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Restless Legs Syndrome... who here besides me? So I've got RLS, as spelled out in the headline... last night was really fucking bad, despite taking the medicine I was prescribed to get rid of it I had a major attack which made me unable to lie still in bed and much less sleep until 7am this morning. There are many varieties of this but this is what I have written on my web site about it and about how it affects me:
RLS has about as many manifestations as there are sufferers, clinical surveys have shown that children of alcoholics often are afflicted so I fit the bill right there. RLS often debuts in late teens, as far as I can remember I've "always" had what we called "growing pains" but the first time I remember being in so much pain that I couldn't sleep and just cried was in 1993, and since then it's been with me. RLS feels very different for different people - like pains in the leg joints, restlessness (war of the ants), a pulsating heat or simply a level of discomfort so serious you simply CANNOT keep your legs still. The attacks come almost always during evening or night. How does RLS feel for me? Like I said before RLS varies in symptoms. so it is with me too. Mostly it starts out as feeling like my legs are swollen, hot and pulsating and it only happens evenings and nights. I've got a medicin I take that works but if I don't take the pills when it starts up it escalates into an incredible "war of the ants" in my legs that makes it COMPLETELY impossible to lie still, I HAVE TO move my legs. If I force myself to lie still it feels like I'll go crazy, the discomfort then moves up my spine and into my neck. I only manage to lie still for maybe a minute, then my legs move on their own. Sometimes I also have "regular" pains in my legs, it most often feels like a dull pain in my bones about 4 inches above the knee joint or the same distance below the hip joint. There has to be others on this site experiencing this, who are you and let's trade tips and stories, it'll make us feel better I think. Forgot to add; I do have pills that I take for it and they work almost always. They're called Tradolan or Tramadol (same med, diff manufacturer) but I'm not sure if they're called something else in other countries. [Edited 2/14/07 14:17pm] | |
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my oldest sister apparently... i've always wondered if it is something i would develop too
like you needed another reason not to sleep | |
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i have it every once in a while, always in the evening, for about an hour or so, but it's not bad enough to take any meds.
i hope you'll find something that helps soon! | |
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They just came out with a pill for this. Christian Zombie Vampires | |
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Emm: As far as it's known it's not hereditary so you might not be affected at all. And yeah about the sleep, I was telling myself last night.
Martina: Yep, always in the evenings or during the night... one of God's little jokes I'm sure. Glad it goes away quickly for you. Superspaceboy: I have had meds for this for a few years now, they work 99% of the time and make it a lot better. [Edited 2/14/07 14:19pm] [Edited 2/14/07 14:19pm] | |
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I have this and I cannot believe it has been diagnosed as an actual syndrome 2010: Healing the Wounds of the Past.... http://prince.org/msg/8/325740 | |
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SupaFunkyOrgangrinderSexy said: I have this and I cannot believe it has been diagnosed as an actual syndrome
Well, since people started cutting their legs open or overdose on painkillers to get rid of it they sorta had to take it seriously... I certainly do even though I never did either of those things. | |
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SupaFunkyOrgangrinderSexy said: I have this and I cannot believe it has been diagnosed as an actual syndrome
If you're referring to your third leg, Supa, stop it. You're sullying a thread that's trying to deal with this topic in a serious manner. | |
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Teacher said: SupaFunkyOrgangrinderSexy said: I have this and I cannot believe it has been diagnosed as an actual syndrome
Well, since people started cutting their legs open or overdose on painkillers to get rid of it they sorta had to take it seriously... I certainly do even though I never did either of those things. Really?! I thought RLS was just bouncing your leg up and down continuously. Sometimes I have problems sleeping because my body don't want to stop but it's not painful. 2010: Healing the Wounds of the Past.... http://prince.org/msg/8/325740 | |
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I get this alllll the time hon... it's always way worse when you're really tired
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Natisse said: I get this alllll the time hon... it's always way worse when you're really tired
If you need something to take care of it, try ibuprofen. It used to work for me but now that I'm on anti-deps I can't take ibuprofen anymore but I got prescription pills instead. Stretching can work, as can standing in front of your freezer with the door open, with your legs nekkid... stupid but true. | |
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SupaFunkyOrgangrinderSexy said: Teacher said: Well, since people started cutting their legs open or overdose on painkillers to get rid of it they sorta had to take it seriously... I certainly do even though I never did either of those things. Really?! I thought RLS was just bouncing your leg up and down continuously. Sometimes I have problems sleeping because my body don't want to stop but it's not painful. Be happy! The bouncing is a mild variant of it, when it stops when you're going to sleep... try it when you find yourself banging your head against the pillow repeatedly cos the "ants" travelled up your spine... and you can't quite remember how it happened... it's not fun and the pets get really scared. | |
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I SWEAR TO GAWD I think I have this. Every time I see the commercials, I'm like OMG I HAVE A DISEASE!!!!! | |
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i've experienced this, but it was mostly when i was a teenager and i think i've since grown out of it. it's a weird and annoying feeling. | |
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Actually if you watch my wedding tape. It looks so funny cuz the whole time were kneeling in front of the church ya can see my dress swooping back and forth cuz I couldn't stop moving my foot back and forth. | |
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SureThing said: Actually if you watch my wedding tape. It looks so funny cuz the whole time were kneeling in front of the church ya can see my dress swooping back and forth cuz I couldn't stop moving my foot back and forth.
I've had bf's going "stop fucking moving your foot or I'm leaving the bed" on me cos when I lie down to sleep my left foot moves over the right one continuously... that's just normal for me but it's when I really CANNOT STOP that it's bad. | |
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Anx said: i've experienced this, but it was mostly when i was a teenager and i think i've since grown out of it. it's a weird and annoying feeling.
I'm happy for you, mine debuted in my teens but then it was more raw pain than it is most of the time now. It's very weird and also hella annoying, you're right. | |
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Teacher said: SupaFunkyOrgangrinderSexy said: Really?! I thought RLS was just bouncing your leg up and down continuously. Sometimes I have problems sleeping because my body don't want to stop but it's not painful. Be happy! The bouncing is a mild variant of it, when it stops when you're going to sleep... try it when you find yourself banging your head against the pillow repeatedly cos the "ants" travelled up your spine... and you can't quite remember how it happened... it's not fun and the pets get really scared. yeah, the bouncing (which I do) I wouldn't really call a "syndrome." but the ants in the spine sounds more serious My Legacy
http://prince.org/msg/8/192731 | |
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NDRU said: Teacher said: Be happy! The bouncing is a mild variant of it, when it stops when you're going to sleep... try it when you find yourself banging your head against the pillow repeatedly cos the "ants" travelled up your spine... and you can't quite remember how it happened... it's not fun and the pets get really scared. yeah, the bouncing (which I do) I wouldn't really call a "syndrome." but the ants in the spine sounds more serious Exactly, the bouncing could just as well be nervousness or whatever... ants in the spine is putting it funny cos then it doesn't sound like much but it feels kinda serious too... Ants in the spine | |
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mmmmm legs | |
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pro said: mmmmm legs
this reminds me. Did you guys know that L'Eggs don't come in plastic eggs anymore? WTF is up with that?! My Legacy
http://prince.org/msg/8/192731 | |
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NDRU said: pro said: mmmmm legs
this reminds me. Did you guys know that L'Eggs don't come in plastic eggs anymore? WTF is up with that?! What are those? Like Kinder Eggs? | |
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Teacher said: NDRU said: yeah, the bouncing (which I do) I wouldn't really call a "syndrome." but the ants in the spine sounds more serious Exactly, the bouncing could just as well be nervousness or whatever... ants in the spine is putting it funny cos then it doesn't sound like much but it feels kinda serious too... Ants in the spine I often wonder about our modern lifestyles in association with these new diseases ADHD and RLS. We don't move enough. I sit all day at a desk, and it really effects my body. Our bodies need to move. Not to downplay what you're going through (and I don't know your daily habits), but I wonder how much could be improved by changing our lifestyles. Yoga helps me, but it can barely keep up with the damage my sitting job does to me. My Legacy
http://prince.org/msg/8/192731 | |
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NDRU said: I often wonder about our modern lifestyles in association with these new diseases ADHD and RLS. We don't move enough. I sit all day at a desk, and it really effects my body. Our bodies need to move.
Not to downplay what you're going through (and I don't know your daily habits), but I wonder how much could be improved by changing our lifestyles. Yoga helps me, but it can barely keep up with the damage my sitting job does to me. Oh yes, I have no doubt I'd be even worse off if I didn't walk the dog in the woods a couple hours a day. When I worked as a teacher it would be terrible if I'd been standing up all day, or for that matter sitting down all day. I HAD TO walk the dog in the evening or go nuts. I think you're absolutely right, that a lot of our modern day troubles can be at least improved by physical exercise. | |
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Teacher said: NDRU said: I often wonder about our modern lifestyles in association with these new diseases ADHD and RLS. We don't move enough. I sit all day at a desk, and it really effects my body. Our bodies need to move.
Not to downplay what you're going through (and I don't know your daily habits), but I wonder how much could be improved by changing our lifestyles. Yoga helps me, but it can barely keep up with the damage my sitting job does to me. Oh yes, I have no doubt I'd be even worse off if I didn't walk the dog in the woods a couple hours a day. When I worked as a teacher it would be terrible if I'd been standing up all day, or for that matter sitting down all day. I HAD TO walk the dog in the evening or go nuts. I think you're absolutely right, that a lot of our modern day troubles can be at least improved by physical exercise. Yes, I hear standing is just as bad as sitting. Standing hurts my back, which I assume is very bad for circulation & nerves. But it's a viscious cicle. Sitting makes me lazy. Maybe I need a dog. You can't say no to that face! Oh, and L'Eggs is a brand of Panty Hose that used to come in a plastic egg. My Legacy
http://prince.org/msg/8/192731 | |
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My father has had it for years. He thought it was because he had hairy legs. He says he feels like there are ants running up and down his legs.
M MyeternalgrattitudetoPhil&Val.Herman said "We want sweaty truckers at the truck stop! We want cigar puffing men that look like they wanna beat the living daylights out of us" Val"sporking is spooning with benefits" | |
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I move my feet back and forth all the time when I go to bed. I didn't really think of it as restless leg syndrome though, it was just some stupid habbit I picked up. It puts me to sleep though.
Though for a while I was getting tingling (like pins and needles) in my legs followed by a really nasty charlie horse sometimes when I would lay down. | |
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I get that *all* the time!! I didnt know there was a name for it, or anyone else had it Wierd, both my parents were alcoholics...
My cure is to lie down, but put my legs right up against the wall It works! Rock n roll baby | |
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Miguel: Why the hell would he have that just cos he's got hairy legs? Yeah he's got it then
Tom: As with me and my left foot, if it's not a bad night it puts me to sleep too. Alice: I did that too when I was younger, I'd fall asleep like that. For me it was because the wall is cool and when the legs feel hot cool is sooooo good. Now I go out and stand on the balcony in the middle of the night when it's freezing outside. | |
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Teacher said: So I've got RLS, as spelled out in the headline... last night was really fucking bad, despite taking the medicine I was prescribed to get rid of it I had a major attack which made me unable to lie still in bed and much less sleep until 7am this morning. There are many varieties of this but this is what I have written on my web site about it and about how it affects me:
RLS has about as many manifestations as there are sufferers, clinical surveys have shown that children of alcoholics often are afflicted so I fit the bill right there. RLS often debuts in late teens, as far as I can remember I've "always" had what we called "growing pains" but the first time I remember being in so much pain that I couldn't sleep and just cried was in 1993, and since then it's been with me. RLS feels very different for different people - like pains in the leg joints, restlessness (war of the ants), a pulsating heat or simply a level of discomfort so serious you simply CANNOT keep your legs still. The attacks come almost always during evening or night. How does RLS feel for me? Like I said before RLS varies in symptoms. so it is with me too. Mostly it starts out as feeling like my legs are swollen, hot and pulsating and it only happens evenings and nights. I've got a medicin I take that works but if I don't take the pills when it starts up it escalates into an incredible "war of the ants" in my legs that makes it COMPLETELY impossible to lie still, I HAVE TO move my legs. If I force myself to lie still it feels like I'll go crazy, the discomfort then moves up my spine and into my neck. I only manage to lie still for maybe a minute, then my legs move on their own. Sometimes I also have "regular" pains in my legs, it most often feels like a dull pain in my bones about 4 inches above the knee joint or the same distance below the hip joint. There has to be others on this site experiencing this, who are you and let's trade tips and stories, it'll make us feel better I think. Forgot to add; I do have pills that I take for it and they work almost always. They're called Tradolan or Tramadol (same med, diff manufacturer) but I'm not sure if they're called something else in other countries. [Edited 2/14/07 14:17pm] tramadol is not suggested for long term use in the US, but rather for short term pain relief, no more than 5 days of therapy. Most doctors ignore that limit, Here in the US, the drug of choice is called "requip" | |
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