friends, was beautiful and heartbreaking at the same time. | |
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Vendetta1 said: prb said: Hi Ivy for all those who have lost someone to CF and to all those who are still waging a daily battle with this disease Alan Mark Colin unashamed post I do not know anyone who has CF, but I was struck by a story I read on CNN a few months ago about Eva Markvoort, whose life was the subject of a documentary. She passed away recently at 26 years old. Seeing her in the months up to the time, still smiling and laughing with her friends, was beautiful and heartbreaking at the same time. it is very sad.. Suffers are living longer now, with early diagnosises and treatment, but there is still no cure, and it affects different ppl in different ways. who knows what will lie ahead for my 2 nephews. they are both young adults now. seems that i was busy doing something close to nothing, but different than the day before | |
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