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PrintablePunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable.  
We will be praying that is not the case.  | |
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MrsMdiver said: PunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable.
We will be praying that is not the case. Val, did your sinus/allergy problems change at all after moving out of Florida? | |
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PunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable.  Proud Memaw to Seyhan Olivia Christine ,Zoey Cirilo Jaylee & Ellie Abigail Lillian  | |
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PunkMistress said: MrsMdiver said:
We will be praying that is not the case. Val, did your sinus/allergy problems change at all after moving out of Florida? 
I still have allergies, just to different things. Have you ever had an allergy skin test? I am wracking my brain to think of the allergist I last saw when I was there. There was a group of allergist from Tampa that would see patients in Brooskville once a week. When it figure out who they were, I will orgnote you. | |
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MrsMdiver said: PunkMistress said: Val, did your sinus/allergy problems change at all after moving out of Florida?
I still have allergies, just to different things. Have you ever had an allergy skin test? I am wracking my brain to think of the allergist I last saw when I was there. There was a group of allergist from Tampa that would see patients in Brooskville once a week. When it figure out who they were, I will orgnote you. Thanks! It's most likely nothing to do with allergies, but I'm willing to investigate every possibility in order to get back to my life. Thanks for your help. | |
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PunkMistress said: MrsMdiver said:
I still have allergies, just to different things. Have you ever had an allergy skin test? I am wracking my brain to think of the allergist I last saw when I was there. There was a group of allergist from Tampa that would see patients in Brooskville once a week. When it figure out who they were, I will orgnote you. Thanks! It's most likely nothing to do with allergies, but I'm willing to investigate every possibility in order to get back to my life. Thanks for your help. Have they ruled out Asthma? The dr I sent you the link for deals with Asthma as well. | |
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MrsMdiver said: PunkMistress said: Thanks! It's most likely nothing to do with allergies, but I'm willing to investigate every possibility in order to get back to my life. Thanks for your help. Have they ruled out Asthma? The dr I sent you the link for deals with Asthma as well. They didn't rule out anything, but they did say I don't fit the profile of asthma. There is no wheeze or constriction, I'm simply not moving enough air in and out of my lungs. | |
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PunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable.  so sorry you and your family are going through this! | |
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PunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable. Hopefully they are just grasping at straws (wouldn't weak respiratory muscles have come on gradually and not all at once?). Maybe they just want you out of the hospital. You are in my thoughts and hopefully they will find a cause and a cure. [Edited 3/2/10 12:03pm] Now I'm older than movies, Now I'm wiser than dreams, And I know who's there
When silhouettes fall | |
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JerseyKRS said: PunkMistress is in the hospital again. We don't know what is causing her chest tightness, pain, and feeling of no breath. All day in the ER, xrays, ct scans, ekg's, echo cardiograms, blood gas tests.....all this has led to her being admitted. I'm very worried.
Please, keep her in your thoughts and wish her well. 
I love her more than myself and I just wish I could take away all her pain. Love hopes all things, endures all things, love never fails. That will get her through. | |
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PunkMistress said: I'm scared.
The medicine they gave me does help the attacks, but the problem is I can't seem to walk more than a few yards without triggering an attack. Any exertion stops me cold, unable to breathe. Nothing like this has ever happened to me before. I'm home now, but not back to normal. It's a possibility that my connective tissue disorder has so weakened my respiratory muscles that this will be my life from now on. I'm trying not to think that way, but it seemed to be the doctors' consensus before they sent me home. I have an appointment at the closest teaching medical center next month. Please pray that they find this is something treatable.
dont let them put it down to your condition until they have exhausted all other avenues...that is just laziness on the drs behalf, and will always leave you wondering. i hope you get answers soon seems that i was busy doing something close to nothing, but different than the day before   | |
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PunkMistress said: MrsMdiver said: Have they ruled out Asthma? The dr I sent you the link for deals with Asthma as well. They didn't rule out anything, but they did say I don't fit the profile of asthma. There is no wheeze or constriction, I'm simply not moving enough air in and out of my lungs. I hope you pull it through, mistress
I don't know about your condition, but my auntie suffered chest pains afew years ago, she took physiotherapy sessions(mostly swimming), they helped. It goes without saying though, you're a tough cookie,,,,I know you'll overcome this | |
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I think that a lot of us on here really believe that your are going to kick this in the butt.
Positive vibes still heading your way. MyeternalgrattitudetoPhil&Val.Herman said "We want sweaty truckers at the truck stop! We want cigar puffing men that look like they wanna beat the living daylights out of us" Val"sporking is spooning with benefits" | |
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It doesn't make ANY sense to think that it's your disorder affecting your respiratory muscles. I don't understand why they would say that to you.
Why would those be the only muscles affected? Why all of a sudden and so severely? Why only sometimes? Exertion bringing it on would usually mean that it's either a problem with gas exchange at the alveoli (when you start using your muscles the acidity of your blood increases and if you can't blow off enough CO2 you feel real sick real fast and you'll start gasping as your lungs try to move enough gas), or a cardiac issue (heart can't keep up with the body and you don't move enough oxygenated blood, which can also make you feel short of breath). Your heart does need your connective tissue to be sound enough to keep the valves working properly. An EKG wouldn't necessarily show this kind of issue. Did they do an ultrasound of your heart? If some of the chordae tendineae in your heart failed, that could cause a sudden onset of shortness of breath that would be worse with exercise. I don't know if that is something that happens with your disorder, but it makes more sense than the respiratory muscle business. What the fuck is wrong with those people?  [Edited 3/2/10 19:44pm] "What's 'non-sequitur' mean? Do I look it up in a Fag-to-English dictionary?" | |
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Yah, EDS is associated with various valve issues. I'm assuming you had a cardiac ultrasound with doppler, but if you didn't, TELL THEM TO LEARN HOW TO GOOGLE, and make sure you get one. Looking for mitral valve prolapse and this: http://emedicine.medscape...0-overview which presents with chest pain and respiratory issues.
Teaching hospitals are a good thing. Keep us updated. [Edited 3/2/10 20:20pm] "What's 'non-sequitur' mean? Do I look it up in a Fag-to-English dictionary?" | |
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Praying for you every day and night, Erin. | |
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Feel Better Erin!
Ps. You guys always have THEE BEST pictures.  I've reached in darkness and come out with treasure
I layed down with love and I woke up with lies Whats it all worth only the heart can measure It's not whats in the mirror but what's left inside | |
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Prayers and warm thoughts to you and yours. ^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^
Being happy doesn't mean that everything is perfect, it means you've decided to look beyond the imperfections... unknown | |
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Jeez, I thought you were getting better.
If there's anything I can do to help, like post more pics of boobs, let me know. | |
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Um, boobs always help, sexton.
I'm at work in the middle of an attack, sucking on a nebulizer while doing some paperwork. I missed my clients so so much though, I'm really glad to be back.
Each and every one of you have made this more bearable and less scary for me. I can't say enough how much all your words of caring mean to me. Like BklynBabe said, sometimes Internet friends are even better than the people in yur real life.  | |
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PunkMistress said: Um, boobs always help, sexton.
I'm at work in the middle of an attack, sucking on a nebulizer while doing some paperwork. I missed my clients so so much though, I'm really glad to be back.
Each and every one of you have made this more bearable and less scary for me. I can't say enough how much all your words of caring mean to me. Like BklynBabe said, sometimes Internet friends are even better than the people in yur real life. maybe you should get one of these... 
I hear it comes with a breathing device... A working class Hero is something to be ~ Lennon |
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RenHoek said: PunkMistress said: Um, boobs always help, sexton.
I'm at work in the middle of an attack, sucking on a nebulizer while doing some paperwork. I missed my clients so so much though, I'm really glad to be back.
Each and every one of you have made this more bearable and less scary for me. I can't say enough how much all your words of caring mean to me. Like BklynBabe said, sometimes Internet friends are even better than the people in yur real life. maybe you should get one of these...
I hear it comes with a breathing device... I'm thinking of getting a respirator like Mandy Morbid's: http://3.bp.blogspot.com/...G_0953.JPG | |
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PunkMistress said: RenHoek said: maybe you should get one of these...
I hear it comes with a breathing device... I'm thinking of getting a respirator like Mandy Morbid's: http://3.bp.blogspot.com/...G_0953.JPG If that mask is an Error 404 message for your face, then WHOAH  ...A working class Hero is something to be ~ Lennon |
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RenHoek said: PunkMistress said: If that mask is an Error 404 message for your face, then WHOAH ...
http://mandymorbid.blogsp...-blog.html Scroll down to the 3rd or 4th pic. | |
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PunkMistress said: RenHoek said: If that mask is an Error 404 message for your face, then WHOAH ...
http://mandymorbid.blogsp...-blog.html Scroll down to the 3rd or 4th pic. 
fukkin' HOT!! A working class Hero is something to be ~ Lennon |
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PunkMistress said: Um, boobs always help, sexton.
Are you sure? I wouldn't want to increase your breathing problems with a pic of hot boobs. You need a sexy nurse to take care of you. And Chris. 
I'm at work in the middle of an attack, sucking on a nebulizer while doing some paperwork.
I missed my clients so so much though, I'm really glad to be back.
Each and every one of you have made this more bearable and less scary for me. I can't say enough how much all your words of caring mean to me. Like BklynBabe said, sometimes Internet friends are even better than the people in yur real life. | |
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RenHoek said: PunkMistress said:
fukkin' HOT!! We totally love her. | |
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RenHoek said: PunkMistress said:
fukkin' HOT!! She IS hot.  | |
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