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Thread started 03/19/15 11:37am

CarrieCee

Please help if you can...HOPEFUL UPDATE!!!

Hi Everyone,

Some good news to report! Doctors have found a match for Nico! Here is a message from his mom:

We are officially on our way! Nico has moved down to the Transplant unit tonight. Tomorrow begins day -7 . Though the next few weeks are about to be the most difficult to come, I know we have all of you right by our sides , and we will get through it. Our ongoing thanks and appreciation for all the love and support you have shown us. You are Nico's army, and my angels....love you all.

Keep those prayers going....still have a tough road ahead.

[img:$uid]http://images40.fotki.com/v1143/photos/2/215922/13643737/nico-vi.jpg[/img:$uid]

Hi Everyone

Nico is in pretty rough shape. He is on a ventilator, a feeding tube, 4 iv's and his fingers are dying. He will need both of his hands amputated soon. Doctors say we won't know if there's a match until April. They want all necessary tests to run to know it's an absolute match, and I suppose not to give us false hope.

The most important thing right now is to FIND that match. Again, if you are up for the challenge and are a healthy adult please consider registering on bethematch.com

Second, we do have a go fund me page and the response so far has been HUGE. Mom has been out of work for months and she is unable to make mortgage payments on top of medical bills, having to stay in a hotel, pay for hospital parking and eat. The hospital is so full they do not even have a cot for her.

Anything helps if you so choose to donate. There are lots of campaigns asking for money these days and we cannot help everyone. If anything please keep Nico in your prayers. This little nugget has been through so much and is fighting as hard as he can to hang on.

Thank you so much for reading this and all of your support.

http://www.gofundme.com/pice0w

#Nicostrong

My friend's little boy is in dire need of a bone marrow transplant. He has SCIDS and will not survive without one. I realize becoming a donor is a lot of work, but if you meet the criteria please consider registering to be a bone marrow donor. It could save a child's life.

If you cannot donate for any reason I ask that you share this on your facebook page. Actually I ask all of you to share in some way. You just never know who could be a match. Nico deserves a chance.

Thank you so much.

http://www.bethematch.org/

[img:$uid]http://images34.fotki.com/v1606/photos/2/215922/13643737/Nico-vi.jpg[/img:$uid]

[Edited 5/15/15 6:34am]

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Reply #1 posted 03/19/15 1:20pm

prittypriss

Ohhh what a cutie! I wish I could help somehow, but with my health I'm unable to be a donor, but that face and smile makes me want to take the risk!

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Reply #2 posted 03/19/15 1:31pm

kpowers

avatar

I'm on file since the 90's

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Reply #3 posted 03/19/15 10:48pm

babynoz

I am so sorry to hear that....a beautiful baby.

I'm unable to be a donor but please let us know if you guys do a fund raiser or benefit.

I will ask around and send the little one healing thoughts/ prayers too. pray

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #4 posted 03/20/15 12:50am

luv4u

Moderator

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moderator



Stickyfied thumbs up!

I pray a match will be found.

canada

Ohh purple joy oh purple bliss oh purple rapture!
REAL MUSIC by REAL MUSICIANS - Prince
"I kind of wish there was a reason for Prince to make the site crash more" ~~ Ben
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Reply #5 posted 03/20/15 7:46am

CarrieCee

Thank you, everyone. His mom is a single mother and as you can imagine, she is just beside herself. He is now on a ventilator in a Boston hospital. If we find a match and he survives he will have to have his hands amputated, as the circulation has stopped and his hands turned black. Doctors are not sure why.

This is so devastating to the family and friends. We are trying to do everything we can to help, but there is only so much. Any sharing of this post is so greatly appreciated. Nico is Italian and Indian descent, if you know anyone with similar race maybe they will be willing to be tested.

We may be having a benefit for the mom. I will post updates here if anyone is interested.

Again, thank you for sharing, posting, and keeping Nico in your thoughts and prayers. <3

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Reply #6 posted 03/20/15 7:47am

CarrieCee

prittypriss said:

Ohhh what a cutie! I wish I could help somehow, but with my health I'm unable to be a donor, but that face and smile makes me want to take the risk!

Thank you, prittypriss. I cannot donate either, I have autoimmune disease myself and unfortunately cannot participate.

Spreading the word helps. A friend of a friend of a friend could be a match...you just never know.

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Reply #7 posted 03/20/15 7:48am

CarrieCee

kpowers said:

I'm on file since the 90's

Thank you, kpowers.

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Reply #8 posted 03/20/15 7:48am

CarrieCee

babynoz said:

I am so sorry to hear that....a beautiful baby.

I'm unable to be a donor but please let us know if you guys do a fund raiser or benefit.

I will ask around and send the little one healing thoughts/ prayers too. pray

Thank you so much, babynoz. I can't express how much we appreciate it.

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Reply #9 posted 03/20/15 12:21pm

babynoz

CarrieCee said:

babynoz said:

I am so sorry to hear that....a beautiful baby.

I'm unable to be a donor but please let us know if you guys do a fund raiser or benefit.

I will ask around and send the little one healing thoughts/ prayers too. pray

Thank you so much, babynoz. I can't express how much we appreciate it.



No prob, please keep us posted.

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #10 posted 03/21/15 9:32pm

CarrieCee

Today was a tough day. Nico is on a ventilator , feeding tube, 4 IV's and his fingers are dying. He will have to have both of his hands amputated but that is a hurdle we are willing to take as long as he survives.

The amount of love and support from strangers, friends and family has been so amazing there are no words to express our gratitude. We have set up a go fund me fundraiser to help Mom. She has been out of work for a long of time so she can focus on Nico. We are trying to lessen the financial burden of paying a mortgage, hospital bills, hotel rooms food and parking while not receiving a paycheck.

If you would like to donate please follow the link below. I realize there are a lot of people asking for money these days and we cant help everyone. If anything please keep Nico in your prayers.

http://www.gofundme.com/pice0w
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Reply #11 posted 03/22/15 1:48am

kpowers

avatar

CarrieCee said:

Today was a tough day. Nico is on a ventilator , feeding tube, 4 IV's and his fingers are dying. He will have to have both of his hands amputated but that is a hurdle we are willing to take as long as he survives. The amount of love and support from strangers, friends and family has been so amazing there are no words to express our gratitude. We have set up a go fund me fundraiser to help Mom. She has been out of work for a long of time so she can focus on Nico. We are trying to lessen the financial burden of paying a mortgage, hospital bills, hotel rooms food and parking while not receiving a paycheck. If you would like to donate please follow the link below. I realize there are a lot of people asking for money these days and we cant help everyone. If anything please keep Nico in your prayers. http://www.gofundme.com/pice0w

If I was a match I would donate in a instant

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Reply #12 posted 03/23/15 5:50pm

babynoz

Donation sent.

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #13 posted 03/23/15 7:09pm

CarrieCee

babynoz said:

Donation sent.



Aww man everyones kindness and generosity has been so friggin' humbling. Thank you, Babynoz. Really...thank you.

I am also happy to report that the goal has been met in just two days! And Nico's circulation improved. He may be able to keep some of his fingers which is HUGE!! Keep those prayers and good vibes coming. Next we find a match!

❤️❤️❤️❤️
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Reply #14 posted 03/31/15 10:34am

CarrieCee

Nico is feeling better today, but still has a long road ahead of him.

Praying for a match.

[img:$uid]http://images46.fotki.com/v677/photos/2/215922/13643737/Nico2-vi.jpg[/img:$uid]

[img:$uid]http://images16.fotki.com/v378/photos/2/215922/13643737/Nico-vi.jpg[/img:$uid]

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Reply #15 posted 03/31/15 12:14pm

SupaFunkyOrgan
grinderSexy

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Sweet sweet baby. Praying for a miracle heart

2010: Healing the Wounds of the Past.... http://prince.org/msg/8/325740
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Reply #16 posted 03/31/15 1:16pm

babynoz

Thanks for the update.... pray

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #17 posted 04/01/15 10:10am

CarrieCee

I guess they will still amputate his fingers. You can see in the photos how they turned black. Since they are completely dead, Nico can't feel the pain anymore so the doctors are not rushing to amputate. They want to make sure that there won't be any more damaged tissue so they get it all in one surgery. sad

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Reply #18 posted 04/01/15 6:26pm

veronikka

Breaks my heart to see a child so sick cry


pray
[Edited 4/1/15 18:32pm]
Rhythm floods my heart♥The melody it feeds my soul
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Reply #19 posted 04/03/15 11:42am

luvsexy4all

have u been to the St Judes hospital? its free

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Reply #20 posted 04/07/15 6:12am

CarrieCee

luvsexy4all said:

have u been to the St Judes hospital? its free

Nico is at Boston Children's Hospital where he is getting the best care possible for the condition he has. The Go Fund Me page is to help his mom since she has been out of work for over 3 months. He just had surgery yesterday to remove some of the fingers that turned black and died.

There were 3 matches found, but all declined to donate.

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Reply #21 posted 04/10/15 10:27am

CarrieCee

Nico had surgery last week to remove some of his fingers. They are now really concentrating on finding a bone marrow match. www.bethematch.org has all the answers you need to find out if you fit the criteria of becoming a donor. Please consider helping if you can. <3

[img:$uid]http://images49.fotki.com/v630/photos/2/215922/13643737/squeako-vi.jpg[/img:$uid]

[img:$uid]http://images14.fotki.com/v437/photos/2/215922/13643737/nico2-vi.jpg[/img:$uid]

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Reply #22 posted 05/12/15 9:16am

LittlePurpleYo
da

Signed up on the site. It's sad that anyone would decline to donate, after going through the effort of becoming a donor. I don't know (& somehow doubt that it's the case) that potential donors are told that they could save the life of little guy like that, but if that's the case, how could anyone refuse? Let alone 3 people? It's my understanding that travel & some other expenses are covered for the donor.

[Edited 5/12/15 9:23am]

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Reply #23 posted 05/12/15 3:01pm

Adisa

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pray

I'm sick and tired of the Prince fans being sick and tired of the Prince fans that are sick and tired!
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Reply #24 posted 05/13/15 5:58am

CarrieCee

There may be some good news to report soon....!!!!

Nico is currently undergoing very harsh chemo to get the disease under control.

Hopefully another update in a few weeks.

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Reply #25 posted 05/13/15 11:39am

babynoz

Thanks for the news...bless his little heart, heart

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #26 posted 05/13/15 12:51pm

CarrieCee

babynoz said:

Thanks for the news...bless his little heart, heart

What if he turns out to be a Patriots fan? lol

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Reply #27 posted 05/13/15 3:30pm

babynoz

CarrieCee said:

babynoz said:

Thanks for the news...bless his little heart, heart

What if he turns out to be a Patriots fan? lol



some of my best friends are pats fans in somerville.... biggrin

Prince, in you I found a kindred spirit...Rest In Paradise.
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Reply #28 posted 05/14/15 6:21am

CarrieCee

babynoz said:

CarrieCee said:

What if he turns out to be a Patriots fan? lol



some of my best friends are pats fans in somerville.... biggrin

Ahhhh good ol' Slummerville! I was there every weekend for a few years...

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