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Thread started 09/21/06 5:22pm

Stymie

In the grand scheme of things........

.....sometimes Org drama doesn't matter.

For those who know me and some of you that don't, I have a son who is autistic. I am faced with the very real realization that I may not be able to take care of him anymore. I talk to my friends about it but in order to deal with it, I talk to the people in a support group I have been attending for the last five years. I don't support the group as much as I should, and I don't go to group as much as I used to but they are very vital in holding me up. I started a Yahoo group for our group and I still turn to them when I am going through. Most days I feel like I can't take it anymore, but I decided to give it another try.

Today, one of the members of the Yahoo group said to me:

Dear Ivy:

I read your response and sometimes there just are no words but I felt
your love throughout the responses.

However your hope inspires me to a level that is unexplainable. Thank
you for your courage and your strength and I will remember those as I
interface with families today. It is parents like you that give
professionals like myself the passion to continue my work. I thank you
for the inspiration and sharing.


It brought me to tears because I feel like such a failure that I feel like I can't take care of him anymore.

Parents: love your children and count your blessings that they are healthy and if they are not, count your blessings anyway.
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Reply #1 posted 09/21/06 5:25pm

luv4all7

hug hug
rose

Thank You for sharing that. kotc
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Reply #2 posted 09/21/06 5:27pm

psychodelicide

avatar

hug
RIP, mom. I will forever miss and love you.
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Reply #3 posted 09/21/06 5:28pm

WillyWonka

hug

rose
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Reply #4 posted 09/21/06 5:28pm

IrresistibleB1
tch

Ivy, you are amazing - i couldn't do half the things you do every day. hug

a friend of mine had to deal with a similar situation with her severely physically and developmentally disabled son. it is hard to face the fact that you can't protect and nurture him for the rest of his life. but knowing that you have the support of so many, including people here and in your group, may give you some strength. rose
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Reply #5 posted 09/21/06 5:43pm

Natisse

Ivy... no words just a massive, big hug

rose
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Reply #6 posted 09/21/06 5:48pm

AndGodCreatedM
e

avatar

hug rose
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Reply #7 posted 09/21/06 5:57pm

ThreadBare

Thank you for sharing, as always.

hug x 100
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Reply #8 posted 09/21/06 6:03pm

emm

avatar

i can't imagine having to make that decision
but in the end, you are his mother
and mothers will do what is best for their babies


much respect rose
doveShe couldn't stop crying 'cause she knew he was gone to stay dove
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Reply #9 posted 09/21/06 6:08pm

Handclapsfinga
snapz

you got an orgnote. hug
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Reply #10 posted 09/21/06 6:14pm

JustErin

avatar

I can't imagine going through this either. It must be so incredibly hard.

You should never consider yourself a failure because you find it overwhelming or so difficult that you feel you might not be able to care for him any longer - you are simply doing the best you can and that's all anyone can do.
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Reply #11 posted 09/21/06 6:14pm

Anx

i think you're doing exactly what is right for you and for your son, not to mention for your other kids as well. i'm just impressed as hell that you never gave up. bow
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Reply #12 posted 09/21/06 6:18pm

SupaFunkyOrgan
grinderSexy

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Honey, you are not Superman and you are not God. You can only do what you can do. Most of us are not and will never be in your position but I respect the fact that you are doing everything you can to make it work and if you ever come to the point where you just can't make it work anymore I will still have the hugest respect for you. hug
2010: Healing the Wounds of the Past.... http://prince.org/msg/8/325740
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Reply #13 posted 09/21/06 6:24pm

Byron

Stymie said:

Parents: love your children and count your blessings that they are healthy and if they are not, count your blessings anyway.

nod Truer words have never been spoken...and those words are as beautiful as you are. rose
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Reply #14 posted 09/21/06 6:41pm

FunkMistress

avatar

Babygirl, I know you and I know that crazy lovable boy. It isn't that you are incapable of taking care of him anymore. It's that he is at a point where one person (let alone one person who also must care for many others) cannot provide the level of care and safety that he and everyone else needs.

That says nothing about you, my darling woman. But what speaks volumes is the fact that you have hung in there this long out of pure fierce love for your child. And the decisions you're making now are being made out of that same fierce love and sense of protection.

I love you so much!

rose

hug
CHICKENS ARE NOT SUPPOSED TO DO COCAINE, SILKY HEN.
The Normal Whores Club
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Reply #15 posted 09/21/06 6:44pm

sag10

avatar

You bring tears to my eyes..

I cannot imagine the joy he gives to you, and I cannot imagine your sorrow.

I love you! rose
^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^*^
Being happy doesn't mean that everything is perfect, it means you've decided to look beyond the imperfections... unknown
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Reply #16 posted 09/21/06 6:49pm

ThreadBare

FunkMistress said:

And the decisions you're making now are being made out of that same fierce love and sense of protection.


rose

hug


Ivy, FM said it all right there.
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Reply #17 posted 09/22/06 12:09am

Mazurack

ThreadBare said:

FunkMistress said:

And the decisions you're making now are being made out of that same fierce love and sense of protection.


rose

hug


Ivy, FM said it all right there.


She did.

Hugs to you, Stymie...
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Reply #18 posted 09/22/06 12:19am

2the9s

Support groups are great. nod

Ivy is greater. wink
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Reply #19 posted 09/22/06 12:43am

Stymie

Thank you all. I get so bogged down in playing Superwoman that every now and then I need a reminder that I'm not invincible.

Thank you all again on behalf of Daniel Christopher.
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Reply #20 posted 09/22/06 1:34am

theAudience

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"Ya see, we're not interested in what you know...but what you are willing to learn. C'mon y'all."
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Reply #21 posted 09/22/06 3:34am

applekisses

hug I can't imagine having to be in your situation...and I'm so sorry you're faced with such a decision...but, no matter the decision you make, you will make the best one out of the love you have for him...and that can never be wrong and whatever you decide to do will not mean you love him any less. rose
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Reply #22 posted 09/22/06 8:46am

PREDOMINANT

avatar

Hey you, it sounds like you are doing just fine, life is hard for everyone, sounds like you got it a bit harder, but don't give up, the rewards of spending time together are there, just remember to look for them and smile. hug
Happy is he who finds out the causes for things.Virgil (70-19 BC). Virgil was such a lying bastard!
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Reply #23 posted 09/22/06 10:49am

Shanti1

I commend your strengths hug
rose

You sound like an awesome mom comfort
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Reply #24 posted 09/22/06 1:11pm

Teacher

I can't say it better than previous speakers already have, Ivy - realising this is just as hard as not realising, if not harder. Love you, and remember that not having your son at home doesn't mean he's not in all of your hearts. heart hug
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Reply #25 posted 09/22/06 1:36pm

onenitealone

avatar

Everyone has said it so eloquently already but I just want to give you a massive hug and tell you I think you're an amazing woman. worship He is very lucky to have you as his mother.

All the best, Ivy.
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Reply #26 posted 09/22/06 3:29pm

EskomoKisses

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no words...just hugs
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Reply #27 posted 09/22/06 6:02pm

XxAxX

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rose
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Reply #28 posted 09/22/06 6:45pm

reneGade20

avatar

For years my son was diagnosed and eventually misdiagnosed..first with autism...then Aspergers Syndrome....it went all the way to ADD/ADHD....I know the heartache that comes from dealing with that....so my hat is off to you and all the respect in the world is yours..... hug

....and u are so right....cuz time on this earth is so short...and they get away so fast....
He was like a cock who thought the sun had risen to hear him crow.
(George Eliot)

the video for the above...evillol
http://www.youtube.com/wa...re=related
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Reply #29 posted 09/22/06 6:53pm

MarieLouise

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I don't know you at all, but reading this brings tears to my eyes. I have some (rather vague) experiences with autistic children and I can imagine how hard it is to love your child so much, but being in different worlds at the same time. You seem like a very strong woman, from what I read. Don't feel guilty for things you can't help. If you love him as you do, I'm sure you're making the right choices.

Love, Marie flower
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