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Reply #30 posted 04/03/08 2:02am

syble

noimageatall said:

hug
My friend who works with kids told us to take pics of all of her favorite things, put them in a binder, and when she cries she will learn to point out what she wants. So, that's what we have done. She has a home therapist and nutritionist, but from sitting in on the sessions, I think we have helped her more.




My nephew is autistic - you dont get real help in the UK either. we have a system that means the child has to be tested by a PsychEd who will diagnose the condition, you then have to apply to your local authority to get a 'statement of special needs' this means if you get it extra funds are awarded to your local school for an extra person, staff etc to help the child. In reality this becomes a year long battle to just get some basic extra help while at school. Nothing is offered for at home no nutritionists etc

My sister battled for ever to get her son some help meanwhile he had to go to school and suffer with the normal daily routines other kids take for granted such as playtime became a battlefield for him as he cannot relate normally to his peers even as well as adults.

My nephew also doesnt make much eye contact but my sister has found that to make him stand still stop what he is doing (she takes hold of his arm) and face her and look her in the face eye to eye helps him realise that what she is telling him is important and he seems to digest the information better. This can even be something as routine as telling him to go sit down to eat, he appears to just not listen if you just call out to him he appears to be ignoring you. Of course it is hard to get the balance right and to chastise in a normal way for "real' ignorance poor behaviour as with any other child.


my mum even took up a voluntary position at his junior school to help him with lunchtime and playtime etc. He does now have a key worker who helps him in lessons etc and the school have tried to be helpful but it is very hard in the UK to get any help for your special needs child as its all to do with money.

With regard to the pics I think you are doing the best thing. My nephew also had some flash cards of emotions like we have here, sad face, happy face etc which he could point to to help express his inner feelings. Also my sister could ask him 'what is wrong' if he displayed anger by trashing the place etc and she would point to a card so he could nod in response.

I feel for you as it is a long and treacherous road that you have to devote your entire life to.

My sister takes him to play areas but has to watch him carefully as his frustration and inability to communicate effectively (dont get me wrong theres nothing wrong with his vocab or speech) his play often turns to violence and she has spent many a time dealing with an angry parent.

He has also trashed her home he is very artistic and creates the most amazing sculptures the only problem is, if he has an idea he will dismantle the objects (doors, chest of drawers, etc) that he needs. She has very few door handles and his furniture is in pieces but the creations are huge and unbelievable that a young child could have conceived them. She keeps them too.


The problem is that people only know about autism thru the popular film Rainman which was very good but in my experience inaccurate for the thousand of autistic people out there at different levels. People assume all autistics are genius at a subject and behave like rainman with ticks and mental disorder associated physical behaviour. My experience is that autistic people tend to look like any other regular person but because of this their reactions and behaviours are misread by the people they meet as antisocial, not likeable, difficult etc which is why it is so important to get a child diagnosed young so that people can react accordingly to their special needs.

Of course every autisitc person grows up and becomes an adult. You dont wear a badge saying 'hey be nice to me Im autistic' do you? How many people do we all know who are autistic? the point is you dont!

My own son is dyslexic which is on the autism spectrum many people do not realise that, also aspergers syndrome is also on the autism spectrum. Dyslexics also have a few of the symptoms such need of routine, fastidiousness about certain things etc


It is time the world woke up and realised that this is not something thats going to go away, whatever the cause - personally i think its genetic and can be traced back through families, its just they didnt know that is what they were. If you think carefully about the symptoms you can usually relate the behaviour back to someone else in your family that was always put down to 'being uptight or intolerant etc' sorry if ive just generalised but i only know my own son and my nephews patterns.

I think there is a tendency to blame chemicals etc of course this could be true as a species we have been systematically poisoning ourselves for about 100 years. But i think often parents dont want to think that this could be hereditry as it somehow puts a blemish on them or their family.

I know I am frank about things but then hey maybe thats because I have my own issues that I recognise in my dyslexic son. I am not dyslexic I find reading easy but i cannot do any form of maths to save my life and donot relate to crowds very well, which is why i love the org. I can talk freely without being tonguetied. Im fine with people I know and say two or three people but i clam up in public secretly wishing I could converse naturally and actually say what is on my mind like other people do.All the thoughts are there I just cant bring them to the tip of my tongue.

There you have it Syble laid bare!


Good luck with Ivy she will need all your love and guidance, she will have a special strenth and its great shes communicating via the computor shes a special person, which makes our world all the greater for her being here.


ps I personally think that Prince is dyslexic or autistic as he displays many of the traits I have witnessed in my family, it explains his funny spelling ideas, my son does that too using symbols and misspelt words, his apparent shyness yet wants to be seen, his need for attention and yet not liking interviews, his extreme creativity and unique gift of music, his hatred of photography thats always been his thing, I think its a personal routine for him not a religious thing.

he even said in UTCM (which of course we know he wrote) when the girl laughed at his spelling of sky (which lets face it is an odd word to choose by someone who isnt dyslexic to use in that scene but as a mother of a dyslexic I know my son would also possible spell that ski it doesnt tell you in the film how it was written tho) he says 'maybe i got that disease u know 'and laughs it off shes then says 'what stupido' and pulls a face. Dyslexia and such like were not at all recognised back then.




rainbow
walk with crooked shoes www.myspace/syblepurplelishous
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Reply #31 posted 04/03/08 7:16am

purplebutterfl
y2

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thanks, my nephew has autism and he's joy to be around. there was a movie that came on a cable channel about autism. I forget the name but onef lady son has autism and she puts this nice muscial together where children with autism sings and just be themselves. It was really nice. it's on demand now
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Reply #32 posted 04/03/08 9:44am

illimack

avatar

noimageatall said:

http://www.cnn.com/2008/US/04/02/mccarthy.autsimtreatment/index.html?eref=rss_topstories

Jenny McCarthy: My son's recovery from autism Story Highlights

McCarthy believes diet and vitamins helped her son recover from autism

Vaccines played a role in son's autism, she says

McCarthy and Jim Carrey think children being given too many vaccines, too soon


Editor's note: Jenny McCarthy and Jim Carrey are actors and parents actively involved in autism-related causes. McCarthy is the author of the book "Louder Than Words: A Mother's Journey in Healing Autism."


Actress Jenny McCarthy believes that vaccines could have contributed to her son's autism.

(CNN) -- In light of the recent Hannah Poling decision, in which the federal court conceded that vaccines could have contributed to her autism, we think the tide is finally turning in the direction of parents like us who have been shouting concerns from our rooftops for years.

Autism is a debilitating disorder, which according to the Centers for Disease Control and Prevention, is suffered by 1 in 150 kids, making it more common than childhood cancer, diabetes and AIDS combined.

Recently, England and Ireland reported that autism is affecting one in 58 individuals.

Is it any wonder that autism has become many new parents' No. 1 fear?

We've met some of the most amazing moms and dads who are forging their own path to prevention and recovery. When our son, Evan, was diagnosed with autism we were lucky enough to benefit from their knowledge and experience. Evan has been healed to a great extent by many breakthroughs that, while perhaps not scientifically proven, have definitely helped Evan and many other children who are recovering from autism. Parents vs. scientists: Watch the latest test case »

There are some who wonder what we mean when we say "recovering" from autism. They confuse the word recover with cure. While you may not be able to cure an injury caused in a terrible car accident, you can recover; you can regain many skills that you once lost. In the case of autism, we think there are treatments that often bring about such healing, so that the observable symptoms of the condition no longer exist. Even though we may no longer see any symptoms of autism, we can't say a child is "cured" because we do not know what they would have been like had they never been injured.

We believe what helped Evan recover was starting a gluten-free, casein-free diet, vitamin supplementation, detox of metals, and anti-fungals for yeast overgrowth that plagued his intestines. Once Evan's neurological function was recovered through these medical treatments, speech therapy and applied behavior analysis helped him quickly learn the skills he could not learn while he was frozen in autism. After we implemented these therapies for one year, the state re-evaluated Evan for further services. They spent five minutes with Evan and said, "What happened? We've never seen a recovery like this."

Evan is now 5 years old and what might surprise a lot of you is that we've never been contacted by a single member of the CDC, the American Academy of Pediatrics, or any other health authority to evaluate and understand how Evan recovered from autism. When Evan meets doctors and neurologists, to this day they tell us he was misdiagnosed -- that he never had autism to begin with. It's as if they are wired to believe that children can't recover from autism.

So where's the cavalry? Where are all the doctors beating down our door to take a closer look at Evan? We think we know why they haven't arrived. Most of the parents we've met who have recovered their child from autism as we did (and we have met many) blame vaccines for their child's autism.

We think our health authorities don't want to open this can of worms, so they don't even look or listen. While there is strong debate on this topic, many parents of recovered children will tell you they didn't treat their child for autism; they treated them for vaccine injury.

Many people aren't aware that in the 1980s our children received only 10 vaccines by age 5, whereas today they are given 36 immunizations, most of them by age 2. With billions of pharmaceutical dollars, could it be possible that the vaccine program is becoming more of a profit engine then a means of prevention?

CDC: Autism information center

We believe autism is an environmental illness. Vaccines are not the only environmental trigger, but we do think they play a major role. If we are going to solve this problem and finally start to reverse the rate of autism, we need to consider changing the vaccine schedule, reducing the number of shots given and removing certain ingredients that could be toxic to some children.

We take into account that some children have reactions to medicines like penicillin, for example, yet when it comes to vaccines we are operating as if our kids have a universal tolerance for them. We are acting like ONE SIZE FITS ALL. That is, at the very least, a huge improbability.

Even if the CDC is not convinced of a link between vaccines and autism, changing the vaccine schedule should be seriously considered as a precautionary measure. (If you would like to see some ideas for alternative schedules, check out http://generationrescue.org.)

We wish to state, very clearly, that we are not against all vaccines, but we do believe there is strong evidence to suggest that some of the ingredients may be hazardous and that our children are being given too many, too soon!



Jenny was on Larry King last night with her doctor. They were debating vaccines and autism along with two opposing doctors. She was really calling them out on their bullshit and wouldn't back down. I was so proud of her. When she mentioned that besides the mecury, vaccines also contain fomaldahyde and frickin anti-freeze, one stupid doctor said, "So, those things are found in the environment." What parent allows their child around formaldahyde and anti-freeze? Why the hell are they injecting that shit into little babies and expecting no negative reaction? disbelief
**************************************************

Pull ya cell phone out and call yo next of kin...we 'bout to get funky......2,3 come on ya'll
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Reply #33 posted 04/03/08 2:47pm

Rowdy

It's been a mega issue in the UK in recent years. The best coverage of all is from Dr. Ben Goldacre, who went as far as to repeatedly trash the newspaper he writes a column for over its appalling and irresponsible coverage of links between vaccines and autism. There's a good resource of investigations and articles here at his website:http://www.badscience.net/?cat=21

Brian Deer also conducted a very thorough and very revealing investigation into the vaccines/MMR link: http://briandeer.com/mmr-lancet.htm
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Reply #34 posted 04/03/08 7:59pm

harrison731

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It sure is wonderful to see all these Prince fans responding to Autism Awareness. I am a parent of an autistic child who is 8 and I am and have always been a Prince fan. Imagine my surprise to see all the responses and not a negative response in the bunch. Much love 2 you all.

Believe me when I tell you, being a parent of an autistic child is a heavy thing, but with fans like you guys out there, it makes the world a much better place.
Peace cool
The Princess of Law
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Reply #35 posted 04/04/08 12:03am

heybaby

harrison731 said:

It sure is wonderful to see all these Prince fans responding to Autism Awareness. I am a parent of an autistic child who is 8 and I am and have always been a Prince fan. Imagine my surprise to see all the responses and not a negative response in the bunch. Much love 2 you all.

Believe me when I tell you, being a parent of an autistic child is a heavy thing, but with fans like you guys out there, it makes the world a much better place.
Peace cool


hug
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Reply #36 posted 04/04/08 12:40am

syble

harrison731 said:

It sure is wonderful to see all these Prince fans responding to Autism Awareness. I am a parent of an autistic child who is 8 and I am and have always been a Prince fan. Imagine my surprise to see all the responses and not a negative response in the bunch. Much love 2 you all.

Believe me when I tell you, being a parent of an autistic child is a heavy thing, but with fans like you guys out there, it makes the world a much better place.
Peace cool




afterall we are more than just prince fans. This site is my bright spot in life at the mo too.

I think we should flag this thread in the PM&M so all of them seriously debating the merits of one song over another can be aware of this important issue. (ps im in there too debating the beatles influence on Prince lol)
walk with crooked shoes www.myspace/syblepurplelishous
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Reply #37 posted 04/04/08 10:17am

truefunksoldie
r

avatar

illimack said:

noimageatall said:

http://www.cnn.com/2008/US/04/02/mccarthy.autsimtreatment/index.html?eref=rss_topstories



Jenny was on Larry King last night with her doctor. They were debating vaccines and autism along with two opposing doctors. She was really calling them out on their bullshit and wouldn't back down. I was so proud of her. When she mentioned that besides the mecury, vaccines also contain fomaldahyde and frickin anti-freeze, one stupid doctor said, "So, those things are found in the environment." What parent allows their child around formaldahyde and anti-freeze? Why the hell are they injecting that shit into little babies and expecting no negative reaction? disbelief


[Bait snip - luv4u]
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Reply #38 posted 04/04/08 10:32am

3121

I'm glad they kept it as the same month as last year. I can't stand change.
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Reply #39 posted 04/04/08 10:46am

noimageatall

avatar

truefunksoldier said:

illimack said:



Jenny was on Larry King last night with her doctor. They were debating vaccines and autism along with two opposing doctors. She was really calling them out on their bullshit and wouldn't back down. I was so proud of her. When she mentioned that besides the mecury, vaccines also contain fomaldahyde and frickin anti-freeze, one stupid doctor said, "So, those things are found in the environment." What parent allows their child around formaldahyde and anti-freeze? Why the hell are they injecting that shit into little babies and expecting no negative reaction? disbelief


[Bait snip - luv4u]


A medical dr who in all likelihood is getting an ass of kickbacks from pharm corporations and extra money for every prescription he writes? Hmmmm.. hmmm
....maybe I'll give the dumb blond a listen too.
[Edited 4/4/08 10:47am]
"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #40 posted 04/04/08 12:36pm

illimack

avatar

truefunksoldier said:

illimack said:



Jenny was on Larry King last night with her doctor. They were debating vaccines and autism along with two opposing doctors. She was really calling them out on their bullshit and wouldn't back down. I was so proud of her. When she mentioned that besides the mecury, vaccines also contain fomaldahyde and frickin anti-freeze, one stupid doctor said, "So, those things are found in the environment." What parent allows their child around formaldahyde and anti-freeze? Why the hell are they injecting that shit into little babies and expecting no negative reaction? disbelief


As if anybody is stupid enough to listen to the advice of some idiotic, dumb blonde unfunny bimbo over a medial doctor.

rolleyes


Oh please.....there are plenty of doctors and scientist who disagree with the current vaccine regime. Do some research or STFU.
Parents know their children better than any doctor ever could. If a parent says she watched as her child had a reaction to a vaccine, I have no reason not to believe her.
The current U.S vaccine policy reccomends 36 shots by the time the child is 2. Some of those shots still contain mecury. They also contain fermaldahyde(SP), antifreeze, aluminum, chicken DNA and material from aborted fetuses. They give newborn babies the Hep B shot before they even leave the hospital. Hep B is transmitted by sex and IV drug use. Why the hell are they pumping that shit into babies? How in the hell can all those shots containing all that bullshit be healthy for children. Do some research before you make judgments.
[Edited 4/4/08 12:37pm]
**************************************************

Pull ya cell phone out and call yo next of kin...we 'bout to get funky......2,3 come on ya'll
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Reply #41 posted 04/04/08 12:59pm

purplekisses

avatar

illimack said:

truefunksoldier said:



As if anybody is stupid enough to listen to the advice of some idiotic, dumb blonde unfunny bimbo over a medial doctor.

rolleyes


Oh please.....there are plenty of doctors and scientist who disagree with the current vaccine regime. Do some research or STFU.
Parents know their children better than any doctor ever could. If a parent says she watched as her child had a reaction to a vaccine, I have no reason not to believe her.
The current U.S vaccine policy reccomends 36 shots by the time the child is 2. Some of those shots still contain mecury. They also contain fermaldahyde(SP), antifreeze, aluminum, chicken DNA and material from aborted fetuses. They give newborn babies the Hep B shot before they even leave the hospital. Hep B is transmitted by sex and IV drug use. Why the hell are they pumping that shit into babies? How in the hell can all those shots containing all that bullshit be healthy for children. Do some research before you make judgments.
[Edited 4/4/08 12:37pm]


exactly...

until U walk a mile in someone else's shoes don't come n the middle of something that U know NOTHING about... U have a child that was "normal" and taken away from you and now have to work with every day to get them back to "normal" ?? …..someone needs to confess to this madness that is just getting worse day by day... i will never trust the advice of a doctor again when it comes to my child... i had to put off her kidney surgery for a year because at the age of 4 there was no way she would have been able to understand what was going on with her and why she was hooked up to machines and had needles in her... she could not ration what was going on with her and still had some issues when she had the surgery a year later….. they had to keep her basically sedated for 3 days and in ICU so she could be monitored 24/7 so she would not pull out the needles and drainage tube out of her...

so i will take the advice of a dumb blond any day that has gone through what i have and done her research versus a dr that has a stick up their ass and gets a cut from the companies that are poisoning our children..
If U don't know someone with Autism....... U will...... April is Autism awareness month.... please get involved....
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Reply #42 posted 04/04/08 2:20pm

reneGade20

avatar

harrison731 said:

It sure is wonderful to see all these Prince fans responding to Autism Awareness. I am a parent of an autistic child who is 8 and I am and have always been a Prince fan. Imagine my surprise to see all the responses and not a negative response in the bunch. Much love 2 you all.

Believe me when I tell you, being a parent of an autistic child is a heavy thing, but with fans like you guys out there, it makes the world a much better place.
Peace cool



much heart and hug backatcha....
He was like a cock who thought the sun had risen to hear him crow.
(George Eliot)

the video for the above...evillol
http://www.youtube.com/wa...re=related
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Reply #43 posted 04/05/08 2:27pm

Teacher

hug rose

As somebody who's worked with autistic children but live and work in a country where autism ISN'T an epidemic it's bewildering to watch, it's like a train wreck. Apart from the obvious difficulties that the parents of autistic children face every day they also have to fight to find the cause of this, who exactly bears responsibility. Things that isn't considered but that will be added problems in the decades to come are:

* The parents of today's autistic children will grow old and pass away and the amount of care for these people will be HUGE and the government will of course not be prepared for this and the US health coverage is what it is.
* The workforce will be seriously depleted because of the number of autistic people that are unable to carry out regular work.


Now, before anybody takes me the wrong way - this is NOT my main concerns about this, those of you who know me know this too. It's just issues that nobody talks about because it isn't happening NOW.

A question for those of you who are parents of autistic children/have relatives who are autistic - have you heard any of your local (or otherwise) politicians talk about the issue? I'd think that it's not something that any of them would touch with a ten-foot pole but you can always hope. I'm following the presidential run pretty closely and as far as I know none of the candidates have touched on the subject. It's something that would be an EXCELLENT question for any upcoming debate, we should ALL email the same question to CNN when it comes up.
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Reply #44 posted 04/05/08 2:28pm

Teacher

Ass, double post mad
[Edited 4/5/08 14:29pm]
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Reply #45 posted 04/05/08 3:23pm

AndGodCreatedM
e

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I know some ppl who are struggling with this...thank you Phil for this thread rose
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Reply #46 posted 04/08/08 3:31am

HowComeYouDont
Callme

avatar

This boy is autistic too.. He's 9 years old, He is a very, very clever ( IQ 128), beautiful, funny and happy kid with lots of energy.

Ofcourse it's difficult... very difficult at times.. he needs a lot of guidance in (fine)tuning in emotions to other people..( I hope you know what I mean.. it's difficult to explain in english ) he for example doesn't get it when people get angry at him.. ( he knows it if someone is angry but doesn't get the WHY.

You have to tell him things over and over again.. there are lists hanging on the walls all over the place to help him remember the litllest things.

A lot of times people use to say when he was younger... :" give him to me for a week... that will help him to listen.. I can change that! " (mad ), when he was jumping up and down or ran away from me over and over again in the store.
He still runs a lot biggrin Outside.. he learnes.. step by step.. but he has to live with it for the rest of his life...

He's my son... this is Tim and I love him to death!




The Borg... Partypoopers of the galaxy.. ( Medical Hologram )
-------------------------------------------------

..Where is my lovelife.. where can it be?? There must be something wrong with the machinery..
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Reply #47 posted 04/08/08 7:33am

Statuesqque

HowComeYouDontCallme said:

This boy is autistic too.. He's 9 years old, He is a very, very clever ( IQ 128), beautiful, funny and happy kid with lots of energy.

Ofcourse it's difficult... very difficult at times.. he needs a lot of guidance in (fine)tuning in emotions to other people..( I hope you know what I mean.. it's difficult to explain in english ) he for example doesn't get it when people get angry at him.. ( he knows it if someone is angry but doesn't get the WHY.

You have to tell him things over and over again.. there are lists hanging on the walls all over the place to help him remember the litllest things.

A lot of times people use to say when he was younger... :" give him to me for a week... that will help him to listen.. I can change that! " (mad ), when he was jumping up and down or ran away from me over and over again in the store.
He still runs a lot biggrin Outside.. he learnes.. step by step.. but he has to live with it for the rest of his life...

He's my son... this is Tim and I love him to death!






he has the sweetest eyes...so bright and full of life.
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Reply #48 posted 04/08/08 7:50am

noimageatall

avatar

HowComeYouDontCallme said:

This boy is autistic too.. He's 9 years old, He is a very, very clever ( IQ 128), beautiful, funny and happy kid with lots of energy.

Ofcourse it's difficult... very difficult at times.. he needs a lot of guidance in (fine)tuning in emotions to other people..( I hope you know what I mean.. it's difficult to explain in english ) he for example doesn't get it when people get angry at him.. ( he knows it if someone is angry but doesn't get the WHY.

You have to tell him things over and over again.. there are lists hanging on the walls all over the place to help him remember the litllest things.

A lot of times people use to say when he was younger... :" give him to me for a week... that will help him to listen.. I can change that! " (mad ), when he was jumping up and down or ran away from me over and over again in the store.
He still runs a lot biggrin Outside.. he learnes.. step by step.. but he has to live with it for the rest of his life...

He's my son... this is Tim and I love him to death!






What a gorgeous child! Thank you for sharing your son with us. hug We've had people tell us the same thing as to "making" the child listen. You know what? They ARE listening...just not to the same things we are. wink

I've read so much since my granddaughter was diagnosed, and came across some interesting stuff about Indigo Children. And while I don't subscribe to the paranormal/aura opinions as of yet, I do sometimes get the feeling autism may be a new step in human evolution. The tremendous rise in cases has to mean something. I just don't think we know what it is yet. confused

My granddaughter.....she just turned three, yet still can't tell you what she wants or needs. She's very detail oriented, and will play all alone with one particular toy for 5 or 6 hours with no interruption. If you don't make her stop and eat, she won't eat at all. She only likes crunchy foods. No meat at all. She will not eat yogurt, or applesauce, or bananas, or oranges. We have to put it all in a blender with soy milk and vitamins to get her to have her daily "fruit."

We are trying to potty train her, but it's not working. She screams and hates sitting in one place. She hates the high chair too. It is a challenge, but when she hugs you and gives you a kiss, or starts singing "Oh, Christmas Tree" to you for no reason at all, it's worth it. heart

Tess...







"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #49 posted 04/08/08 8:55am

Stymie

HowComeYouDontCallme said:

This boy is autistic too.. He's 9 years old, He is a very, very clever ( IQ 128), beautiful, funny and happy kid with lots of energy.

Ofcourse it's difficult... very difficult at times.. he needs a lot of guidance in (fine)tuning in emotions to other people..( I hope you know what I mean.. it's difficult to explain in english ) he for example doesn't get it when people get angry at him.. ( he knows it if someone is angry but doesn't get the WHY.

You have to tell him things over and over again.. there are lists hanging on the walls all over the place to help him remember the litllest things.

A lot of times people use to say when he was younger... :" give him to me for a week... that will help him to listen.. I can change that! " (mad ), when he was jumping up and down or ran away from me over and over again in the store.
He still runs a lot biggrin Outside.. he learnes.. step by step.. but he has to live with it for the rest of his life...

He's my son... this is Tim and I love him to death!




hug
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Reply #50 posted 04/08/08 9:22am

purplekisses

avatar

noimageatall said:

HowComeYouDontCallme said:

This boy is autistic too.. He's 9 years old, He is a very, very clever ( IQ 128), beautiful, funny and happy kid with lots of energy.

Ofcourse it's difficult... very difficult at times.. he needs a lot of guidance in (fine)tuning in emotions to other people..( I hope you know what I mean.. it's difficult to explain in english ) he for example doesn't get it when people get angry at him.. ( he knows it if someone is angry but doesn't get the WHY.

You have to tell him things over and over again.. there are lists hanging on the walls all over the place to help him remember the litllest things.

A lot of times people use to say when he was younger... :" give him to me for a week... that will help him to listen.. I can change that! " (mad ), when he was jumping up and down or ran away from me over and over again in the store.
He still runs a lot biggrin Outside.. he learnes.. step by step.. but he has to live with it for the rest of his life...

He's my son... this is Tim and I love him to death!






What a gorgeous child! Thank you for sharing your son with us. hug We've had people tell us the same thing as to "making" the child listen. You know what? They ARE listening...just not to the same things we are. wink

I've read so much since my granddaughter was diagnosed, and came across some interesting stuff about Indigo Children. And while I don't subscribe to the paranormal/aura opinions as of yet, I do sometimes get the feeling autism may be a new step in human evolution. The tremendous rise in cases has to mean something. I just don't think we know what it is yet. confused

My granddaughter.....she just turned three, yet still can't tell you what she wants or needs. She's very detail oriented, and will play all alone with one particular toy for 5 or 6 hours with no interruption. If you don't make her stop and eat, she won't eat at all. She only likes crunchy foods. No meat at all. She will not eat yogurt, or applesauce, or bananas, or oranges. We have to put it all in a blender with soy milk and vitamins to get her to have her daily "fruit."

We are trying to potty train her, but it's not working. She screams and hates sitting in one place. She hates the high chair too. It is a challenge, but when she hugs you and gives you a kiss, or starts singing "Oh, Christmas Tree" to you for no reason at all, it's worth it. heart

Tess...









she is a cutie... give her time she will get there... i had the same things happen with my daughter... she is now 9 and does pretty well with communicating.. she still has a hard time when she is upset to tell us exactly what is wrong.... if U can get her in a head start program at the a school that offers the program.. my daughter started at 3 and it made a huge impact on her with her social skills and being around kids to learn from... the more U can get your child in programs at a early age the better...
[Edited 4/8/08 9:22am]
If U don't know someone with Autism....... U will...... April is Autism awareness month.... please get involved....
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Reply #51 posted 04/08/08 9:56am

noimageatall

avatar

purplekisses said:


she is a cutie... give her time she will get there... i had the same things happen with my daughter... she is now 9 and does pretty well with communicating.. she still has a hard time when she is upset to tell us exactly what is wrong.... if U can get her in a head start program at the a school that offers the program.. my daughter started at 3 and it made a huge impact on her with her social skills and being around kids to learn from... the more U can get your child in programs at a early age the better...


We are about to enroll her in a special school within the next few weeks. She's had a home therapist and nutritionist, and they just "released" her to be able to attend a head start program. They told us they had to wait until she did turn three. She does have a sister who is 5, and she's started copying a lot of things she does, which sometimes isn't a good thing. lol razz
"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #52 posted 04/08/08 9:59am

Statuesqque

purplekisses said:

noimageatall said:



What a gorgeous child! Thank you for sharing your son with us. hug We've had people tell us the same thing as to "making" the child listen. You know what? They ARE listening...just not to the same things we are. wink

I've read so much since my granddaughter was diagnosed, and came across some interesting stuff about Indigo Children. And while I don't subscribe to the paranormal/aura opinions as of yet, I do sometimes get the feeling autism may be a new step in human evolution. The tremendous rise in cases has to mean something. I just don't think we know what it is yet. confused

My granddaughter.....she just turned three, yet still can't tell you what she wants or needs. She's very detail oriented, and will play all alone with one particular toy for 5 or 6 hours with no interruption. If you don't make her stop and eat, she won't eat at all. She only likes crunchy foods. No meat at all. She will not eat yogurt, or applesauce, or bananas, or oranges. We have to put it all in a blender with soy milk and vitamins to get her to have her daily "fruit."

We are trying to potty train her, but it's not working. She screams and hates sitting in one place. She hates the high chair too. It is a challenge, but when she hugs you and gives you a kiss, or starts singing "Oh, Christmas Tree" to you for no reason at all, it's worth it. heart

Tess...









she is a cutie... give her time she will get there... i had the same things happen with my daughter... she is now 9 and does pretty well with communicating.. she still has a hard time when she is upset to tell us exactly what is wrong.... if U can get her in a head start program at the a school that offers the program.. my daughter started at 3 and it made a huge impact on her with her social skills and being around kids to learn from... the more U can get your child in programs at a early age the better...
[Edited 4/8/08 9:22am]



Precious hug
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Reply #53 posted 04/08/08 10:03am

noimageatall

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Statuesqque said:

purplekisses said:



she is a cutie... give her time she will get there... i had the same things happen with my daughter... she is now 9 and does pretty well with communicating.. she still has a hard time when she is upset to tell us exactly what is wrong.... if U can get her in a head start program at the a school that offers the program.. my daughter started at 3 and it made a huge impact on her with her social skills and being around kids to learn from... the more U can get your child in programs at a early age the better...
[Edited 4/8/08 9:22am]



Precious hug


Thank you....hug...I think so. heart wink
"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #54 posted 04/08/08 10:41am

HowComeYouDont
Callme

avatar

purplekisses said:

noimageatall said:



What a gorgeous child! Thank you for sharing your son with us. hug We've had people tell us the same thing as to "making" the child listen. You know what? They ARE listening...just not to the same things we are. wink

I've read so much since my granddaughter was diagnosed, and came across some interesting stuff about Indigo Children. And while I don't subscribe to the paranormal/aura opinions as of yet, I do sometimes get the feeling autism may be a new step in human evolution. The tremendous rise in cases has to mean something. I just don't think we know what it is yet. confused

My granddaughter.....she just turned three, yet still can't tell you what she wants or needs. She's very detail oriented, and will play all alone with one particular toy for 5 or 6 hours with no interruption. If you don't make her stop and eat, she won't eat at all. She only likes crunchy foods. No meat at all. She will not eat yogurt, or applesauce, or bananas, or oranges. We have to put it all in a blender with soy milk and vitamins to get her to have her daily "fruit."

We are trying to potty train her, but it's not working. She screams and hates sitting in one place. She hates the high chair too. It is a challenge, but when she hugs you and gives you a kiss, or starts singing "Oh, Christmas Tree" to you for no reason at all, it's worth it. heart

Tess...









she is a cutie... give her time she will get there... i had the same things happen with my daughter... she is now 9 and does pretty well with communicating.. she still has a hard time when she is upset to tell us exactly what is wrong.... if U can get her in a head start program at the a school that offers the program.. my daughter started at 3 and it made a huge impact on her with her social skills and being around kids to learn from... the more U can get your child in programs at a early age the better...
[Edited 4/8/08 9:22am]

Tim had the same problems... ( still refuses to eat meat though.. ) one good advice... BE CONSISTENT!!!! THEY NEED THE BOUNDARIES!! It helps them even if they are not fun... Tim only gets 1 warning..no is no and when he doesn't ( or can't ) listen he has to stay in a corner.. ( 10 minutes and afterwords he has to tell us why he's got the time-out )It sounds harsh ( sp?) but it's the only way ( for him ) to set boundaries and give him time-out.. or else he can't handle the space he gets inbetween the 2nd and 3th warning.

Tim too can play for hours with for example LEGO.. and when he plays with a friend.. they both play different games.. lol Tim plays on the Playstation and his friend with the LEGO..

He also has to be remined to eat.. put on a sweater when it's cold.. to tell him to go to the toilet... ( when he finally goes, he's jumping up and down in the bathroom trying to get his zipper open )

But he's such a lovely boy.. wins everybodies heart.. is polite and even stands up for older people in the bus.. doesn't leave candywraps or sodacans in nature and is very upset if he sees other people do that mushy
[b][Edited 4/8/08 10:44am]

The Borg... Partypoopers of the galaxy.. ( Medical Hologram )
-------------------------------------------------

..Where is my lovelife.. where can it be?? There must be something wrong with the machinery..
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Reply #55 posted 04/08/08 10:53am

noimageatall

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HowComeYouDontCallme said:

Tim had the same problems... ( still refuses to eat meat though.. ) one good advice... BE CONSISTENT!!!! THEY NEED THE BOUNDARIES!! It helps them even if they are not fun... Tim only gets 1 warning..no is no and when he doesn't ( or can't ) listen he has to stay in a corner.. ( 10 minutes and afterwords he has to tell us why he's got the time-out )It sounds harsh ( sp?) but it's the only way ( for him ) to set boundaries and give him time-out.. or else he can't handle the space he gets inbetween the 2nd and 3th warning.

Tim too can play for hours with for example LEGO.. and when he plays with a friend.. they both play different games.. lol Tim plays on the Playstation and his friend with the LEGO..

He also has to be remined to eat.. put on a sweater when it's cold.. to tell him to go to the toilet... ( when he finally goes, he's jumping up and down in the bathroom trying to get his zipper open )

But he's such a lovely boy.. wins everybodies heart.. is polite and even stands up for older people in the bus.. doesn't leave candywraps or sodacans in nature and is very upset if he sees other people do that mushy[b]


Yes, we learned that consistency and a schedule are imperative. Sometimes when she does have a temper tantrum and throws something, all I do is point to the little corner by the frig and she will walk right over and stand there. But, the little face she makes at me prevents me from making her stay there for long. I'm such a softie. I know it's not helping, and I try to be consistent. I know that as she gets older we will have to be more firm in the discipline dept.

I actually can't wait to see what she's like when she's 9, 10, 11. Also, I wonder what it is with not eating meat? Seems that common in many children with autism. hmmm
"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #56 posted 04/08/08 11:45am

Muse2NOPharaoh

Ok ladies and gentlemen, for my research paper for this semester i have chosen Autism for my subject. more specifically I have chosen to write about the importance of more money and research going into this IMMEDIATLY as it is a crisis.

I am stunned to find out that it isn't just in America that it has reached 1 in 150 children born but all over the world. It won't be long before the medical community figures out arguing for actual numbers is useless and resolving its stellar number increase in just 7 years is vital.


My plight is, I need research papers and books to back my paper and there is a plethora of material coming out as of just 2007 but the college libraries aren't yet stocked up on it. Anyone know how I can access actual research and books online? ( websights themselves arent permisible and often they sight works but do not contain them.)
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Reply #57 posted 04/08/08 12:06pm

Stymie

Muse2NOPharaoh said:

Ok ladies and gentlemen, for my research paper for this semester i have chosen Autism for my subject. more specifically I have chosen to write about the importance of more money and research going into this IMMEDIATLY as it is a crisis.

I am stunned to find out that it isn't just in America that it has reached 1 in 150 children born but all over the world. It won't be long before the medical community figures out arguing for actual numbers is useless and resolving its stellar number increase in just 7 years is vital.


My plight is, I need research papers and books to back my paper and there is a plethora of material coming out as of just 2007 but the college libraries aren't yet stocked up on it. Anyone know how I can access actual research and books online? ( websights themselves arent permisible and often they sight works but do not contain them.)
worship You are awesome for doing this.
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Reply #58 posted 04/08/08 12:21pm

noimageatall

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Muse2NOPharaoh said:

Ok ladies and gentlemen, for my research paper for this semester i have chosen Autism for my subject. more specifically I have chosen to write about the importance of more money and research going into this IMMEDIATLY as it is a crisis.

I am stunned to find out that it isn't just in America that it has reached 1 in 150 children born but all over the world. It won't be long before the medical community figures out arguing for actual numbers is useless and resolving its stellar number increase in just 7 years is vital.


My plight is, I need research papers and books to back my paper and there is a plethora of material coming out as of just 2007 but the college libraries aren't yet stocked up on it. Anyone know how I can access actual research and books online? ( websights themselves arent permisible and often they sight works but do not contain them.)


I know of two books that were recommended to me by a friend who is in college and also works with autistic children. She says they are a "must-read."

Through the Eyes of Aliens: A Book About Autistic People
By Jasmine Lee O’Neill
http://www.ont-autism.uog...b0202.html

And... Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence by Luke Jackson
http://specialchildren.ab...ontact.htm

Excerpt...

"Are you listening to me?" "Look at me when I am talking to you." AS kids, how familiar are those words? Don't they just make you groan? (And that's putting it politely!) Adults seem to make a really big deal of getting people to look at them when they are talking. Apparently it is seen as rude if you don't look at least in the direction of the speaker. This world is full of so many stupid rules! I really hate this one.

[My brother] Joseph rarely looks at anyone when they are talking to him and part of the work they do at school is to get him to do so.

I can see the reason why they do this with Joe because he has a big listening and attention problem. When he is not looking at someone he is usually doing his own thing and people are wasting their time talking to him. To find out whether your child or the person you are working with or talking to is listening, the easiest way is to ask them a question related to what you have just said. If they answer and are obviously listening, then personally I think it is irrelevant whether they are looking at you or not.

When I look someone straight in the eye, particularly someone I am not familiar with, the feeling is so uncomfortable that I cannot really describe it. First of all I feel as if their eyes are burning me and I really feel as if I am looking into the face of an alien. I know this sounds rude but I am telling it how it is. If I get past that stage and don't look away, then whilst someone is talking I find myself staring really hard and looking at their features and completely forgetting to listen to what they are saying. Mum says when I was little I used to go right up to people and stare in their faces. They probably looked funny -- I often have to stop myself from giggling when I examine people's faces; there are some very strange ones around!

Sometimes it is too hard to concentrate on listening and looking at the same time. People are hard enough to understand as their words are often so very cryptic, but when their faces are moving around, their eyebrows rising and falling and their eyes getting wider then squinting, I cannot fathom all that out in one go, so to be honest I don't even try.

AS kids, I have found a compromise to this problem that I am practising and working well on. I look at people's mouths. That means that the other person is satisfied enough because you are looking in their direction but yet you do not have to have that horrendous, burning into your very soul feeling that comes with staring into someones eyes. Just try looking hard at someones mouth when they are talking and see how many shapes it makes. The trouble with this is the temptation to amuse yourself with this and forget to listen. Another good ploy is to look in the direction of the speaker's ear. This is a good one because it reminds you to listen and provides no distractions (unless of course you find someone with a wiggly one!).

It is best to find some kind of compromise so that you don't stand out too much and appear rude. It can be done. Remember, there is more than one way to skin a cat! (Mum told me this one -- I think it sounds horrible.)
"Let love be your perfect weapon..." ~~Andy Biersack
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Reply #59 posted 04/08/08 12:37pm

HowComeYouDont
Callme

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noimageatall said:

HowComeYouDontCallme said:

Tim had the same problems... ( still refuses to eat meat though.. ) one good advice... BE CONSISTENT!!!! THEY NEED THE BOUNDARIES!! It helps them even if they are not fun... Tim only gets 1 warning..no is no and when he doesn't ( or can't ) listen he has to stay in a corner.. ( 10 minutes and afterwords he has to tell us why he's got the time-out )It sounds harsh ( sp?) but it's the only way ( for him ) to set boundaries and give him time-out.. or else he can't handle the space he gets inbetween the 2nd and 3th warning.

Tim too can play for hours with for example LEGO.. and when he plays with a friend.. they both play different games.. lol Tim plays on the Playstation and his friend with the LEGO..

He also has to be remined to eat.. put on a sweater when it's cold.. to tell him to go to the toilet... ( when he finally goes, he's jumping up and down in the bathroom trying to get his zipper open )

But he's such a lovely boy.. wins everybodies heart.. is polite and even stands up for older people in the bus.. doesn't leave candywraps or sodacans in nature and is very upset if he sees other people do that mushy


Yes, we learned that consistency and a schedule are imperative. Sometimes when she does have a temper tantrum and throws something, all I do is point to the little corner by the frig and she will walk right over and stand there. But, the little face she makes at me prevents me from making her stay there for long. I'm such a softie. I know it's not helping, and I try to be consistent. I know that as she gets older we will have to be more firm in the discipline dept.

I actually can't wait to see what she's like when she's 9, 10, 11. [b]Also, I wonder what it is with not eating meat?
Seems that common in many children with autism. hmmm

I think it has to do with their strong feelings about injustice...??!!
My son said the other day.. mom.. at least there's no animal that has to die for my food..
The Borg... Partypoopers of the galaxy.. ( Medical Hologram )
-------------------------------------------------

..Where is my lovelife.. where can it be?? There must be something wrong with the machinery..
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