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Thread started 12/19/02 9:14am

LaVisHh

Alzheimer's Disease

:
:
Has anyone else here experienced this in their family?

This is gonna be tough, but I'd like to talk about it. Maybe in the scope of discussing it, I will be better able to deal with the reality myself.

A few months ago, I spoke to my mother over the phone (she lives in Hawaii, I'm in Minnesota). I was excited to talk to her, as it had been a while since we spoke.

sad

I waited with anticipation to hear her voice once again, the voice that has soothed me since my birth, the person I laughed with, cried with, and knew I could count on to tell me that I was her baby, and that she loved me.

Well...she didn't even know who I was. cry I got louder and louder trying to make her remember. Through my tears I said MOTHER I'M YOUR BABY!!! VIRGINIA!!! cry I wanted to somehow reach into where my mother was hiding and pull her back out.

The day after my birthday, I spoke to her once again. This time...she sounded 90 years old, and slurred like a drunk man(doctors think she suffered a stroke). sad

Maybe I am just a spoiled baby, being the last of 8 children born...but I want her mind back.

sad
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Reply #1 posted 12/19/02 9:18am

Nothinbutjoy

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hug n LaV...Sorry to hear about your mother hon.

My grandmother has early stage Alzheimer's, so she is overall herself. It hasn't taken over, but she cannot live alone now and that makes her very unhappy.

It's not spoiled LaV...my kids don't like to visit my grandmother because she is not an easy person to be around these days...I tell them they should have known her 15 years ago...She was fierce and I miss that in her and for her.

rose Take care LaV
I'm firmly planted in denial
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Reply #2 posted 12/19/02 9:22am

LaVisHh

Nothinbutjoy said:

hug n LaV...Sorry to hear about your mother hon.

My grandmother has early stage Alzheimer's, so she is overall herself. It hasn't taken over, but she cannot live alone now and that makes her very unhappy.

It's not spoiled LaV...my kids don't like to visit my grandmother because she is not an easy person to be around these days...I tell them they should have known her 15 years ago...She was fierce and I miss that in her and for her.

rose Take care LaV


Thank you, Nothin.

My mother's father had it, before her. I got to see what devistating effects it had on him - live. I was much younger then, in my teens, and thought it was a part of aging. I saw a kind, gentle man...turn into someone I became afraid of, as he would come and go, and cried a lot out of all the confusion he was feeling.

I also saw my mother's eyes change. The last time I saw her, 5 years ago, she seemed to daydream a lot. I don't know how to explain it, but her eyes weren't the same. But little did I know...

hug to you too.
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Reply #3 posted 12/19/02 9:28am

AzureStar

I'm sorry, LaV... sad
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Reply #4 posted 12/19/02 9:33am

LaVisHh

AzureStar said:

I'm sorry, LaV... sad



No, I'm sorry. This thread wasn't meant to bring anybody down...I just needed to talk about it, because it's been consuming me.
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Reply #5 posted 12/19/02 9:39am

wellbeyond

I'm so very sorry to hear that, LaVisHh... hug I can only imagine how it must have felt... sad

Whenever I talk to my father, because of his age it's a coin toss as to whether he'll sound alert and energetic, or if he'll sound confused and "out of it" as if he has no short term memory and struggling to find the words to explain even the simplist thoughts...considering that my father has always been this paragon of logic and analytical thought in my eyes, experiencing him at times when he doesn't have his full mental facilities can be a bit scary and sad at the same time... sigh

I hope you're able to go see and visit your mother soon, Lav...heart...best wishes and prayers for you both..
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Reply #6 posted 12/19/02 9:39am

sawatdiikhrap

You don't have to apologise to anybody. I can understand why you would want to talk about it.

pray


...
[This message was edited Thu Dec 19 9:40:04 PST 2002 by sawatdiikhrap]
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Reply #7 posted 12/19/02 9:41am

endorphin74

hug LaV!

I haven't experienced Alzheimers personally but I have worked very closely with dementia which manifests in about the same manner, it can be very hard on family and friends..
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Reply #8 posted 12/19/02 9:42am

muirdo

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My gran had alziemers lavish.
We watched it eat away at her mind.In the end before she died(she was 81) she never knew any of her family.
i know how tough it can be
take care u'll do fine.
Fuck the funk - it's time to ditch the worn-out Vegas horns fills, pick up the geee-tar and finally ROCK THE MUTHA-FUCKER!! He hinted at this on Chaos, now it's time to step up and fully DELIVER!!
woot!
KrystleEyes 22/03/05
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Reply #9 posted 12/19/02 9:43am

LaVisHh

wellbeyond said:

I'm so very sorry to hear that, LaVisHh... hug I can only imagine how it must have felt... sad

Whenever I talk to my father, because of his age it's a coin toss as to whether he'll sound alert and energetic, or if he'll sound confused and "out of it" as if he has no short term memory and struggling to find the words to explain even the simplist thoughts...considering that my father has always been this paragon of logic and analytical thought in my eyes, experiencing him at times when he doesn't have his full mental facilities can be a bit scary and sad at the same time... sigh

I hope you're able to go see and visit your mother soon, Lav...heart...best wishes and prayers for you both..


May I asked how old he is? My mother is 77...but it seemed to start like 10 years ago.

Best wishes to you too, wellbeyond. hug
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Reply #10 posted 12/19/02 9:44am

LaVisHh

endorphin74 said:

hug LaV!

I haven't experienced Alzheimers personally but I have worked very closely with dementia which manifests in about the same manner, it can be very hard on family and friends..



hug endorphin74

It is tougher than I could ever imagine.
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Reply #11 posted 12/19/02 9:44am

LaVisHh

sawatdiikhrap said:

You don't have to apologise to anybody. I can understand why you would want to talk about it.

pray


...
[This message was edited Thu Dec 19 9:40:04 PST 2002 by sawatdiikhrap]



Thank you, sawatdiikhrap smile
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Reply #12 posted 12/19/02 9:45am

LaVisHh

muirdo said:

My gran had alziemers lavish.
We watched it eat away at her mind.In the end before she died(she was 81) she never knew any of her family.
i know how tough it can be
take care u'll do fine.



Thanks muirdo. I thought it would be easier, since I went through it with my grandfather, but this one is really messing with my mind.
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Reply #13 posted 12/19/02 9:46am

wellbeyond

LaVisHh said:

May I asked how old he is? My mother is 77...but it seemed to start like 10 years ago.

Best wishes to you too, wellbeyond. hug

Same age as your mom...however, he just recently started to have these types of times when I'd talk to him on the phone...perhaps for about a year now...but it came on so suddenly it was a bit disorienting...
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Reply #14 posted 12/19/02 9:49am

LaVisHh

wellbeyond said:

Same age as your mom...however, he just recently started to have these types of times when I'd talk to him on the phone...perhaps for about a year now...but it came on so suddenly it was a bit disorienting...



I hear you. You hit on it with using disorienting. My own mind feels confused about it, like it's all a bad dream. I keep thinking the next time we talk, she's gonna snap out of it.

Thanks for sharing, I know these are difficult to share - but it just might help others to know they are not alone, and another person's perspective might have a positive effect.

smile
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Reply #15 posted 12/19/02 9:54am

PurpleLove7

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moderator

my GrandFather has this! my Father told me that he had 2 put my Grandad in a HOME!?!?! & i was like u mean 2 tell me if i went 2 VISIT my Grandad he wouldn't know who i am!?!?

my Dad was like he doesn't know me & sez occasionally that my Father is a nice man & must b a "Good Son" 2 his Father. now that's something 2 hear. i just PRAY 2 The Cre8tor/Allah that my FATHER doesn't have that STRIKE him.

i'm his ONLY son & i'd do it in a HeartBeat (take care of my Father) but @ the same time it would b a Difficult think 2 bear but it has 2 b done.

so Lavish... (Sis), i know how u feel... it's not my Father like it happened 2 u'r Mom but from my UnderStanding in Al Islaam it's better that u have a TRIVIAL time in Life than have The Cre8tor PUNISH u in the HereAfter. not sayin' that the DISEASE is a PUNISHMENT but i hope/pray u get my point...


may The Cre8tor 4give us of our Treason againts him & ourselves...
[This message was edited Thu Dec 19 9:55:10 PST 2002 by PurpleLove7]
Peace ... & Stay Funky ...

~* The only love there is, is the love "we" make *~

www.facebook.com/purplefunklover
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Reply #16 posted 12/19/02 10:04am

muirdo

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this kind of topic should be brought to light.
A lot of people dont realize how serious a condition it is,and what it can do to any strong family unit.
Before my gran went into full time care she would phone my mothers house every 5 minutes from around 5 o clock till she went to her bed at 8:30.Every night,everyday,for about 6 months.
It really exhausted my mother.
Fuck the funk - it's time to ditch the worn-out Vegas horns fills, pick up the geee-tar and finally ROCK THE MUTHA-FUCKER!! He hinted at this on Chaos, now it's time to step up and fully DELIVER!!
woot!
KrystleEyes 22/03/05
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Reply #17 posted 12/19/02 10:07am

LaVisHh

PurpleLove7 said:

my GrandFather has this! my Father told me that he had 2 put my Grandad in a HOME!?!?! & i was like u mean 2 tell me if i went 2 VISIT my Grandad he wouldn't know who i am!?!?

my Dad was like he doesn't know me & sez occasionally that my Father is a nice man & must b a "Good Son" 2 his Father. now that's something 2 hear. i just PRAY 2 The Cre8tor/Allah that my FATHER doesn't have that STRIKE him.

i'm his ONLY son & i'd do it in a HeartBeat (take care of my Father) but @ the same time it would b a Difficult think 2 bear but it has 2 b done.

so Lavish... (Sis), i know how u feel... it's not my Father like it happened 2 u'r Mom but from my UnderStanding in Al Islaam it's better that u have a TRIVIAL time in Life than have The Cre8tor PUNISH u in the HereAfter. not sayin' that the DISEASE is a PUNISHMENT but i hope/pray u get my point...


may The Cre8tor 4give us of our Treason againts him & ourselves...
[This message was edited Thu Dec 19 9:55:10 PST 2002 by PurpleLove7]



Thank you, PurpleLove7 for sharing. Did you ever visit your Grandad? We used to visit my father at a life care center too, almost every weekend. It just got so bad, that he required 24 hour monitoring...he used to run away, and was a danger to himself in the "real" world.

My mother was recently put in the same place. Feels like my mother is playing the same role as my grandfather did.
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Reply #18 posted 12/19/02 10:10am

LaVisHh

muirdo said:

this kind of topic should be brought to light.
A lot of people dont realize how serious a condition it is,and what it can do to any strong family unit.
Before my gran went into full time care she would phone my mothers house every 5 minutes from around 5 o clock till she went to her bed at 8:30.Every night,everyday,for about 6 months.
It really exhausted my mother.



That must have been really hard on your mother, seriously. The bond between a child and their parents, at least for me, is undeniable. I still feel a part of me died when my father did.

You mother did the best she could do, and I just know it broke her heart to see her go to a home. I know it broke mine.
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Reply #19 posted 12/19/02 10:17am

chickengrease

I had an uncle who passed away in January who suffered from Alzheimer's. My suggestion to you is to keep her surrounded by constant reminders of yourself by contacting her more frequently, sending photographs, and visiting whenever you can. You might not always get the response you want. But the more you keep visuals of yourself around her the more she can grasp. Before my uncle's final days, he didn't know my name either. But from his gestures I knew he was familiar with me.

Don't worry, she could never forget who you are
hug
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Reply #20 posted 12/19/02 10:24am

LaVisHh

chickengrease said:

I had an uncle who passed away in January who suffered from Alzheimer's. My suggestion to you is to keep her surrounded by constant reminders of yourself by contacting her more frequently, sending photographs, and visiting whenever you can. You might not always get the response you want. But the more you keep visuals of yourself around her the more she can grasp. Before my uncle's final days, he didn't know my name either. But from his gestures I knew he was familiar with me.

Don't worry, she could never forget who you are
hug


I was thinking about this exact thing last night, while trying to sleep.

I thought of how she needs some visuals. I will create an album of images for her, and send them to my sister to give to her. I have quite a few of group shots, of her with my father, myself, and other family members.

Thank you for the suggestion.

hug chickengrease
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Reply #21 posted 12/19/02 10:28am

PurpleLove7

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moderator

LaVisHh said:

PurpleLove7 said:

my GrandFather has this! my Father told me that he had 2 put my Grandad in a HOME!?!?! & i was like u mean 2 tell me if i went 2 VISIT my Grandad he wouldn't know who i am!?!?

my Dad was like he doesn't know me & sez occasionally that my Father is a nice man & must b a "Good Son" 2 his Father. now that's something 2 hear. i just PRAY 2 The Cre8tor/Allah that my FATHER doesn't have that STRIKE him.

i'm his ONLY son & i'd do it in a HeartBeat (take care of my Father) but @ the same time it would b a Difficult think 2 bear but it has 2 b done.

so Lavish... (Sis), i know how u feel... it's not my Father like it happened 2 u'r Mom but from my UnderStanding in Al Islaam it's better that u have a TRIVIAL time in Life than have The Cre8tor PUNISH u in the HereAfter. not sayin' that the DISEASE is a PUNISHMENT but i hope/pray u get my point...


may The Cre8tor 4give us of our Treason againts him & ourselves...
[This message was edited Thu Dec 19 9:55:10 PST 2002 by PurpleLove7]



Thank you, PurpleLove7 for sharing. Did you ever visit your Grandad? We used to visit my father at a life care center too, almost every weekend. It just got so bad, that he required 24 hour monitoring...he used to run away, and was a danger to himself in the "real" world.

My mother was recently put in the same place. Feels like my mother is playing the same role as my grandfather did.




i haven't seen my GrandFather since i was in College back in 1989-90 it's a shame but i moved from Chicago 2 Jamaica then Florida & it's "Shame On Me" that i haven't seem my Dad or Grandad in ova 10yrs or so...


now that's a Bad Ass Shame...

well 1 positive note... i'LL b getting Married January 4th & my Dad's coming 2 my Wedding biggrin
[This message was edited Thu Dec 19 10:37:21 PST 2002 by PurpleLove7]
Peace ... & Stay Funky ...

~* The only love there is, is the love "we" make *~

www.facebook.com/purplefunklover
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Reply #22 posted 12/19/02 10:34am

Moonbeam

I'm so sorry to hear about that, LaVisHh. sad

I have had experience with it myself, as my grandmother is in the advanced stages of it. It really can be difficult to see and I understand your pain.

However, your mother is ALWAYS alive and well in YOU. Never forget that.
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Reply #23 posted 12/19/02 10:34am

LaVisHh

PurpleLove7 said:

[...]well 1 positive note... i'LL b getting Married January 4th & my Dad's coming 2 my Wedding biggrin



yay!

biggrin
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Reply #24 posted 12/19/02 10:35am

LaVisHh

Moonbeam said:

I'm so sorry to hear about that, LaVisHh. sad

I have had experience with it myself, as my grandmother is in the advanced stages of it. It really can be difficult to see and I understand your pain.

However, your mother is ALWAYS alive and well in YOU. Never forget that.


Thank you, Moonbeam. And yes, she is...and in my children too. THAT made me smile.

You are wonderful.

Thank you.
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Reply #25 posted 12/19/02 10:36am

Diva

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Awww LaVisHh hug ... sad

I haven't experienced this in my immediate family, but a friend of mine is confronting it with her mom, and it is heart-breaking to see what she is going through, and to hear that you're having to experience it with your mom ... I'm so sorry sweets... There are no words for how hard it must be.

Much love and best wishes to you LaV, and your family rose ...
--ยปYou're my favourite moment, you're my Saturday...
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Reply #26 posted 12/19/02 10:37am

Moonbeam

LaVisHh said:

Moonbeam said:

I'm so sorry to hear about that, LaVisHh. sad

I have had experience with it myself, as my grandmother is in the advanced stages of it. It really can be difficult to see and I understand your pain.

However, your mother is ALWAYS alive and well in YOU. Never forget that.


Thank you, Moonbeam. And yes, she is...and in my children too. THAT made me smile.

You are wonderful.

Thank you.


No, YOU are wonderful, my dear friend.
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Reply #27 posted 12/19/02 10:39am

LaVisHh

Diva said:

Awww LaVisHh hug ... sad

I haven't experienced this in my immediate family, but a friend of mine is confronting it with her mom, and it is heart-breaking to see what she is going through, and to hear that you're having to experience it with your mom ... I'm so sorry sweets... There are no words for how hard it must be.

Much love and best wishes to you LaV, and your family rose ...


Thank you, Diva for your kind words. It's one of those things in life where the experience is unbelievably real. Like I mentioned earlier, it was very different when it was my grandfather. Not necessarily less painful, but less real.

hug to you too.

It's strange...it almost feels like a death, like when my father died, yet she still lives and breathes.
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Reply #28 posted 12/19/02 10:42am

PurpleLove7

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i commend u Lavish 4 postin' something so PERSONAL in a 4rum such as this. it's good NoBody (yet) hasn't said anything NEGATIVE.

it's good every1 is Supportive biggrin
Peace ... & Stay Funky ...

~* The only love there is, is the love "we" make *~

www.facebook.com/purplefunklover
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Reply #29 posted 12/19/02 11:44am

SilentChatter

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hug LaV, I know I've been fooling around with you in the chat, but you know, if you ever need to talk, let me know.
You're one special woman, and I'm not gonna let you cry alone hug

Love you

Keren
_______________________________
heart Miss Cute
For whatever it's worth, I'm sorry.
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