independent and unofficial
Prince fan community
Welcome! Sign up or enter username and password to remember me
Forum jump
Forums > General Discussion > AUTISM - An Experiment
« Previous topic  Next topic »
  New topic   Printable     (Log in to 'subscribe' to this topic)
Author

Tweet     Share

Message
Thread started 03/18/10 3:17pm

TheVoid

AUTISM - An Experiment

OK, an IRL friend of mine with an autistic child is running an 'experiment'
on her facebook account. She's asking:



What is the first thing you think of when you think of autism?




I'd love get your perspective on this question.
I admitted to her that I've read A LOT on the subject out of curiosity
but I still don't really 'get' what autism is. I suspect
an ex of mine of having asperberg's syndrome (a very mild form of it)
and can see autism being in that vein, but I am totally and utterly
ignorant of it.

I never picture 'Rain Man' though when I think of autism.



What's your first impression or your lasting mental impression
when you think of autism?
  - E-mail - orgNote - Report post to moderator
Reply #1 posted 03/18/10 3:21pm

ZombieKitten

tuning out because things seem too intense - ie sensory info comes at them too strongly, comfort in routine, patterns, repetitive behaviour, difficulty relating to others on an emotional level - maybe due to them processing so much info all the time?

shrug something like that is what I'm guessing it's like, I don't really know for sure either hmmm
  - E-mail - orgNote - Report post to moderator
Reply #2 posted 03/18/10 3:27pm

CarrieMpls

Ex-Moderator

avatar

I immediately think of children, rather than adults. I'm not sure why.

I think of children who are usually gifted with extreme intelligence, but have little connection to other people - and prefer not to have that connection. I'd consider it kind of a lower emotional intelligence, maybe. They don't relate to other people the same way others do.

That's what I think of.
  - E-mail - orgNote - Report post to moderator
Reply #3 posted 03/18/10 3:29pm

veronikka

The other day I was in an interview which involved a teenage boy with autism. When he was asked questions he just stared at the person asking questions but did not answer at times just shrugging his shoulders, as his answer. He seemed to have no energy and was dozing off at times, I know he was on medication but seeing him this way broke my heart sad
Rhythm floods my heart♥The melody it feeds my soul
  - E-mail - orgNote - Report post to moderator
Reply #4 posted 03/18/10 4:12pm

TypoQueen

First thought is that it is very frustrating for child and family. We have found routine and patience in everyday life helps.
  - E-mail - orgNote - Report post to moderator
Reply #5 posted 03/18/10 4:16pm

Mars23

Moderator

avatar

moderator

The medical community is actually mulling eliminating the diagnosis "asperger's syndrome" because it is simply a form of Autism.

Check out the movie "Temple Grandin" or look her up on Amazon. She is widely viewed as the first person to be able to talk about what Autism is like. She has it and also has 2 degrees and several of the patents used in feedlots and slaughter houses all over the world. She was able to design them better because she could understand the plight of the animals heading to slaughter.

BTW, these kids are included in the "No Child Left Behind" testing in the US. Pretty fucked up huh?
Studies have shown the ass crack of the average Prince fan to be abnormally large. This explains the ease and frequency of their panties bunching up in it.
  - E-mail - orgNote - Report post to moderator
Reply #6 posted 03/18/10 10:05pm

sonic

avatar

I think of kids that have trouble expressing thier feelings. Im afraid i dont know alot about thier "Learning difficulties" do they have any? can they read/write/spell like a normal kid thier age?

My GF has a teenage son, she has Never told me what his "disability" is..just says he is a special needs kid. he has speech problems too..i can understand maybe 30% of what he says. he cannot read or add simple numbers. hes been in a special school most of his life & i feel bad b/c nothing has changed...no improvement that i can see.

But the hardest thing is my GF has REFUSED help for him. He was offered a tutor for free & a big brother. (she is a single mum) she acts like if she ignores the problem, it doesnt exist. mad

i know this is more serious than autism..the boy will be 19 next month & i cant imagine any kind of productive future in store.
neutral
  - E-mail - orgNote - Report post to moderator
Reply #7 posted 03/18/10 10:15pm

bluesbaby

avatar

When I think of Autism, I think of how it has changed our life as a family, and made us closer..our son is doing wonderfully. There is a whole autism spectrum, and the diagnosis is difficult, because a child can change so much. We were lucky to get a great school team, and others who have helped him make great strides.

Our gift has been autism, I guess, because the label isn't so important anymore, but it certainly gave us answers to what was happening with our child. He is amazing, and I am unabashedly proud of him, devoted to him, mushy etc. etc. etc.
  - E-mail - orgNote - Report post to moderator
Reply #8 posted 03/18/10 11:35pm

MarkThrust

avatar

Since this an impression-experiment, I'll just wing it: I think of autism as a disability in the 'social intellect'. It seems to manifest itself in not focusing on interpreting verbal or visual social cues.
  - E-mail - orgNote - Report post to moderator
Reply #9 posted 03/19/10 12:56am

Huggiebear

avatar

Diversity
So what are u going 2 do? R u just gonna sit there and watch? I'm not gonna stop until the war is over. Its gonna take a long time
  - E-mail - orgNote - Report post to moderator
Reply #10 posted 03/19/10 7:17am

PunkMistress

avatar

Terry, Judy, Brian, John and Vincent.
It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #11 posted 03/19/10 9:10am

prb

avatar

Mars23 said:

The medical community is actually mulling eliminating the diagnosis "asperger's syndrome" because it is simply a form of Autism.

Check out the movie "Temple Grandin" or look her up on Amazon. She is widely viewed as the first person to be able to talk about what Autism is like. She has it and also has 2 degrees and several of the patents used in feedlots and slaughter houses all over the world. She was able to design them better because she could understand the plight of the animals heading to slaughter.

BTW, these kids are included in the "No Child Left Behind" testing in the US. Pretty fucked up huh?

i hope they dont...it would be like putting type I and type II diabetes under just diabetes..both are different, and require different treatment/care.

i know children with autism both high functioning, and high care and with aspergers.

When i think of autism, i think of how my son looks out for his friends brother...who is autistic

and he came home yesterday and said that he and another friend have an autistic child as a book buddy (the older kids are book buddies for the younger classes)
then explained the way the boy has a board in the class room, with the different activities he has to do. he picks off a sign, and does that activity...he (my rugrat) was fascinated by this...and said, "its great, coz it helps him to focus mushy )
This boy has a twin in the class who is also autistic, but only needs one book buddy.

Im so proud of my son, the school must see the good in him also, to give him such a big responsibility
seems that i was busy doing something close to nothing, but different than the day before music beret
  - E-mail - orgNote - Report post to moderator
Reply #12 posted 03/19/10 9:11am

prb

avatar

sonic said:

I think of kids that have trouble expressing thier feelings. Im afraid i dont know alot about thier "Learning difficulties" do they have any? can they read/write/spell like a normal kid thier age?

My GF has a teenage son, she has Never told me what his "disability" is..just says he is a special needs kid. he has speech problems too..i can understand maybe 30% of what he says. he cannot read or add simple numbers. hes been in a special school most of his life & i feel bad b/c nothing has changed...no improvement that i can see.

But the hardest thing is my GF has REFUSED help for him. He was offered a tutor for free & a big brother. (she is a single mum) she acts like if she ignores the problem, it doesnt exist. mad

i know this is more serious than autism..the boy will be 19 next month & i cant imagine any kind of productive future in store.
neutral

hug
seems that i was busy doing something close to nothing, but different than the day before music beret
  - E-mail - orgNote - Report post to moderator
Reply #13 posted 03/19/10 2:54pm

Huggiebear

avatar

Aspergers is now a form of Autism I am sure, and there is one form even milder than it, its called High Functioning Autism (HFA), Most people who have it, have above average or superior level intelligence (IQ 110 -140s), Higher IQs mean the person is a genius. Many people in history such as Nikolai Tesla, Hans Christian Andersen, Mozart, Beethoven, James Joyce and Einstein are believed now to have HFA, although I believe Einstein may have been a true genius as his IQ was too high.
Aspergers is slightly more severe, as they general have average to below average intelligence and generally did not have the language development delays that people with HFA have. Most people with HFA go on to lead normal and productive lives, their only visible signs of autism is they have odd body language and generally lacking social skills and emotions (eg empathy). Why am I saying this, because I have been formally diagnosed with it (My IQ is 141 Stanford Binet, 128 WAIS)yet I couldn't speak until I was 6. The psychologists told me that 75% of Autistic people have an intellectual disability, and only a few people with Aspergers syndrome have an intellectual diability, whereas no one with HFA does. More severe autism includes Angelmans syndrome, true intellectual and physical disabilities and a form called Praderwilly (I think) syndrome, the one where the kids want to eat all the time. Whereas most people with HFA have no other disabilities, and in the mildest forms, people have no need for medication or treatment, like me.

So an Autistic spectrum could go

IQ (Binet) Name of Autism Physical disability Intellectual
150 or more None - Genius No No
110-140s High Functioning Unlikely No
80- 110 Aspergers Syndrome Possible Slight at lower end
65-80 Mild (Medium - Low) Possible Mild (Forrest Gump)
50 - 65 Moderate (Lower) Possible Moderate (Homer S)
35 - 50 Severe (Low) Most likely Profound
Under 35 Profound/very low Almost certain Psycopaedic
Angelmans Angelmans (Low) Yes (Drooling) Non communicative
Praderwilly Low- Medium Yes (Weight gain) Slight to Moderate

Apologise for formatting, the reply feature here is quite primitive (c.1985) and very limiting.


I feel autism is still being worked out by doctors and we may end up with a scale like this at some stage.

So a spectrum could look like this
[Edited 3/19/10 14:59pm]
So what are u going 2 do? R u just gonna sit there and watch? I'm not gonna stop until the war is over. Its gonna take a long time
  - E-mail - orgNote - Report post to moderator
Reply #14 posted 03/19/10 8:34pm

PunkMistress

avatar

I've never seen Prader-Willi Syndrome grouped with autism spectrum disorders. It's a genetic condition.

hmmm
It's what you make it.
  - E-mail - orgNote - Report post to moderator
Reply #15 posted 03/19/10 8:48pm

tackam

avatar

ZombieKitten said:

tuning out because things seem too intense - ie sensory info comes at them too strongly, comfort in routine, patterns, repetitive behaviour, difficulty relating to others on an emotional level - maybe due to them processing so much info all the time?


Yeah, that's pretty much my impression of autistic people.
"What's 'non-sequitur' mean? Do I look it up in a Fag-to-English dictionary?"
  - E-mail - orgNote - Report post to moderator
Reply #16 posted 03/20/10 10:21pm

bluesbaby

avatar

prb said:

Mars23 said:

The medical community is actually mulling eliminating the diagnosis "asperger's syndrome" because it is simply a form of Autism.

Check out the movie "Temple Grandin" or look her up on Amazon. She is widely viewed as the first person to be able to talk about what Autism is like. She has it and also has 2 degrees and several of the patents used in feedlots and slaughter houses all over the world. She was able to design them better because she could understand the plight of the animals heading to slaughter.

BTW, these kids are included in the "No Child Left Behind" testing in the US. Pretty fucked up huh?

i hope they dont...it would be like putting type I and type II diabetes under just diabetes..both are different, and require different treatment/care.

i know children with autism both high functioning, and high care and with aspergers.

When i think of autism, i think of how my son looks out for his friends brother...who is autistic

and he came home yesterday and said that he and another friend have an autistic child as a book buddy (the older kids are book buddies for the younger classes)
then explained the way the boy has a board in the class room, with the different activities he has to do. he picks off a sign, and does that activity...he (my rugrat) was fascinated by this...and said, "its great, coz it helps him to focus mushy )
This boy has a twin in the class who is also autistic, but only needs one book buddy.

Im so proud of my son, the school must see the good in him also, to give him such a big responsibility


Our child uses a visual schedule. Its helpful and he is able to have some decision making in choosing activities.
  - E-mail - orgNote - Report post to moderator
Reply #17 posted 03/21/10 3:49am

Number23

Huggiebear said:

Possible Mild (Forrest Gump) 50 - 65
Moderate (Lower) Possible Moderate (Homer S) 35 - 50

Homer dumber than Gump? Mm. In answer to the question, Dustin Hoffman.
[Edited 3/21/10 3:49am]
  - E-mail - orgNote - Report post to moderator
Reply #18 posted 03/21/10 4:19am

Tremolina

TheVoid said:

I suspect
an ex of mine of having asperberg's syndrome (a very mild form of it)
and can see autism being in that vein, but I am totally and utterly
ignorant of it.


A client of mine has Asperger's. He has a job and is able to function normally, but that requires the right conditions, such as structure, clarity, tranquility and security.

For example, when his job instructions are not clear, he will have an idea by himself of what he is supposed to do, but he will be unable to perform it, because he will be pondering and worried about it all the time, possibly to the point of getting so tensed that he stops communicating.

Or when there is no rest at his workplace. For example, a while ago his employer hired a group of ex detainees and didn't tell him and his collegues that they would be working at the same workplace. The fact alone that they didn't tell him, freaked him out so much that he got serious problems focusing and concentrating on his own work.

Or when his employer fails to provide him with the coach he needs to regularly evaluate his job performances with. Or when his employer fails to answer him questions he has, or fails to provide him with the insurance that they will pay for damages he suffered during his job.
Or when his employer says that his job will not be so sure anymore, when he has to pay for a job coach too, like now.

Remarkably, he is still doing reasonably okay, tho' just hanging in there. When I talk to him about his affairs and let him do the talking, he starts to overthink and analyse things which usually ends up in one big pile of shit what is happening, without any coherence or clarity in his story and arguments, mixing one issue with the other and mixing fear of what might happen with what is really happening. Basically not seeing the forset through the trees anymore.

What I find helps a lot then is when I offer him the clarity, structure, security and tranquility he so desperately needs.

So I approach him very calmly and respectfully, and first explain to him what I want to discuss and in what order. Then I do most of the talking and clearly explain how things work and that some issues will be dealt with later and some, urgent ones, now, like him not having a job coach. This creates clarity and structure.

Then I do not tell him that "sure you will win and keep your job", but I honestly tell him that that remains to be seen and depends on several factors that are still uncertain. However, that I will have his back where needed, offering him the most security I can, but not selling him hot air.

He sure isn't dumb either and knows what he is talking about, I can tell you that. In fact, he told me his IQ is higher than average, which in case of insecurity adds, I think, to his strong tendency to totally overfeel, overthink and overanalyse matters.


-
[Edited 3/21/10 4:51am]
  - E-mail - orgNote - Report post to moderator
Reply #19 posted 03/22/10 11:39am

Huggiebear

avatar

Tremolina said:

TheVoid said:

I suspect
an ex of mine of having asperberg's syndrome (a very mild form of it)
and can see autism being in that vein, but I am totally and utterly
ignorant of it.


A client of mine has Asperger's. He has a job and is able to function normally, but that requires the right conditions, such as structure, clarity, tranquility and security.

For example, when his job instructions are not clear, he will have an idea by himself of what he is supposed to do, but he will be unable to perform it, because he will be pondering and worried about it all the time, possibly to the point of getting so tensed that he stops communicating.

Or when there is no rest at his workplace. For example, a while ago his employer hired a group of ex detainees and didn't tell him and his collegues that they would be working at the same workplace. The fact alone that they didn't tell him, freaked him out so much that he got serious problems focusing and concentrating on his own work.

Or when his employer fails to provide him with the coach he needs to regularly evaluate his job performances with. Or when his employer fails to answer him questions he has, or fails to provide him with the insurance that they will pay for damages he suffered during his job.
Or when his employer says that his job will not be so sure anymore, when he has to pay for a job coach too, like now.

Remarkably, he is still doing reasonably okay, tho' just hanging in there. When I talk to him about his affairs and let him do the talking, he starts to overthink and analyse things which usually ends up in one big pile of shit what is happening, without any coherence or clarity in his story and arguments, mixing one issue with the other and mixing fear of what might happen with what is really happening. Basically not seeing the forset through the trees anymore.

What I find helps a lot then is when I offer him the clarity, structure, security and tranquility he so desperately needs.

So I approach him very calmly and respectfully, and first explain to him what I want to discuss and in what order. Then I do most of the talking and clearly explain how things work and that some issues will be dealt with later and some, urgent ones, now, like him not having a job coach. This creates clarity and structure.

Then I do not tell him that "sure you will win and keep your job", but I honestly tell him that that remains to be seen and depends on several factors that are still uncertain. However, that I will have his back where needed, offering him the most security I can, but not selling him hot air.

He sure isn't dumb either and knows what he is talking about, I can tell you that. In fact, he told me his IQ is higher than average, which in case of insecurity adds, I think, to his strong tendency to totally overfeel, overthink and overanalyse matters.


-
[Edited 3/21/10 4:51am]



Sounds like me, Everytime my boss loses his cool or rises his voice at me, I keep think of warnings and losing the job. I explained to them about my HFA (High Functioning Autism) at the start and I think all its done is given them ammunition and a way to fire me, and every little thing I do wrong they could try and blame on my 'disability' when I clearly don't have one. It also dosen't help my IQ is in the very superior range, but my social skills are in the Forrest Gump range.
So what are u going 2 do? R u just gonna sit there and watch? I'm not gonna stop until the war is over. Its gonna take a long time
  - E-mail - orgNote - Report post to moderator
Reply #20 posted 03/22/10 12:24pm

DesireeNevermi
nd

little boys, emotional detachment, inability to verbally communicate



but then if you ask me what is the first thing i think of when I hear asbergers autism, then i think

socially awkward little girls who stare at the same thing for long periods of time.
  - E-mail - orgNote - Report post to moderator
Reply #21 posted 03/22/10 12:29pm

Tremolina

Huggiebear said:

Tremolina said:



A client of mine has Asperger's. He has a job and is able to function normally, but that requires the right conditions, such as structure, clarity, tranquility and security.

For example, when his job instructions are not clear, he will have an idea by himself of what he is supposed to do, but he will be unable to perform it, because he will be pondering and worried about it all the time, possibly to the point of getting so tensed that he stops communicating.

Or when there is no rest at his workplace. For example, a while ago his employer hired a group of ex detainees and didn't tell him and his collegues that they would be working at the same workplace. The fact alone that they didn't tell him, freaked him out so much that he got serious problems focusing and concentrating on his own work.

Or when his employer fails to provide him with the coach he needs to regularly evaluate his job performances with. Or when his employer fails to answer him questions he has, or fails to provide him with the insurance that they will pay for damages he suffered during his job.
Or when his employer says that his job will not be so sure anymore, when he has to pay for a job coach too, like now.

Remarkably, he is still doing reasonably okay, tho' just hanging in there. When I talk to him about his affairs and let him do the talking, he starts to overthink and analyse things which usually ends up in one big pile of shit what is happening, without any coherence or clarity in his story and arguments, mixing one issue with the other and mixing fear of what might happen with what is really happening. Basically not seeing the forset through the trees anymore.

What I find helps a lot then is when I offer him the clarity, structure, security and tranquility he so desperately needs.

So I approach him very calmly and respectfully, and first explain to him what I want to discuss and in what order. Then I do most of the talking and clearly explain how things work and that some issues will be dealt with later and some, urgent ones, now, like him not having a job coach. This creates clarity and structure.

Then I do not tell him that "sure you will win and keep your job", but I honestly tell him that that remains to be seen and depends on several factors that are still uncertain. However, that I will have his back where needed, offering him the most security I can, but not selling him hot air.

He sure isn't dumb either and knows what he is talking about, I can tell you that. In fact, he told me his IQ is higher than average, which in case of insecurity adds, I think, to his strong tendency to totally overfeel, overthink and overanalyse matters.


-
[Edited 3/21/10 4:51am]



Sounds like me, Everytime my boss loses his cool or rises his voice at me, I keep think of warnings and losing the job. I explained to them about my HFA (High Functioning Autism) at the start and I think all its done is given them ammunition and a way to fire me, and every little thing I do wrong they could try and blame on my 'disability' when I clearly don't have one. It also dosen't help my IQ is in the very superior range, but my social skills are in the Forrest Gump range.


In many countries it is not legal to fire somebody just because they have a disability, or an illness, or pregnancy, or other specific situations. If you fear this is or could become the case with you, I would urge you to seek advice on your legal position in New Zealand, to know your rights and duties and what you may expect, for example at a labor union.

I would however not fear that you told them about your HFA. An employer may generally expect his employee to tell him such matters, if it is relevant to the job. However tell them only about it as far as it is relevant to your job.

Do you think or know whether there are any specific requirements you need in order to perform adequately, such as certain social requirements (since you claim to be in the socially lower range)? Talking to an expert and asking for a written opinion about that, may be a good idea, but on that I would also seriously urge you to seek legal advice in New Zealand first.

Hope things work out good for you.

--
[Edited 3/22/10 12:49pm]
  - E-mail - orgNote - Report post to moderator
Reply #22 posted 03/23/10 9:17pm

Elle85n09

avatar

Thank you. rose
  - E-mail - orgNote - Report post to moderator
Reply #23 posted 03/23/10 9:31pm

Dpurpled

I worked one-on-one with children who have autism. The experience was wonderful and when I think about autism I think about routine, frustration (theirs), intelligence, sense of humour, friendship, and curiousity,. The behaviours of children and adults with autism vary so much. It is important to remember that autism is a spectrum disorder and behaviours differ depending on diagnosis. It's a fascinating disorder and I'm hoping to become more knowledgeable about it in the future.
  - E-mail - orgNote - Report post to moderator
  New topic   Printable     (Log in to 'subscribe' to this topic)
« Previous topic  Next topic »
Forums > General Discussion > AUTISM - An Experiment